Atypical Spitz vs Spitz Melanoma

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  • Post
    • October 7, 2014 at 8:05 pm
    hyb222
    Participant

      I had a weird mole on my thigh that changed a little last year after sun exposure and then rapidly changed the last 6 months as I began trail running. I had a shave biopsy that came back as an ASN but couldn't rule out Melanoma. I had  WLE that has come back clear but they STILL cannot tell me what I had…basically…we won't say you had melanoma but we are treating it as if it were. A pat on the back and hearty, "see ya in six months". They never even did a full body basic check. I have a spot that looks perfectly normal (just like the one did a year ago before it was excised) that had sharp pains underneath this weekend. Very similar pains were under my ASN. I guess I just don't have peace with "we got it out…but we aren't sure what 'it' was". If I post my pathology report, does anyone have an interest in seeing if they're familar with the terms?

       

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    • Replies
        • October 7, 2014 at 10:43 pm
        Janner
        Participant

          I'd send the pathology slides to UCSF for a second opinion.  Much better than posting the report here, because it is a judgement decision.  UCSF has done research on Spitz — and have advanced testing available if their pathologists cannot determine if it is malignant or not.  On occasion, even they can't make a final judgement, but they are who I'd want to read my slides in this case.  They are definitely the experts.  If your other lesion is "itching" or otherwise changing, have it removed as well.  BTW, how old are you?  Spitz nevi are not often found in those over 20.

            • October 8, 2014 at 12:47 am
            hyb222
            Participant

              Thank you!!! I am going for a second opinion somewhere locally, but I think I will also see about sending my report to UCSF.

              I am 37. And my spot was def itching when I finally made myself go in. The other area isn't itching and could just be a fluke.

               

              • October 8, 2014 at 12:37 pm
              Janner
              Participant

                You actually send the biopsy slides, not the report.  Talk to your doc or the lab they use.  Or contact UCSF and ask them how best to send the slides.

                • October 8, 2014 at 12:37 pm
                Janner
                Participant

                  You actually send the biopsy slides, not the report.  Talk to your doc or the lab they use.  Or contact UCSF and ask them how best to send the slides.

                  • October 8, 2014 at 12:37 pm
                  Janner
                  Participant

                    You actually send the biopsy slides, not the report.  Talk to your doc or the lab they use.  Or contact UCSF and ask them how best to send the slides.

                    • October 8, 2014 at 12:47 am
                    hyb222
                    Participant

                      Thank you!!! I am going for a second opinion somewhere locally, but I think I will also see about sending my report to UCSF.

                      I am 37. And my spot was def itching when I finally made myself go in. The other area isn't itching and could just be a fluke.

                       

                      • October 8, 2014 at 12:47 am
                      hyb222
                      Participant

                        Thank you!!! I am going for a second opinion somewhere locally, but I think I will also see about sending my report to UCSF.

                        I am 37. And my spot was def itching when I finally made myself go in. The other area isn't itching and could just be a fluke.

                         

                        • October 8, 2014 at 9:02 am
                        Carole K
                        Participant

                          I would definitely see a new derm as well.  Glad you found MPIP.  Its a woanderful place for information and believe me when i tell you YOU WON'T FIND MANY LIKE JANNER—- SHE'S A WALKING ENCYCLOPEDIA.   

                          Love and Light

                          Carole K

                          • October 8, 2014 at 9:02 am
                          Carole K
                          Participant

                            I would definitely see a new derm as well.  Glad you found MPIP.  Its a woanderful place for information and believe me when i tell you YOU WON'T FIND MANY LIKE JANNER—- SHE'S A WALKING ENCYCLOPEDIA.   

                            Love and Light

                            Carole K

                            • October 8, 2014 at 9:02 am
                            Carole K
                            Participant

                              I would definitely see a new derm as well.  Glad you found MPIP.  Its a woanderful place for information and believe me when i tell you YOU WON'T FIND MANY LIKE JANNER—- SHE'S A WALKING ENCYCLOPEDIA.   

                              Love and Light

                              Carole K

                              • October 8, 2014 at 9:03 am
                              Carole K
                              Participant

                                HI wonderful lady.  Love and Miss you..  How are you?  Big hugs

                                Love and Light

                                Carole K

                                • October 8, 2014 at 12:38 pm
                                Janner
                                Participant

                                  Hey Carole!  Nice to see you here.  We need to catch up!

                                  • October 8, 2014 at 12:38 pm
                                  Janner
                                  Participant

                                    Hey Carole!  Nice to see you here.  We need to catch up!

                                    • October 8, 2014 at 12:38 pm
                                    Janner
                                    Participant

                                      Hey Carole!  Nice to see you here.  We need to catch up!

                                      • October 8, 2014 at 9:03 am
                                      Carole K
                                      Participant

                                        HI wonderful lady.  Love and Miss you..  How are you?  Big hugs

                                        Love and Light

                                        Carole K

                                        • October 8, 2014 at 9:03 am
                                        Carole K
                                        Participant

                                          HI wonderful lady.  Love and Miss you..  How are you?  Big hugs

                                          Love and Light

                                          Carole K

                                        • October 7, 2014 at 10:43 pm
                                        Janner
                                        Participant

                                          I'd send the pathology slides to UCSF for a second opinion.  Much better than posting the report here, because it is a judgement decision.  UCSF has done research on Spitz — and have advanced testing available if their pathologists cannot determine if it is malignant or not.  On occasion, even they can't make a final judgement, but they are who I'd want to read my slides in this case.  They are definitely the experts.  If your other lesion is "itching" or otherwise changing, have it removed as well.  BTW, how old are you?  Spitz nevi are not often found in those over 20.

                                          • October 7, 2014 at 10:43 pm
                                          Janner
                                          Participant

                                            I'd send the pathology slides to UCSF for a second opinion.  Much better than posting the report here, because it is a judgement decision.  UCSF has done research on Spitz — and have advanced testing available if their pathologists cannot determine if it is malignant or not.  On occasion, even they can't make a final judgement, but they are who I'd want to read my slides in this case.  They are definitely the experts.  If your other lesion is "itching" or otherwise changing, have it removed as well.  BTW, how old are you?  Spitz nevi are not often found in those over 20.

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