Need advice ACT trial and now Yervoy /nivolumbab trial

› Forums › General Melanoma Community › Need advice ACT trial and now Yervoy /nivolumbab trial

  • Post
    • October 4, 2013 at 9:56 am
    Maureen038
    Participant
      My husband had his second set of scans at NIH for the ACT trial. He is considered stable, but two of his lung nodules have grown about 4 mm. The lymph nodes in his arm have shrunk. The doctors feel the two lymph nodes in his arm may not be melanoma. It’s wonderful that there are no new nodules and it is basically in his lungs, but it’s also like getting on the roller coaster again. He is now enrolled in the phase 1 Yervoy /nivolumbab and hopefully today we will find out when he will actually begin the drugs. All of the doctors feel this is the best treatment to do next. I’m just wondering if anyone has done both of these trials or just have an opinion. Thanks for any help!
    Viewing 2 reply threads
    • Replies
        • October 5, 2013 at 11:00 am
        Maureen038
        Participant
          Good luck! Both of the trials are excellent. Hang in there and beat the beast!!!!
          • October 5, 2013 at 11:00 am
          Maureen038
          Participant
            Good luck! Both of the trials are excellent. Hang in there and beat the beast!!!!
              • October 5, 2013 at 4:19 pm
              Maureen038
              Participant
                Thank you for your support! We are in the CA 209-004 study. Is anyone else in this trial?
                • October 5, 2013 at 4:19 pm
                Maureen038
                Participant
                  Thank you for your support! We are in the CA 209-004 study. Is anyone else in this trial?
                  • October 5, 2013 at 10:15 pm
                  UrsulaZ
                  Participant

                    hi Maureen – my name is Ursula and I'm part of this trial (CA209-004).

                    I go in for my treatment at the Sloan-Kettering site in NYC. 

                    I'm going to post a separate post because I have a question for others — but just wanted you to know that there are others of us out there! I go for my fourth combination treatment next week and am feeling well..

                    best,

                    Ursula

                    • October 5, 2013 at 10:15 pm
                    UrsulaZ
                    Participant

                      hi Maureen – my name is Ursula and I'm part of this trial (CA209-004).

                      I go in for my treatment at the Sloan-Kettering site in NYC. 

                      I'm going to post a separate post because I have a question for others — but just wanted you to know that there are others of us out there! I go for my fourth combination treatment next week and am feeling well..

                      best,

                      Ursula

                      • October 5, 2013 at 10:15 pm
                      UrsulaZ
                      Participant

                        hi Maureen – my name is Ursula and I'm part of this trial (CA209-004).

                        I go in for my treatment at the Sloan-Kettering site in NYC. 

                        I'm going to post a separate post because I have a question for others — but just wanted you to know that there are others of us out there! I go for my fourth combination treatment next week and am feeling well..

                        best,

                        Ursula

                        • October 5, 2013 at 4:19 pm
                        Maureen038
                        Participant
                          Thank you for your support! We are in the CA 209-004 study. Is anyone else in this trial?
                        • October 5, 2013 at 11:00 am
                        Maureen038
                        Participant
                          Good luck! Both of the trials are excellent. Hang in there and beat the beast!!!!
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