zelobraf update

Forums General Melanoma Community zelobraf update

  • Post
    bikerwife
    Participant
      Lynn started this medicine 4 pills in morning and 4 pills in the afternoon last Monday so we went for his one week checkup Tuesday. Dr. Shirai was totally overwhelmed he said I told you thuis would happen. The tumors on his body that you can see are visible disappearing. The ones that were the size of marbles are size of peas the one that was golf ball size is now marble size. They all are shrinking.

      The blood was at 400 has dropped to 279.

      The only side effect so far is a small rash in beard and around nose. Dr gave cream for this. Having bllodwork regular at home go back on 18 for another brain scan. Will have ct. Scan of chest and kidney in five weeks and hopefully that will show shrinkage also.

      Our dr was so happy he hugged lynns neck and it made us feel so good. Having a caring dr is one of the main things u need in this fight.

      May God bless each of you with strength and courage to continue on each and everyday.

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    • Replies
        gabsound
        Participant
          So happy to hear your great news!! Yeah Lynn. I hope he has a long term response to this drug.

          Congrats,

          Julie in Las Vegas

          gabsound
          Participant
            So happy to hear your great news!! Yeah Lynn. I hope he has a long term response to this drug.

            Congrats,

            Julie in Las Vegas

            gabsound
            Participant
              So happy to hear your great news!! Yeah Lynn. I hope he has a long term response to this drug.

              Congrats,

              Julie in Las Vegas

              aldakota22
              Participant

                Great that Lynn is responding so well to "Z".It truly is a miracle drug for us.Pray it works forever. Will start my 10TH month on it next week.Can live with the side effects which vary from patient to patient. Even then it varies thruout useage.  All the best.  Al

                aldakota22
                Participant

                  Great that Lynn is responding so well to "Z".It truly is a miracle drug for us.Pray it works forever. Will start my 10TH month on it next week.Can live with the side effects which vary from patient to patient. Even then it varies thruout useage.  All the best.  Al

                    NYKaren
                    Participant

                      Great news.  I'm so glad that Lynn is doing so well on zelobraf.  I have wished many times that I were Braf+!  

                      Keep up the great response, Lynn!

                      take care,

                      karen

                      NYKaren
                      Participant

                        Great news.  I'm so glad that Lynn is doing so well on zelobraf.  I have wished many times that I were Braf+!  

                        Keep up the great response, Lynn!

                        take care,

                        karen

                        NYKaren
                        Participant

                          Great news.  I'm so glad that Lynn is doing so well on zelobraf.  I have wished many times that I were Braf+!  

                          Keep up the great response, Lynn!

                          take care,

                          karen

                        aldakota22
                        Participant

                          Great that Lynn is responding so well to "Z".It truly is a miracle drug for us.Pray it works forever. Will start my 10TH month on it next week.Can live with the side effects which vary from patient to patient. Even then it varies thruout useage.  All the best.  Al

                          Richard_K
                          Participant

                            Great news, thanks for sharing.

                            Dick

                            Richard_K
                            Participant

                              Great news, thanks for sharing.

                              Dick

                              Richard_K
                              Participant

                                Great news, thanks for sharing.

                                Dick

                                H555
                                Participant

                                  i'm glad to hear of Lynn's positive progress. I'm at month 4 and doing better each month. i had significant improvement during the 1st 2 months, with mild rash and wart problems, some nausea, some foot pain but so far this stuff is miraculous. God's blessings for continued progress. Ron

                                  H555
                                  Participant

                                    i'm glad to hear of Lynn's positive progress. I'm at month 4 and doing better each month. i had significant improvement during the 1st 2 months, with mild rash and wart problems, some nausea, some foot pain but so far this stuff is miraculous. God's blessings for continued progress. Ron

                                    H555
                                    Participant

                                      i'm glad to hear of Lynn's positive progress. I'm at month 4 and doing better each month. i had significant improvement during the 1st 2 months, with mild rash and wart problems, some nausea, some foot pain but so far this stuff is miraculous. God's blessings for continued progress. Ron

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