My scans are fine, blood work fine…had my treatment…here is the skinny I will share…
Saw Dr Weber and he thinks my rash/hives on my hands and soft parts of my feet of
probably side effects from Anti-PD-1. It has been there since mid December.
He says I am doing fantastic and would hate for me to stop…I told him I
can live with it…but so far my hands and feet have NOT gotten worse since
my infusion today, so I am hoping it is NOT related!
….in my trial it is required to be NED ( no evidence of disease)
which could be by chemotherapy, surgery or immunotherapy or radiation.
Some who enter the trial start right out of surgery and such, so their NED
is somewhat questionable, if you know what I mean. Anyways, 29 people
are/were enrolled. 2 progressed and died of brain mets.
1 progressed and was put on another immunotherapy and is again NED. 1
progressed ( and this is the kicker….he now experienced spontaneous
REGRESSION of his melanoma! 25 remain stable and NED.
This is week 72 of my Anti-PD-1/vaccine trial (MDX 1106)
Fantastic news – very happy for you! I love Dr. Weber – I live on the west coast and was in a trial with him at USC in LA and followed him to Tampa for a resected Ipi trial. Still see him once a year .
Fantastic news – very happy for you! I love Dr. Weber – I live on the west coast and was in a trial with him at USC in LA and followed him to Tampa for a resected Ipi trial. Still see him once a year .
Fantastic news – very happy for you! I love Dr. Weber – I live on the west coast and was in a trial with him at USC in LA and followed him to Tampa for a resected Ipi trial. Still see him once a year .
Happy for the good news.Keep the good reports comming always. Bless you. Al
Viewing 8 reply threads
You must be logged in to reply to this topic.
About the MRF Patient Forum
The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.
The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.
.
.
