Aldakota

› Forums › General Melanoma Community › Aldakota

  • Post
    • January 17, 2015 at 12:03 am
    JoshF
    Participant

      Anyone ever hear from Aldakota? He had the lepto issues going on and it's been a long time. He is always so strong and inspirational. He hasn't posted in long time…I hope all is well but I'm worried.

    Viewing 14 reply threads
    • Replies
        • January 17, 2015 at 1:54 am
        Swanee
        Participant

          Hi Josh,

          I feel your concern and wonder the same myself.  Since joining this site in 2010 I have lost tract of many people with whom I really bonded with on MPIP.  I wish there was a way to have an alternate email, kind of like emergency contact, where we could inquire with a family or friend on the status of our melanoma buddy.  

          I really love this website but have also felt the loss and discouragement of lost contacts and no way to know what the status is of each of them.  I enjoy so much when others pop up once a year to give an update to their status or at least update their profile, it's so very important!

          Swanee 

          • January 17, 2015 at 1:54 am
          Swanee
          Participant

            Hi Josh,

            I feel your concern and wonder the same myself.  Since joining this site in 2010 I have lost tract of many people with whom I really bonded with on MPIP.  I wish there was a way to have an alternate email, kind of like emergency contact, where we could inquire with a family or friend on the status of our melanoma buddy.  

            I really love this website but have also felt the loss and discouragement of lost contacts and no way to know what the status is of each of them.  I enjoy so much when others pop up once a year to give an update to their status or at least update their profile, it's so very important!

            Swanee 

              • January 17, 2015 at 2:09 am
              JoshF
              Participant

                Swanee you said it best, I often think of people who have posted regularly and then they're gone…you hear nothing. I just hope they're well. Al is one….Beat the beast"! Always positive and encouraging. I knew he had some challenges but was hoping he'd be back.

                josh

                • January 17, 2015 at 2:09 am
                JoshF
                Participant

                  Swanee you said it best, I often think of people who have posted regularly and then they're gone…you hear nothing. I just hope they're well. Al is one….Beat the beast"! Always positive and encouraging. I knew he had some challenges but was hoping he'd be back.

                  josh

                  • January 17, 2015 at 2:09 am
                  JoshF
                  Participant

                    Swanee you said it best, I often think of people who have posted regularly and then they're gone…you hear nothing. I just hope they're well. Al is one….Beat the beast"! Always positive and encouraging. I knew he had some challenges but was hoping he'd be back.

                    josh

                  • January 17, 2015 at 1:54 am
                  Swanee
                  Participant

                    Hi Josh,

                    I feel your concern and wonder the same myself.  Since joining this site in 2010 I have lost tract of many people with whom I really bonded with on MPIP.  I wish there was a way to have an alternate email, kind of like emergency contact, where we could inquire with a family or friend on the status of our melanoma buddy.  

                    I really love this website but have also felt the loss and discouragement of lost contacts and no way to know what the status is of each of them.  I enjoy so much when others pop up once a year to give an update to their status or at least update their profile, it's so very important!

                    Swanee 

                    • January 17, 2015 at 3:55 pm
                    kpcollins31
                    Participant

                      I have wondered about this too, Josh. Al was a fixture here for a while. I know he was facing something very serious with the lepto when he dropped off.

                      Kevin

                      • January 17, 2015 at 3:55 pm
                      kpcollins31
                      Participant

                        I have wondered about this too, Josh. Al was a fixture here for a while. I know he was facing something very serious with the lepto when he dropped off.

                        Kevin

                        • January 17, 2015 at 3:55 pm
                        kpcollins31
                        Participant

                          I have wondered about this too, Josh. Al was a fixture here for a while. I know he was facing something very serious with the lepto when he dropped off.

                          Kevin

                          • January 18, 2015 at 3:31 am
                          casagrayson
                          Participant

                            I asked about Al several months ago and no one knew anything.  Did anyone here know his last name?  Did he have to use it to sign up — maybe Tim knows?

                            • January 18, 2015 at 3:31 am
                            casagrayson
                            Participant

                              I asked about Al several months ago and no one knew anything.  Did anyone here know his last name?  Did he have to use it to sign up — maybe Tim knows?

                              • January 18, 2015 at 3:31 am
                              casagrayson
                              Participant

                                I asked about Al several months ago and no one knew anything.  Did anyone here know his last name?  Did he have to use it to sign up — maybe Tim knows?

                                • January 18, 2015 at 4:37 am
                                arthurjedi007
                                Participant

                                  Dunno how he is doing either. I know Facebook isn't for everyone and other than setting it up I didn't do much with it until this disease. Now I try to update it every Sunday and sometimes more often if things are going on. It has helped me emotionally. A couple people have face booked me from this site. Just a thought. The way I sometimes feel especially the last few weeks I might stop posting someday and not for a good reason. I hope not though. But just today I was just eating half a bite of chicken sandwich and with my swallowing issue started choking that dad almost had to call 911. Totally ridiculous to fight this long just to almost choke to death trying to eat. Anyway sorry to have hijacked the topic from this gentleman. Just thought it was an idea to keep tabs on folks we are concerned about.

                                  Artie

                                  • January 18, 2015 at 4:37 am
                                  arthurjedi007
                                  Participant

                                    Dunno how he is doing either. I know Facebook isn't for everyone and other than setting it up I didn't do much with it until this disease. Now I try to update it every Sunday and sometimes more often if things are going on. It has helped me emotionally. A couple people have face booked me from this site. Just a thought. The way I sometimes feel especially the last few weeks I might stop posting someday and not for a good reason. I hope not though. But just today I was just eating half a bite of chicken sandwich and with my swallowing issue started choking that dad almost had to call 911. Totally ridiculous to fight this long just to almost choke to death trying to eat. Anyway sorry to have hijacked the topic from this gentleman. Just thought it was an idea to keep tabs on folks we are concerned about.

                                    Artie

                                    • January 18, 2015 at 4:37 am
                                    arthurjedi007
                                    Participant

                                      Dunno how he is doing either. I know Facebook isn't for everyone and other than setting it up I didn't do much with it until this disease. Now I try to update it every Sunday and sometimes more often if things are going on. It has helped me emotionally. A couple people have face booked me from this site. Just a thought. The way I sometimes feel especially the last few weeks I might stop posting someday and not for a good reason. I hope not though. But just today I was just eating half a bite of chicken sandwich and with my swallowing issue started choking that dad almost had to call 911. Totally ridiculous to fight this long just to almost choke to death trying to eat. Anyway sorry to have hijacked the topic from this gentleman. Just thought it was an idea to keep tabs on folks we are concerned about.

                                      Artie

                                      • January 18, 2015 at 10:16 pm
                                      Jahendry12
                                      Participant

                                        Hang in there Artie!

                                        • January 18, 2015 at 10:16 pm
                                        Jahendry12
                                        Participant

                                          Hang in there Artie!

                                          • January 18, 2015 at 10:16 pm
                                          Jahendry12
                                          Participant

                                            Hang in there Artie!

                                        Viewing 14 reply threads
                                        • You must be logged in to reply to this topic.
                                        About the MRF Patient Forum

                                        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                        Popular Topics