Alternative treatments

› Forums › General Melanoma Community › Alternative treatments

  • Post
    • February 24, 2012 at 5:43 am
    Danielle S.
    Participant

      My Mom is stage 4 with mets. She did IL2, Yervoy and in January completed morab004 study but nothing helped. She does not want to do chemo, late last year she did do radiation on the primary tumor (on her upper arm) as it was getting quite large but says she doesn't want to do it again. The doctors say there is only one other option, which includes high doses of chemo, so I am searching for alternative treatments. Any information would be appreciated.

      My Mom is stage 4 with mets. She did IL2, Yervoy and in January completed morab004 study but nothing helped. She does not want to do chemo, late last year she did do radiation on the primary tumor (on her upper arm) as it was getting quite large but says she doesn't want to do it again. The doctors say there is only one other option, which includes high doses of chemo, so I am searching for alternative treatments. Any information would be appreciated.

    Viewing 8 reply threads
    • Replies
        • February 24, 2012 at 12:48 pm
        jim Breitfeller
        Participant

          We need more information on your Mom. Has she had her tumors evaluated for mutations (Braf, CKit, Nras, etc.)? What is her HLA type?  Without that information, we would be throwing darts.

           

          Jimmy B

          • February 24, 2012 at 12:48 pm
          jim Breitfeller
          Participant

            We need more information on your Mom. Has she had her tumors evaluated for mutations (Braf, CKit, Nras, etc.)? What is her HLA type?  Without that information, we would be throwing darts.

             

            Jimmy B

              • February 24, 2012 at 12:52 pm
              davidfromsingapore
              Participant

                If she is BRAF + – give Zelboraf a try.  

                 

                David

                • February 24, 2012 at 12:52 pm
                davidfromsingapore
                Participant

                  If she is BRAF + – give Zelboraf a try.  

                   

                  David

                  • February 24, 2012 at 1:31 pm
                  jim Breitfeller
                  Participant

                    David,

                    I would suggest doing Zelboraf with a MEK or PI3K inhibitor if possible. If you do Zelboraf alone, she may become resistant over time.

                     

                    Jimmy B

                    • February 24, 2012 at 1:31 pm
                    jim Breitfeller
                    Participant

                      David,

                      I would suggest doing Zelboraf with a MEK or PI3K inhibitor if possible. If you do Zelboraf alone, she may become resistant over time.

                       

                      Jimmy B

                      • February 24, 2012 at 1:31 pm
                      jim Breitfeller
                      Participant

                        David,

                        I would suggest doing Zelboraf with a MEK or PI3K inhibitor if possible. If you do Zelboraf alone, she may become resistant over time.

                         

                        Jimmy B

                        • February 24, 2012 at 12:52 pm
                        davidfromsingapore
                        Participant

                          If she is BRAF + – give Zelboraf a try.  

                           

                          David

                        • February 24, 2012 at 12:48 pm
                        jim Breitfeller
                        Participant

                          We need more information on your Mom. Has she had her tumors evaluated for mutations (Braf, CKit, Nras, etc.)? What is her HLA type?  Without that information, we would be throwing darts.

                           

                          Jimmy B

                          • February 25, 2012 at 4:16 am
                          Carole K
                          Participant

                            Hi David,

                            I frequented MPIP from 1999 until around 2008.  Sadly, I don't come here very often but am making an effort to do so.  Life just caught up with me..

                            I was dx in 95 as a stage II with an ulcerated mole on my back and progressed to stage IV in Feb 2000 with lung mets.  knowing the prognosis and in the middle of divorce I was not willing to have my lung removed and undergo wicked treatments.. Just wasn't for me.  I saw an east/west doctor in NY who trained at Sloane Kettering.  I saw him for about eight months and did well , no growth of the lessions.  He recommended I see a doctor at NYu who is now my oncologist. 

                            Thankfully, Dr. Chachoua , the man in my life ordered a CT of the brain despite my assuring him there was matter up there.  When the results came back there was a spot on my brain..  I was stunned and an MRI confirmed the dx.. I decided to do Gamma Knife to discover my tumor burst and bled which required a craniotomy.  The treatment options were not what I wanted to do. I knew too much, had just been divorced two months and my daughters had gone through hell.

                            I am a stong believer in Faith and for the first time listened to my gut.  I had met three different people who told me about Iscadore ( mistleto) treatment.  I saw an anthroposophical doctor, who prescribed my cocktail…. two injections daily three times a week of Iscador, for the cancer,  Astralagu for the immune systerm and Formica for overall well being.

                            That was 11 years and 1 month ago after surgery for Brain Met.  I am doing well, living life and loving it.  I built a house , saw both of my daughters get married and Just blessed with my third grandchild.  Blessings are many. 

                            This may not be for your Mom but just wanted to tell you about another option..  Side affects were minimal, just occassional redness at the injection sight.  If I can be of any help just let me know.

                            Hang in there.

                            Love and Light

                            Carole

                            • February 25, 2012 at 4:16 am
                            Carole K
                            Participant

                              Hi David,

                              I frequented MPIP from 1999 until around 2008.  Sadly, I don't come here very often but am making an effort to do so.  Life just caught up with me..

                              I was dx in 95 as a stage II with an ulcerated mole on my back and progressed to stage IV in Feb 2000 with lung mets.  knowing the prognosis and in the middle of divorce I was not willing to have my lung removed and undergo wicked treatments.. Just wasn't for me.  I saw an east/west doctor in NY who trained at Sloane Kettering.  I saw him for about eight months and did well , no growth of the lessions.  He recommended I see a doctor at NYu who is now my oncologist. 

