› Forums › General Melanoma Community › 2 More Gone
- This topic has 6 replies, 2 voices, and was last updated 12 years, 7 months ago by
Janner.
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- July 20, 2013 at 4:52 pm
I follow this board daily but don't post often. This has become a place of comfort and hope. I had my 3 month derm follow up yesterday and had 2 more moles each approx 5mm or less. Now the anxiety sets in which has been the worst part throughtout my 2 years of dealing with melanoma even thopugh I'm currently NED and pray to stay that way. I never had or dr.'s never found a primary. They think there is still a chance that there was no epidermal component but that is a whole other story.
I follow this board daily but don't post often. This has become a place of comfort and hope. I had my 3 month derm follow up yesterday and had 2 more moles each approx 5mm or less. Now the anxiety sets in which has been the worst part throughtout my 2 years of dealing with melanoma even thopugh I'm currently NED and pray to stay that way. I never had or dr.'s never found a primary. They think there is still a chance that there was no epidermal component but that is a whole other story. Question is…with the 2 moles I just had removed that makes a total of 10 with about 4 of them being atypical dysplastic nevi. If these 2 are as derm thinks they will be…that makes 6 out of 10. When do you fall into dysplastic nevus syndrome? I have a fair amount of moles but I don't think I have A LOT of moles. A friend said I should find a derm with a dermascope as this provides better detection of melanoma. Anyone have any insight or experience with this?
Thanks
Josh
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- July 20, 2013 at 10:14 pm
Hi,
I’ve probably had over 100 moles taken off and I’ve had 4 local melanomas. I’ve never been identified with the syndrome but I’m guessing I’ve got it!I now go to a dermatologist that uses a dermascope and it works great. She determines which ones to take off based on using that device. I disagreed with her on one and due to my history she agreed to remove it and it came back fine. She proved her point:) I would recommend it. I spent 10 years of my life “waiting” for results. With her my anxiety level is down significantly.
Isabell -
- July 20, 2013 at 10:14 pm
Hi,
I’ve probably had over 100 moles taken off and I’ve had 4 local melanomas. I’ve never been identified with the syndrome but I’m guessing I’ve got it!I now go to a dermatologist that uses a dermascope and it works great. She determines which ones to take off based on using that device. I disagreed with her on one and due to my history she agreed to remove it and it came back fine. She proved her point:) I would recommend it. I spent 10 years of my life “waiting” for results. With her my anxiety level is down significantly.
Isabell -
- July 20, 2013 at 10:14 pm
Hi,
I’ve probably had over 100 moles taken off and I’ve had 4 local melanomas. I’ve never been identified with the syndrome but I’m guessing I’ve got it!I now go to a dermatologist that uses a dermascope and it works great. She determines which ones to take off based on using that device. I disagreed with her on one and due to my history she agreed to remove it and it came back fine. She proved her point:) I would recommend it. I spent 10 years of my life “waiting” for results. With her my anxiety level is down significantly.
Isabell -
- July 21, 2013 at 5:04 am
Every biopsy I've had done has been atypical, but I do not have dysplastic nevus syndrome. I don't have enough moles. Most people with the syndrome have at least 100 moles, but many have HUNDREDS. Just remember that it is uncommon to have more than one primary and most atypical nevi will never turn into melanoma.
As for the dermascope, it's just a lighted magnifying glass. It doesn't diagnose, it is just another tool. My doc sometimes uses it, sometimes not. As he's in the "over 40" crowd, he usually uses some type of magnification but normally it's just highly magnified lenses. He has allowed me to look at a mole through the dermascope and it is interesting. However, we base all of my biopsies on lesions that CHANGE. Change is the #1 criteria for me and all my 3 primaries showed change.
Best wishes,
Janner
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- July 21, 2013 at 5:04 am
Every biopsy I've had done has been atypical, but I do not have dysplastic nevus syndrome. I don't have enough moles. Most people with the syndrome have at least 100 moles, but many have HUNDREDS. Just remember that it is uncommon to have more than one primary and most atypical nevi will never turn into melanoma.
As for the dermascope, it's just a lighted magnifying glass. It doesn't diagnose, it is just another tool. My doc sometimes uses it, sometimes not. As he's in the "over 40" crowd, he usually uses some type of magnification but normally it's just highly magnified lenses. He has allowed me to look at a mole through the dermascope and it is interesting. However, we base all of my biopsies on lesions that CHANGE. Change is the #1 criteria for me and all my 3 primaries showed change.
Best wishes,
Janner
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- July 21, 2013 at 5:04 am
Every biopsy I've had done has been atypical, but I do not have dysplastic nevus syndrome. I don't have enough moles. Most people with the syndrome have at least 100 moles, but many have HUNDREDS. Just remember that it is uncommon to have more than one primary and most atypical nevi will never turn into melanoma.
As for the dermascope, it's just a lighted magnifying glass. It doesn't diagnose, it is just another tool. My doc sometimes uses it, sometimes not. As he's in the "over 40" crowd, he usually uses some type of magnification but normally it's just highly magnified lenses. He has allowed me to look at a mole through the dermascope and it is interesting. However, we base all of my biopsies on lesions that CHANGE. Change is the #1 criteria for me and all my 3 primaries showed change.
Best wishes,
Janner
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Tagged: cutaneous melanoma
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