Three days ago, on the 8th, I completed my planned stereotactic radiation on the bigger 2 of 5 tumors in my brain, which luckily were still pretty small (largest one at about 9mm). And yesterday, the remaining treatable 3 were targeted. The doctors said all went well, everything matched up perfectly, and they feel really good about the whole thing. I was supposed to have the remaining 3 taken care of Thursday, but an hour or so before my appointment I had another seizure. It came on slowly this time, slow enough for me find Brenda, let her know, prepare, lie down, and brace my self.
Three days ago, on the 8th, I completed my planned stereotactic radiation on the bigger 2 of 5 tumors in my brain, which luckily were still pretty small (largest one at about 9mm). And yesterday, the remaining treatable 3 were targeted. The doctors said all went well, everything matched up perfectly, and they feel really good about the whole thing. I was supposed to have the remaining 3 taken care of Thursday, but an hour or so before my appointment I had another seizure. It came on slowly this time, slow enough for me find Brenda, let her know, prepare, lie down, and brace my self. In a way, the knowledgeable anticipation was pretty stressful though. Luckily it only lasted about 30 seconds this time, but I was in a slight lethargic state for a little bit after that. I woke in the ambulance and spent a couple hours at the ER to be safe. They checked my vitals/blood/electrolytes. Everything looked fine, no scans were needed because they knew what caused it and I was home in a few hours. Besides a little fatigue from the whole experience and a bit of stress from paranoia that this could happen again at anytime, I’ve been doing ok. My oncologists did up the dose of the anti-seizure medication and explained that should do the trick, some people just need a little more and reminded me that when they have confirmation that this radiation is successful as they think it will be, they’d like to have me taper off any/all medication as soon as possible. I'll be getting a follow up MRI in 2-4 weeks. And go from there.
Lastly, I have a chest/abdomen CTscan this Wednesday, to check and see if this Yervoy that I finished on Dec 20th is kicking in and making any progress on my lungs. That sure would be nice. But I've also heard that even this early, may be too early to tell. But we'll see. Other than that I'm doing ok. I have noticed what seems to be one swollen lymph node by my groin. I have been through the ringer lately and I had a pretty decent cough/cold for a few days but I feel I'm on the mend. I know on one hand a swollen node could be a bad sign of something, but then again, on the other hand, when I did IL-2, and also the adoptive cell therapy at the NIH, during the times that both those treatments were "sort-of" working, I had a few lymph nodes swell up for a little bit.. so maybe it's something trying to work? I don't know, but that's what I'm hoping for.
Thank you all for reading and being there with for support during these crazy times.
Talk to you soon.
-Kevin
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