                              Thankfully, Dr. Chachoua , the man in my life ordered a CT of the brain despite my assuring him there was matter up there.  When the results came back there was a spot on my brain..  I was stunned and an MRI confirmed the dx.. I decided to do Gamma Knife to discover my tumor burst and bled which required a craniotomy.  The treatment options were not what I wanted to do. I knew too much, had just been divorced two months and my daughters had gone through hell.

                              I am a stong believer in Faith and for the first time listened to my gut.  I had met three different people who told me about Iscadore ( mistleto) treatment.  I saw an anthroposophical doctor, who prescribed my cocktail…. two injections daily three times a week of Iscador, for the cancer,  Astralagu for the immune systerm and Formica for overall well being.

                              That was 11 years and 1 month ago after surgery for Brain Met.  I am doing well, living life and loving it.  I built a house , saw both of my daughters get married and Just blessed with my third grandchild.  Blessings are many. 

                              This may not be for your Mom but just wanted to tell you about another option..  Side affects were minimal, just occassional redness at the injection sight.  If I can be of any help just let me know.

                              Hang in there.

                              Love and Light

                              Carole

                              • February 25, 2012 at 4:16 am
                              Carole K
                              Participant

                                Hi David,

                                I frequented MPIP from 1999 until around 2008.  Sadly, I don't come here very often but am making an effort to do so.  Life just caught up with me..

                                I was dx in 95 as a stage II with an ulcerated mole on my back and progressed to stage IV in Feb 2000 with lung mets.  knowing the prognosis and in the middle of divorce I was not willing to have my lung removed and undergo wicked treatments.. Just wasn't for me.  I saw an east/west doctor in NY who trained at Sloane Kettering.  I saw him for about eight months and did well , no growth of the lessions.  He recommended I see a doctor at NYu who is now my oncologist. 

                                Thankfully, Dr. Chachoua , the man in my life ordered a CT of the brain despite my assuring him there was matter up there.  When the results came back there was a spot on my brain..  I was stunned and an MRI confirmed the dx.. I decided to do Gamma Knife to discover my tumor burst and bled which required a craniotomy.  The treatment options were not what I wanted to do. I knew too much, had just been divorced two months and my daughters had gone through hell.

                                I am a stong believer in Faith and for the first time listened to my gut.  I had met three different people who told me about Iscadore ( mistleto) treatment.  I saw an anthroposophical doctor, who prescribed my cocktail…. two injections daily three times a week of Iscador, for the cancer,  Astralagu for the immune systerm and Formica for overall well being.

                                That was 11 years and 1 month ago after surgery for Brain Met.  I am doing well, living life and loving it.  I built a house , saw both of my daughters get married and Just blessed with my third grandchild.  Blessings are many. 

                                This may not be for your Mom but just wanted to tell you about another option..  Side affects were minimal, just occassional redness at the injection sight.  If I can be of any help just let me know.

                                Hang in there.

                                Love and Light

                                Carole

                                • February 25, 2012 at 5:31 pm
                                Gene_S
                                Participant

                                  In all of the hundreds of hours that I have spent researching a cure for my melanoma I can't recall anyone benefiting from doing chemo for melanoma. Personally, I would seek another doctor/opinion.  Do a search on "Ralph Moss and melanoma" for some more alternative info. 

                                  Best Wishes,

                                  Gene

                                  • February 25, 2012 at 5:31 pm
                                  Gene_S
                                  Participant

                                    In all of the hundreds of hours that I have spent researching a cure for my melanoma I can't recall anyone benefiting from doing chemo for melanoma. Personally, I would seek another doctor/opinion.  Do a search on "Ralph Moss and melanoma" for some more alternative info. 

                                    Best Wishes,

                                    Gene

                                      • February 27, 2012 at 8:17 pm
                                      boot2aboot
                                      Participant

                                        Carole! Awsome! gives me hope!

                                        chemo for mel sucks…that was the first treatment i got and what a waste of time and health…dicarbazine, cisplatin, carboplatin all at once…did nothing but make the tumors grow…targeted therapies is the way to go, that or older anti Pd1 trials…

                                        boots

                                        • February 27, 2012 at 8:17 pm
                                        boot2aboot
                                        Participant

                                          Carole! Awsome! gives me hope!

                                          chemo for mel sucks…that was the first treatment i got and what a waste of time and health…dicarbazine, cisplatin, carboplatin all at once…did nothing but make the tumors grow…targeted therapies is the way to go, that or older anti Pd1 trials…

                                          boots

                                          • February 27, 2012 at 8:17 pm
                                          boot2aboot
                                          Participant

                                            Carole! Awsome! gives me hope!

                                            chemo for mel sucks…that was the first treatment i got and what a waste of time and health…dicarbazine, cisplatin, carboplatin all at once…did nothing but make the tumors grow…targeted therapies is the way to go, that or older anti Pd1 trials…

                                            boots

                                          • February 25, 2012 at 5:31 pm
                                          Gene_S
                                          Participant

                                            In all of the hundreds of hours that I have spent researching a cure for my melanoma I can't recall anyone benefiting from doing chemo for melanoma. Personally, I would seek another doctor/opinion.  Do a search on "Ralph Moss and melanoma" for some more alternative info. 

                                            Best Wishes,

                                            Gene

                                        Viewing 8 reply threads
                                        • You must be logged in to reply to this topic.
                                        About the MRF Patient Forum

                                        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                        Popular Topics