to take interfuron or not

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  • Post
    • April 23, 2012 at 11:09 pm
    Jbrooks
    Participant

      So much information should I or should I not…

      So much information should I or should I not… I am so confused, I have doctors saying well that is all there is and I should try and there are those who have done it and the melanoma comes back so strong they regret doing it.  I also have a blood clotting disorder that will be effected and that makes me worry.  I would love to hear from those who have done the treatment and those who have not done it and why.  I so do not want to regrett my decision but worry that either way  may be the wrong way to go.  I am 41 my melanoma was 2.1 in depth and one out of the two sentinal nodes had .25 tumor in the outside of the node.  They went back and took the area around the nodes and did not take all the nodes do to the fact of my clotting issue and not being able to have the swelling that may occur with the clotting issue that I have.  I don't know if any of that info makes a difference but that is what I was told.  My melanoma was contained and nonabrupted as well as nonmigrating good I guess, never thought I would say good and cancer at the same time,.

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    • Replies
        • April 24, 2012 at 11:28 pm
        scots
        Participant
          I can tell you everyone is different. I ‘m 43, was 41 when I started interferon. I completed a full year. It was not easy. Fatigue was the worst. I sleep a lot. Other working my wife took care of everything else. You can always decide to stop at any time if it gets to difficult. My do tor even adjusted the doses to make it more tolerable. I did work the entire time but I have a job where I’ m not on my feet all day which helped. I detailed my year of interferon in my profile. I’m currently NED. For me it was the right choice, I had to do something. I would be glad to answer any questions about my experience. I’ m sure you will get opinions from both sides. Search the post for interferon, it has been talked about a lot.

          Scot

          • April 24, 2012 at 11:28 pm
          scots
          Participant
            I can tell you everyone is different. I ‘m 43, was 41 when I started interferon. I completed a full year. It was not easy. Fatigue was the worst. I sleep a lot. Other working my wife took care of everything else. You can always decide to stop at any time if it gets to difficult. My do tor even adjusted the doses to make it more tolerable. I did work the entire time but I have a job where I’ m not on my feet all day which helped. I detailed my year of interferon in my profile. I’m currently NED. For me it was the right choice, I had to do something. I would be glad to answer any questions about my experience. I’ m sure you will get opinions from both sides. Search the post for interferon, it has been talked about a lot.

            Scot

            • April 24, 2012 at 11:28 pm
            scots
            Participant
              I can tell you everyone is different. I ‘m 43, was 41 when I started interferon. I completed a full year. It was not easy. Fatigue was the worst. I sleep a lot. Other working my wife took care of everything else. You can always decide to stop at any time if it gets to difficult. My do tor even adjusted the doses to make it more tolerable. I did work the entire time but I have a job where I’ m not on my feet all day which helped. I detailed my year of interferon in my profile. I’m currently NED. For me it was the right choice, I had to do something. I would be glad to answer any questions about my experience. I’ m sure you will get opinions from both sides. Search the post for interferon, it has been talked about a lot.

              Scot

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