Finished Treatment…Now the Wait

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  • Post
    • February 8, 2014 at 4:41 pm
    JoshF
    Participant

      Well it's been 2 weeks now that I've been home for last round of IL2. I did another 11 bags which was crazy because docs were pegging me at less the 2nd go around. I managed some side effects a little better…mouth sores etc.. After 2 weeks I feel great…skin is smooth as baby butt after major exfoliation. Though I'm itchy, itchy…itchy!! Also, still not creating much salivia which is frustrating…anyone experience that? Just glad to be done and now wait for scans on Feb 17th so just trying to manage that anxiety. Also I don't get results until 19th…usually get same day but doc will be out and trial I'm in has 17th as last day per guidelines.

      NowI'm left with all the questions…am I responder….if so, is it complete…partial? I know these are things that can't be answered immeadiately, specfically is it duable. Only time will tell so I'm trying to go one step at a time. Also, if I have growth or more disease…what's next? What do I do? Brave souls on this site…I read how much so many of you have gone through and try to prepare myself that this may be my life. Good thing is…this forum is full of support and good advice. So know….I appreciate you all.

      Here's to 2014 being a year of great advancements in Melanoma Treatments!!!!

      Josh

    Viewing 17 reply threads
    • Replies
        • February 8, 2014 at 7:06 pm
        POW
        Participant

          Way to go, Josh! I'm happy for you that you were able to complete the whole course of treatment and even happier that it's over and you are starting to feel good again. It sounds as though you, like Jerry, would descirbe IL-2 as "tough but do-able".  Good for you!

           

          • February 8, 2014 at 7:06 pm
          POW
          Participant

            Way to go, Josh! I'm happy for you that you were able to complete the whole course of treatment and even happier that it's over and you are starting to feel good again. It sounds as though you, like Jerry, would descirbe IL-2 as "tough but do-able".  Good for you!

             

            • February 8, 2014 at 7:06 pm
            POW
            Participant

              Way to go, Josh! I'm happy for you that you were able to complete the whole course of treatment and even happier that it's over and you are starting to feel good again. It sounds as though you, like Jerry, would descirbe IL-2 as "tough but do-able".  Good for you!

               

                • February 8, 2014 at 10:30 pm
                JoshF
                Participant

                  Yes Jerry provided a lot of advice & info to me. He was right on. It is tough but can be done and recovery is fairly quick for most people. Now if we can get better CR rates with treatments I'd be a really happy man!!! Hope IL2 did trick for me…I know it's offer durable responses when it "syncs" with your body. At very least I hope they can glean something from my treatment as it relates to combo therapies. I know Jimmy B is proponent of HD IL2 & ipi in combo. We'll see!!! Thanks for reaching out!!!

                  • February 8, 2014 at 10:30 pm
                  JoshF
                  Participant

                    Yes Jerry provided a lot of advice & info to me. He was right on. It is tough but can be done and recovery is fairly quick for most people. Now if we can get better CR rates with treatments I'd be a really happy man!!! Hope IL2 did trick for me…I know it's offer durable responses when it "syncs" with your body. At very least I hope they can glean something from my treatment as it relates to combo therapies. I know Jimmy B is proponent of HD IL2 & ipi in combo. We'll see!!! Thanks for reaching out!!!

                    • February 8, 2014 at 10:30 pm
                    JoshF
                    Participant

                      Yes Jerry provided a lot of advice & info to me. He was right on. It is tough but can be done and recovery is fairly quick for most people. Now if we can get better CR rates with treatments I'd be a really happy man!!! Hope IL2 did trick for me…I know it's offer durable responses when it "syncs" with your body. At very least I hope they can glean something from my treatment as it relates to combo therapies. I know Jimmy B is proponent of HD IL2 & ipi in combo. We'll see!!! Thanks for reaching out!!!

                    • February 8, 2014 at 7:29 pm
                    Jahendry12
                    Participant

                      Thanks for the update Josh.  Glad you are starting to feel better.  Hoping for positive results!

