Not the news i wanted

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  • Post
    • May 28, 2014 at 11:15 pm
    Ginger8888
    Participant

      Hello i'm Ginger.. Was stage 3 C i guess until today after my Dr. appt…I had a biospy done last week on a lymph node on my neck..I had a dissection back in feb..Well the node tested positive and i'm worried sick..I have adopted my 14 old grandson and a single grandma..My oncologist here( in my area) has been in constant with my Melanoma Specialist since he's been seeing me..My specialist is meeting with others to figure out what to do next..I finishedthe 30 interferon about a month ago with no problems and am worried what the next step will do to me.. 

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    • Replies
        • May 29, 2014 at 2:14 am
        BrianP
        Participant

          Ginger,

          Was the previous disection on the neck as well?  I'll be curious what your doctors recommend.  Like the other poster mentioned, if the lung spots can't be positively identified as melanoma then you would still be stage IIIc and more than likely NED.  Not sure what your options would be at that point other than watch and wait or an adjuvant trial.  It sounds like you have a pretty good team that you are happy with but you may want to think about 2nd opinions.  Where are you located?

          Hang in there Ginger.  The way you handled interferon I can tell you are a tough cookie.  I know you are at a scary as hell time but it will get better.

          Brian

          • May 29, 2014 at 2:14 am
          BrianP
          Participant

            Ginger,

            Was the previous disection on the neck as well?  I'll be curious what your doctors recommend.  Like the other poster mentioned, if the lung spots can't be positively identified as melanoma then you would still be stage IIIc and more than likely NED.  Not sure what your options would be at that point other than watch and wait or an adjuvant trial.  It sounds like you have a pretty good team that you are happy with but you may want to think about 2nd opinions.  Where are you located?

            Hang in there Ginger.  The way you handled interferon I can tell you are a tough cookie.  I know you are at a scary as hell time but it will get better.

            Brian

              • May 29, 2014 at 2:35 am
              Ginger8888
              Participant

                Yes my disection surgery was back in Feb..I started the interferon in April then a couple weeks later they did the scan..The lymph node was swollen before the interferon and the spots were there also but after the interferon they showed up better on the scan so they decided to do a biopsy and found it in the lymph node..The only side effects with the interferon was just the first day with chills and fever and the last week of treat my wbc got low but all my blood work is great right now..Thank you for your help..I won't find anything out until next week..The waiting is crazy…

                • May 29, 2014 at 2:35 am
                Ginger8888
                Participant

                  Yes my disection surgery was back in Feb..I started the interferon in April then a couple weeks later they did the scan..The lymph node was swollen before the interferon and the spots were there also but after the interferon they showed up better on the scan so they decided to do a biopsy and found it in the lymph node..The only side effects with the interferon was just the first day with chills and fever and the last week of treat my wbc got low but all my blood work is great right now..Thank you for your help..I won't find anything out until next week..The waiting is crazy…

                  • May 29, 2014 at 2:38 am
                  Ginger8888
                  Participant

                    I am located in Marysville Indiana, about 30 mile north east of Louisville KY..My Melanoma Specialist is located at Indiana University Hospital in Indianoplis Indiana, Dr Leslie Fecher..

                    • May 29, 2014 at 2:38 am
                    Ginger8888
                    Participant

                      I am located in Marysville Indiana, about 30 mile north east of Louisville KY..My Melanoma Specialist is located at Indiana University Hospital in Indianoplis Indiana, Dr Leslie Fecher..

                      • May 29, 2014 at 4:58 pm
                      Ginger8888
                      Participant

                        Dr just called, he wants to see me today…Scared to death!!

                        • May 29, 2014 at 4:58 pm
                        Ginger8888
                        Participant

                          Dr just called, he wants to see me today…Scared to death!!

                          • May 29, 2014 at 5:52 pm
                          democat
                          Participant

                            I'm praying for you.

                             

                            Roxanne

                            • May 29, 2014 at 5:52 pm
                            democat
                            Participant

                              I'm praying for you.

                               

                              Roxanne

                              • May 29, 2014 at 8:45 pm
                              Ginger8888
                              Participant

                                Thank you so much, i just got back..My Melanoma specialist got back with him and they decided on what treatment options were..Either another neck disection or start on Yervoy in about 3 weeks..I chose the Yervoy..Anyone have any suggestion on how to make it easier to deal with side effects?

                                • May 29, 2014 at 8:45 pm
                                Ginger8888
                                Participant

                                  Thank you so much, i just got back..My Melanoma specialist got back with him and they decided on what treatment options were..Either another neck disection or start on Yervoy in about 3 weeks..I chose the Yervoy..Anyone have any suggestion on how to make it easier to deal with side effects?

                                  • May 29, 2014 at 8:45 pm
                                  Ginger8888
                                  Participant

                                    Thank you so much, i just got back..My Melanoma specialist got back with him and they decided on what treatment options were..Either another neck disection or start on Yervoy in about 3 weeks..I chose the Yervoy..Anyone have any suggestion on how to make it easier to deal with side effects?

                                    • May 29, 2014 at 5:52 pm
                                    democat
                                    Participant

                                      I'm praying for you.

                                       

                                      Roxanne

                                      • May 29, 2014 at 4:58 pm
                                      Ginger8888
                                      Participant

                                        Dr just called, he wants to see me today…Scared to death!!

                                        • May 29, 2014 at 2:38 am
                                        Ginger8888
                                        Participant

                                          I am located in Marysville Indiana, about 30 mile north east of Louisville KY..My Melanoma Specialist is located at Indiana University Hospital in Indianoplis Indiana, Dr Leslie Fecher..

                                          • May 29, 2014 at 2:35 am
                                          Ginger8888
                                          Participant

                                            Yes my disection surgery was back in Feb..I started the interferon in April then a couple weeks later they did the scan..The lymph node was swollen before the interferon and the spots were there also but after the interferon they showed up better on the scan so they decided to do a biopsy and found it in the lymph node..The only side effects with the interferon was just the first day with chills and fever and the last week of treat my wbc got low but all my blood work is great right now..Thank you for your help..I won't find anything out until next week..The waiting is crazy…

                                          • May 29, 2014 at 2:14 am
                                          BrianP
                                          Participant

                                            Ginger,

                                            Was the previous disection on the neck as well?  I'll be curious what your doctors recommend.  Like the other poster mentioned, if the lung spots can't be positively identified as melanoma then you would still be stage IIIc and more than likely NED.  Not sure what your options would be at that point other than watch and wait or an adjuvant trial.  It sounds like you have a pretty good team that you are happy with but you may want to think about 2nd opinions.  Where are you located?

                                            Hang in there Ginger.  The way you handled interferon I can tell you are a tough cookie.  I know you are at a scary as hell time but it will get better.

                                            Brian

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