Brain Met after PD1( Proton Therapy)

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    • May 18, 2013 at 12:21 am
    killmel
    Participant

      Hi,

      I am new to this forum

      I am stage 4 and I been NED for 12 + months after taking PD1. I was a complete responder on PD1.

      To my surprise, I had my FU Mri brain & CT scans. CT results showed no tumors NED. BUT Brain MRI showed new MET in Brain 6mm. This is my first brain met and I am very scared. I am hoping that this is not the start of multiple brain mets.

      Hi,

      I am new to this forum

      I am stage 4 and I been NED for 12 + months after taking PD1. I was a complete responder on PD1.

      To my surprise, I had my FU Mri brain & CT scans. CT results showed no tumors NED. BUT Brain MRI showed new MET in Brain 6mm. This is my first brain met and I am very scared. I am hoping that this is not the start of multiple brain mets.

      I have researched SRS and the results are mixed tosuccessfully killing  the tumor completely. Also the side effects of SRS and the radiation killing healthy cells is something that I concerned about.

      I have been reading  about Proton therapy for brain mets. Research says Proton therphy has  less side effects & less damage to healthy cells.

      Has anyone treated their Brain Mets with Proton Therapy & what were your results? Was the treatment successfully?  Any short term and long term effects?

      MD Anderson has an outstanding Proton Treatment Center. Anyone have their brain mets treated at MD Anderson. What kind of treatment did you get for your brain Met at MD Anderson??  Did MD Anderson give you a choice to have Proton Therapy?

      I would hate to fly to MD Anderson, and then MD Anderson decides is to give me SRS and not Proton. I can get SRS near my home so I would only be going to MD Anderson for the Proton Therapy.

       

      Thanks for  your replies to my post.

       

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