Update: 5 years NED

Forums General Melanoma Community Update: 5 years NED

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    Julie in SoCal
    Participant
      Dear Friends!

      Yesterday I had my annual scans, and although the scanxiety was through the roof the results were worth it. I remain NED. Over the last 5 years I have read, and laughed and cried with folks here, I just wanted to write and say that I'm still here. I don't post much, but I wanted to share the good news and encourage everyone out there.

      Dear Friends!

      Yesterday I had my annual scans, and although the scanxiety was through the roof the results were worth it. I remain NED. Over the last 5 years I have read, and laughed and cried with folks here, I just wanted to write and say that I'm still here. I don't post much, but I wanted to share the good news and encourage everyone out there.

      5 years ago I didn't think I would make it this far. When I was diagnosed, I had just made a major career change and gone back to school for my PhD. Needless to say Mel wasn't in my plans and after the surgeries and treatment it took me quite awhile to get my feet back under me (and my head screwed on right) so I could study. But here it is 5 years on. I continue to be NED and I should graduate in June

      Friends, be gentle with yourself. It take a while to adjust to all the new normals (how I hated that phrase a few years ago). Lean in. Lean into folks around you who love you. You'll find them, although their identities may surprise you. And deepen your relationships with them. Also lean into your faith. Personally, I'm a follower of Jesus, and I have found that this has sustained and upheld and sometimes carried me kicking and screaming. But it has now been tested by Mel, and I have found God is so much bigger. But whatever your faith is, lean in. Deepen your relationships there. Lean in to life.

      Life is precious. Live every drop you're given.

      With my love and respect,

      Julie

      Stage 3, many WLEs, 2 SNBs, LND, HD-INF, GM-CSF = NED 5 years!

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        buffcody
        Participant

          Julie,

          Such wonderful news.  Congratulations!  And some excellent pearls of wisdom for us particularly who have been living with this disease and its impact for a shorter time than you.  I'm NED in my mind today.  What I will find out I am in three weeks at the scan report, of course, is in someone else's hands than mine.  But I can share your joy for today.

          buffcody
          Participant

            Julie,

            Such wonderful news.  Congratulations!  And some excellent pearls of wisdom for us particularly who have been living with this disease and its impact for a shorter time than you.  I'm NED in my mind today.  What I will find out I am in three weeks at the scan report, of course, is in someone else's hands than mine.  But I can share your joy for today.

            buffcody
            Participant

              Julie,

              Such wonderful news.  Congratulations!  And some excellent pearls of wisdom for us particularly who have been living with this disease and its impact for a shorter time than you.  I'm NED in my mind today.  What I will find out I am in three weeks at the scan report, of course, is in someone else's hands than mine.  But I can share your joy for today.

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