                      And I'm with you – keep the advancements for Melanoma treatments comin'!

                      Julie

                      • February 8, 2014 at 7:29 pm
                      Jahendry12
                      Participant

                        Thanks for the update Josh.  Glad you are starting to feel better.  Hoping for positive results!

                        And I'm with you – keep the advancements for Melanoma treatments comin'!

                        Julie

                        • February 8, 2014 at 7:29 pm
                        Jahendry12
                        Participant

                          Thanks for the update Josh.  Glad you are starting to feel better.  Hoping for positive results!

                          And I'm with you – keep the advancements for Melanoma treatments comin'!

                          Julie

                            • February 8, 2014 at 7:36 pm
                            tschmith
                            Participant

                              Hoping for great results and glad you did so well.  I was to start IL2 on Monday but it's been postponed until the 24th because I might qualify for a clinical trial at NIH.  Going to meet with them on Tuesday.

                              Best wishes to you!

                              Terrie

                              • February 8, 2014 at 7:36 pm
                              tschmith
                              Participant

                                Hoping for great results and glad you did so well.  I was to start IL2 on Monday but it's been postponed until the 24th because I might qualify for a clinical trial at NIH.  Going to meet with them on Tuesday.

                                Best wishes to you!

                                Terrie

                                • February 8, 2014 at 7:36 pm
                                tschmith
                                Participant

                                  Hoping for great results and glad you did so well.  I was to start IL2 on Monday but it's been postponed until the 24th because I might qualify for a clinical trial at NIH.  Going to meet with them on Tuesday.

                                  Best wishes to you!

                                  Terrie

                                  • February 8, 2014 at 10:24 pm
                                  JoshF
                                  Participant

                                    Great!!! What trial? Whatever course you go…I'll be praying for good results for you!

                                    • February 8, 2014 at 10:24 pm
                                    JoshF
                                    Participant

                                      Great!!! What trial? Whatever course you go…I'll be praying for good results for you!

                                      • February 8, 2014 at 10:24 pm
                                      JoshF
                                      Participant

                                        Great!!! What trial? Whatever course you go…I'll be praying for good results for you!

                                        • February 10, 2014 at 2:31 pm
                                        Maureen038
                                        Participant

                                          Terri,

                                           Let us know what treatment you decide to do. Wishing you great success!!

                                          Maureen

                                          • February 10, 2014 at 2:31 pm
                                          Maureen038
                                          Participant

                                            Terri,

                                             Let us know what treatment you decide to do. Wishing you great success!!

                                            Maureen

                                            • February 10, 2014 at 2:31 pm
                                            Maureen038
                                            Participant

                                              Terri,

                                               Let us know what treatment you decide to do. Wishing you great success!!

                                              Maureen

                                            • February 9, 2014 at 12:21 am
                                            kpcollins31
                                            Participant
                                              Congrats on finishing the treatment, Josh. That seems to ne a tough one. Good luck on the upcoming scans.

                                              Kevin

                                              • February 9, 2014 at 12:21 am
                                              kpcollins31
                                              Participant
                                                Congrats on finishing the treatment, Josh. That seems to ne a tough one. Good luck on the upcoming scans.

                                                Kevin

                                                • February 9, 2014 at 12:21 am
                                                kpcollins31
                                                Participant
                                                  Congrats on finishing the treatment, Josh. That seems to ne a tough one. Good luck on the upcoming scans.

                                                  Kevin

                                                  • February 9, 2014 at 4:32 am
                                                  BrianP
                                                  Participant

                                                    Happy for you Josh and praying for good scans for you on the 17th.  I just gotta believe those CR numbers are going to be much improved in combination with IPI. 

                                                    Brian

                                                    • February 9, 2014 at 4:32 am
                                                    BrianP
                                                    Participant

                                                      Happy for you Josh and praying for good scans for you on the 17th.  I just gotta believe those CR numbers are going to be much improved in combination with IPI. 

