What to do?

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  • Post
    • March 31, 2012 at 3:10 am
    deardad
    Participant

      Thanks for everyone's input so far regarding my dad's treatment. I feel quite powerless at the moment. There are very few trials here in Australia at the moment. The only option is continue on BRAF while some tumors are stable others slight increase and add the MEK to it. We meet his oncologist on the 11 of April to discuss a plan.

      Thanks for everyone's input so far regarding my dad's treatment. I feel quite powerless at the moment. There are very few trials here in Australia at the moment. The only option is continue on BRAF while some tumors are stable others slight increase and add the MEK to it. We meet his oncologist on the 11 of April to discuss a plan.

      Can I ask why we would remove the three/4 subs in and perhaps SRS surgery on liver tumors which are stable. The one in the spleen could perhaps be removed too or spleen removed? I know that must sound really crazy and I know it won't eliminate the disease but surely it will give my dad more time. What are you're thoughts.

      There may be an E7080 trial in Sydney and we are Melbourne and BEZ235 plus MEK162 inhibitor trial in Melbourne.

      How poor is that selection? 

      Sorry feel flat

      Nahmi

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    • Replies
        • March 31, 2012 at 4:40 am
        FormerCaregiver
        Participant

          Nahmi, I think that continuing on the BRAF inhibitor and adding MEK to it is a reasonable option at the moment. I also feel it would be an idea to consult a surgical oncologist regarding the liver mets. It is possible that surgery might be viable.

          The fact that some tumours are stable is encouraging. However, as there are very limited number of clinical trials available here I think that Yervoy should not be ruled out.

          Take care

          Frank from Australia

            • March 31, 2012 at 4:58 am
            deardad
            Participant

              Hi Frank,

              Thanks I'll do that. I just sent an email to the oncologist and asked about a few trials and surgery. Will let you know what the reply is. Thanks

              Nahmi

              • March 31, 2012 at 4:58 am
              deardad
              Participant

                Hi Frank,

                Thanks I'll do that. I just sent an email to the oncologist and asked about a few trials and surgery. Will let you know what the reply is. Thanks

                Nahmi

                • March 31, 2012 at 4:58 am
                deardad
                Participant

                  Hi Frank,

                  Thanks I'll do that. I just sent an email to the oncologist and asked about a few trials and surgery. Will let you know what the reply is. Thanks

                  Nahmi

                • March 31, 2012 at 4:40 am
                FormerCaregiver
                Participant

                  Nahmi, I think that continuing on the BRAF inhibitor and adding MEK to it is a reasonable option at the moment. I also feel it would be an idea to consult a surgical oncologist regarding the liver mets. It is possible that surgery might be viable.

                  The fact that some tumours are stable is encouraging. However, as there are very limited number of clinical trials available here I think that Yervoy should not be ruled out.

                  Take care

                  Frank from Australia

                  • March 31, 2012 at 4:40 am
                  FormerCaregiver
                  Participant

                    Nahmi, I think that continuing on the BRAF inhibitor and adding MEK to it is a reasonable option at the moment. I also feel it would be an idea to consult a surgical oncologist regarding the liver mets. It is possible that surgery might be viable.

                    The fact that some tumours are stable is encouraging. However, as there are very limited number of clinical trials available here I think that Yervoy should not be ruled out.

                    Take care

                    Frank from Australia

                    • April 3, 2012 at 7:27 am
                    James from Sydney
                    Participant

                      Hi Nahmi, i think there maybe a PD-1 Trial accruing at Westmead and Newcastle, my email is jeconomi@bigpond.net.au i will have more details tomorrow so send me your email and i will forward you the contact.

                       

                      best wishes

                      James

                      • April 3, 2012 at 7:27 am
                      James from Sydney
                      Participant

                        Hi Nahmi, i think there maybe a PD-1 Trial accruing at Westmead and Newcastle, my email is jeconomi@bigpond.net.au i will have more details tomorrow so send me your email and i will forward you the contact.

                         

                        best wishes

                        James

                        • April 3, 2012 at 7:27 am
                        James from Sydney
                        Participant

                          Hi Nahmi, i think there maybe a PD-1 Trial accruing at Westmead and Newcastle, my email is jeconomi@bigpond.net.au i will have more details tomorrow so send me your email and i will forward you the contact.

                           

                          best wishes

                          James

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