lingering side effects?

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    • July 4, 2014 at 11:07 am
    ecc26
    Participant

      Hello everyone,

      Not sure if anyone out there can help me on this, but I have a side effects question:

      I was on the BRAF/MEK combo all winter, which meant I didn't spend a whole lot of time outside most of the time I was on the drugs. They began to fail in May and by that time I had noticed that I had developed photosensitvity (sun sensitivity) as a side effect. That wasn't terribly surprising, but they combo began to fail in May, I had a 1 week washout, then began the Merk PD-1 EAP. I just got my second dose this past week and so have been off the combo for 5-6 weeks. I still seem to have some photosensitivity, as well as some folliculitis (basically body acne) on the backs of my legs. I have not found anywhere that states that these are possible side effects of PD-1, so I am assuming they are leftover from the combo. 

      My question is: has anyone else had lingering side effects after coming off the combo, and if so how long did they last?

      Thanks for reading!

       

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    • Replies
        • July 4, 2014 at 8:11 pm
        arthurjedi007
        Participant

          Yes. They recorded my taf/mek rash on my arms, chest and legs when I started the merck eap pd1.

          I just got my 3rd dose so about 7 weeks off the combo. I still get new rash bumps pop up but others fade away. Like not as much on my chest anymore but actually a little more on my legs and about same on arms. I've tried liquid vitamin e, olive oil and aloe vera but doesn't really seem to do much for this rash but they helped previous rashes with zel and ipi once I was off them.

          • July 4, 2014 at 8:11 pm
          arthurjedi007
          Participant

            Yes. They recorded my taf/mek rash on my arms, chest and legs when I started the merck eap pd1.

            I just got my 3rd dose so about 7 weeks off the combo. I still get new rash bumps pop up but others fade away. Like not as much on my chest anymore but actually a little more on my legs and about same on arms. I've tried liquid vitamin e, olive oil and aloe vera but doesn't really seem to do much for this rash but they helped previous rashes with zel and ipi once I was off them.

              • July 4, 2014 at 10:47 pm
              ecc26
              Participant

                Thanks, I guess I figured once I stopped the combo the side effects would go away relatively quickly. I guess not. Hopefully they will actually go away though.

                • July 4, 2014 at 10:47 pm
                ecc26
                Participant

                  Thanks, I guess I figured once I stopped the combo the side effects would go away relatively quickly. I guess not. Hopefully they will actually go away though.

                  • July 4, 2014 at 10:47 pm
                  ecc26
                  Participant

                    Thanks, I guess I figured once I stopped the combo the side effects would go away relatively quickly. I guess not. Hopefully they will actually go away though.

                  • July 4, 2014 at 8:11 pm
                  arthurjedi007
                  Participant

                    Yes. They recorded my taf/mek rash on my arms, chest and legs when I started the merck eap pd1.

                    I just got my 3rd dose so about 7 weeks off the combo. I still get new rash bumps pop up but others fade away. Like not as much on my chest anymore but actually a little more on my legs and about same on arms. I've tried liquid vitamin e, olive oil and aloe vera but doesn't really seem to do much for this rash but they helped previous rashes with zel and ipi once I was off them.

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