                                                      Brian

                                                      • February 9, 2014 at 4:32 am
                                                      BrianP
                                                      Participant

                                                        Happy for you Josh and praying for good scans for you on the 17th.  I just gotta believe those CR numbers are going to be much improved in combination with IPI. 

                                                        Brian

                                                          • February 10, 2014 at 12:12 am
                                                          Brendan
                                                          Participant

                                                            Josh,

                                                            Great news that you were able to complete the treatment.  Good luck to you.

                                                            Brendan

                                                             

                                                            • February 10, 2014 at 2:27 pm
                                                            Maureen038
                                                            Participant

                                                              Wow that's fantastic Josh that you finished a grueling treatment ! Praying and wishing for you the very best news!!!

                                                              Maureen

                                                              • February 10, 2014 at 2:27 pm
                                                              Maureen038
                                                              Participant

                                                                Wow that's fantastic Josh that you finished a grueling treatment ! Praying and wishing for you the very best news!!!

                                                                Maureen

                                                                • February 10, 2014 at 2:27 pm
                                                                Maureen038
                                                                Participant

                                                                  Wow that's fantastic Josh that you finished a grueling treatment ! Praying and wishing for you the very best news!!!

                                                                  Maureen

                                                                  • February 10, 2014 at 12:12 am
                                                                  Brendan
                                                                  Participant

                                                                    Josh,

                                                                    Great news that you were able to complete the treatment.  Good luck to you.

                                                                    Brendan

                                                                     

                                                                    • February 10, 2014 at 12:12 am
                                                                    Brendan
                                                                    Participant

                                                                      Josh,

                                                                      Great news that you were able to complete the treatment.  Good luck to you.

                                                                      Brendan

                                                                       

                                                                    • February 10, 2014 at 3:21 pm
                                                                    Rebecca and Bob
                                                                    Participant

                                                                      Josh,

                                                                       

                                                                      We will be thinking on you on the 17th! Here's praying for great results.

                                                                       

                                                                      Rebecca

                                                                      • February 10, 2014 at 3:21 pm
                                                                      Rebecca and Bob
                                                                      Participant

                                                                        Josh,

                                                                         

                                                                        We will be thinking on you on the 17th! Here's praying for great results.

                                                                         

                                                                        Rebecca

                                                                        • February 10, 2014 at 3:21 pm
                                                                        Rebecca and Bob
                                                                        Participant

                                                                          Josh,

                                                                           

                                                                          We will be thinking on you on the 17th! Here's praying for great results.

                                                                           

                                                                          Rebecca

                                                                          • February 10, 2014 at 5:15 pm
                                                                          MattF
                                                                          Participant

                                                                            Josh,

                                                                            Good to hear.

                                                                            I go for scans on the 14th…after 2 months on combo TAF +Mek.

                                                                            Seems most of my unpleasantness is joint pain and headache etc. but def doable.

                                                                             

                                                                            Here is hoping to good results on your scans.

                                                                            Hope to talk soon.

                                                                            Matt

                                                                            • February 10, 2014 at 5:15 pm
                                                                            MattF
                                                                            Participant

                                                                              Josh,

                                                                              Good to hear.

                                                                              I go for scans on the 14th…after 2 months on combo TAF +Mek.

                                                                              Seems most of my unpleasantness is joint pain and headache etc. but def doable.

                                                                               

                                                                              Here is hoping to good results on your scans.

                                                                              Hope to talk soon.

                                                                              Matt

                                                                              • February 10, 2014 at 5:15 pm
                                                                              MattF
                                                                              Participant

                                                                                Josh,

                                                                                Good to hear.

                                                                                I go for scans on the 14th…after 2 months on combo TAF +Mek.

                                                                                Seems most of my unpleasantness is joint pain and headache etc. but def doable.

                                                                                 

                                                                                Here is hoping to good results on your scans.

                                                                                Hope to talk soon.

                                                                                Matt

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