we just got out of the hospital….

Forums General Melanoma Community we just got out of the hospital….

  • Post
    Snickers60
    Participant

      As some of you know Wayne has had a terrible trial on ZELBORAF.    HIGH FEVERS, SHIVERS, BLOOD RED FACE, NO SUN AT ALL, couldn't sleep for fever and chills.   Well, we call MDA on Monday and they told us if it hit 101 degrees again to head to ER, and so we did.   They did a lot of test, and everything came out clean.   They took him off it for the 2 days and he started it again this morning as we were leaving the hospital.   Fever seems to be good at this writing tonight.    Cultures came back good etc.

      As some of you know Wayne has had a terrible trial on ZELBORAF.    HIGH FEVERS, SHIVERS, BLOOD RED FACE, NO SUN AT ALL, couldn't sleep for fever and chills.   Well, we call MDA on Monday and they told us if it hit 101 degrees again to head to ER, and so we did.   They did a lot of test, and everything came out clean.   They took him off it for the 2 days and he started it again this morning as we were leaving the hospital.   Fever seems to be good at this writing tonight.    Cultures came back good etc.

      BUT THE REALLY BIG NEWS IS:    they did a CAT of his chest and lungs.    We were told he had METS to both lungs.   Right and left.  GUESS WHAT….there was NO MET IN THE RIGHT LUNG evident on that CAT SCAN in the right lung.    AMEN !!!!!!!!!!!   We are praying this was just a FALSE POSITIVE from the PET !   Oh what wonderful news that is and would be if it holds true.

      Even on x-ray – one on the left lung, but NONE on the right !     I'm taking that in BLIND FAITH.   Doc said even the right lung tumor was very small…early on on the game.

      The Doc here wanted to cut his meds in half and the big guy at MDA (D'BOSS) said NO !   Full steam ahead with a full dose.   On the scan you could see where the tumor in the left lung had already shrunk in the CAT BEFORE AND AFTER PICS in only 2 short weeks.  

      We're encouraged though it's been a very, very hard week.   Remember I am disabled with Lupus and Fibro and a hundred other things and Wayne is my caretaker.   Don't know exactly how this is going to work, but I know the one who does.   MY LORD JESUS and we TRUST HIM !

      Hope you guys have had GOOD DAYS and BETTER HEALTH !

      Nancy (devoted wife of Warrior Wayne)

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    • Replies
        BrianP
        Participant

          That sounds like great news.  I'll be praying for you and Wayne that he tolerates the medication and the good scans keep coming.

          Brian

          BrianP
          Participant

            That sounds like great news.  I'll be praying for you and Wayne that he tolerates the medication and the good scans keep coming.

            Brian

            BrianP
            Participant

              That sounds like great news.  I'll be praying for you and Wayne that he tolerates the medication and the good scans keep coming.

              Brian

              aldakota22
              Participant

                After all Wayne is going through happy to see it is all worth it.Till he gets to NED  you will be in my prayers. All the best.  Al 

                aldakota22
                Participant

                  After all Wayne is going through happy to see it is all worth it.Till he gets to NED  you will be in my prayers. All the best.  Al 

                  aldakota22
                  Participant

                    After all Wayne is going through happy to see it is all worth it.Till he gets to NED  you will be in my prayers. All the best.  Al 

                Viewing 5 reply threads
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