Clean MRI!

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    deardad
    Participant

      Wow, just back from the oncologist and my dad's MRI came back clean. What a small victory for now in this aggressive battle.

      Wow, just back from the oncologist and my dad's MRI came back clean. What a small victory for now in this aggressive battle.

      6 months post craniotomy his brain is still clean…might be the Vemurafenib or just plain luck that it hasn't gone back there. Dad's oncologist is fresh back from the recent conference held in the States and he said there's a lot in the pipeline in regards to new trials. I know I learn more here than anywhere else and I'm thankful to all for that because he's pretty tight lipped about it.  Australia seems to be a little behind trial wise compared to the States.

      Anyway the update is that he wants dad to stay on this drug for as possible then if the brain stays clean add MEK to the BRAF. After that maybe ANTIPD1 will be up and running here in Melbourne and dad may be eligible. 

      Anyway just wanted to share some good news with everyone.

      Take care

      Nahmi from Melbourne

    Viewing 5 reply threads
    • Replies
        FormerCaregiver
        Participant

          Nahmi, this is truly wonderful news!  It looks like your dad is getting the right treatment at the right time!

          I agree that Australia is lagging behind the States with clinical trials. In addition, I feel that melanoma research here needs much more funding that it is currently receiving.

          Best wishes

          Frank from Australia

            deardad
            Participant

              Thanks Frank,

              Yes Im feeling more relaxed today, knowing that things are kind of under control for now. 

              Nahmi from Melbourne

              deardad
              Participant

                Thanks Frank,

                Yes Im feeling more relaxed today, knowing that things are kind of under control for now. 

                Nahmi from Melbourne

                deardad
                Participant

                  Thanks Frank,

                  Yes Im feeling more relaxed today, knowing that things are kind of under control for now. 

                  Nahmi from Melbourne

                FormerCaregiver
                Participant

                  Nahmi, this is truly wonderful news!  It looks like your dad is getting the right treatment at the right time!

                  I agree that Australia is lagging behind the States with clinical trials. In addition, I feel that melanoma research here needs much more funding that it is currently receiving.

                  Best wishes

                  Frank from Australia

                  FormerCaregiver
                  Participant

                    Nahmi, this is truly wonderful news!  It looks like your dad is getting the right treatment at the right time!

                    I agree that Australia is lagging behind the States with clinical trials. In addition, I feel that melanoma research here needs much more funding that it is currently receiving.

                    Best wishes

                    Frank from Australia

                    Richard_K
                    Participant
                      Nahmi
                      Great news, thanks for sharing.
                      Dick
                        Laurie from maine
                        Participant

                          wonderful news, that is great!  you must be thrilled, hows your dad feeling?

                          thanks for posting

                          laurie from maine

                          Laurie from maine
                          Participant

                            wonderful news, that is great!  you must be thrilled, hows your dad feeling?

                            thanks for posting

                            laurie from maine

                            Laurie from maine
                            Participant

                              wonderful news, that is great!  you must be thrilled, hows your dad feeling?

                              thanks for posting

                              laurie from maine

                              Laurie from maine
                              Participant

                                wonderful news, that is great!  you must be thrilled, hows your dad feeling?

                                thanks for posting

                                laurie from maine

                                Laurie from maine
                                Participant

                                  wonderful news, that is great!  you must be thrilled, hows your dad feeling?

                                  thanks for posting

                                  laurie from maine

                                  Laurie from maine
                                  Participant

                                    wonderful news, that is great!  you must be thrilled, hows your dad feeling?

                                    thanks for posting

                                    laurie from maine

                                    Laurie from maine
                                    Participant

                                      wonderful news, that is great!  you must be thrilled, hows your dad feeling?

                                      thanks for posting

                                      laurie from maine 

                                      deardad
                                      Participant

                                        Hi Laurie,

                                        Dad's feeling relieved. The only concern he voiced at the appointment was the fact that he was loosing his hair. I had to interrupt him from going on about his hair so that I could ask about trials and treatments because I see the oncologist was trying to wrap things up.

                                        Poor dad I suppose that's his way of copying with all the stress. Because at this point he remains a-symptomatic, the visual effects of his treatment are a constant reminder that he sick. 

                                        But HELLO things could be so much worse, so he can go on about his hair as long as the MM stays at bay.

                                        Love to all and take care

                                        Nahmi from Melbourne

                                        deardad
                                        Participant

                                          Hi Laurie,

                                          Dad's feeling relieved. The only concern he voiced at the appointment was the fact that he was loosing his hair. I had to interrupt him from going on about his hair so that I could ask about trials and treatments because I see the oncologist was trying to wrap things up.

                                          Poor dad I suppose that's his way of copying with all the stress. Because at this point he remains a-symptomatic, the visual effects of his treatment are a constant reminder that he sick. 

                                          But HELLO things could be so much worse, so he can go on about his hair as long as the MM stays at bay.

                                          Love to all and take care

                                          Nahmi from Melbourne

                                          deardad
                                          Participant

                                            Hi Laurie,

                                            Dad's feeling relieved. The only concern he voiced at the appointment was the fact that he was loosing his hair. I had to interrupt him from going on about his hair so that I could ask about trials and treatments because I see the oncologist was trying to wrap things up.

                                            Poor dad I suppose that's his way of copying with all the stress. Because at this point he remains a-symptomatic, the visual effects of his treatment are a constant reminder that he sick. 

                                            But HELLO things could be so much worse, so he can go on about his hair as long as the MM stays at bay.

                                            Love to all and take care

                                            Nahmi from Melbourne

                                            Laurie from maine
                                            Participant

                                              wonderful news, that is great!  you must be thrilled, hows your dad feeling?

                                              thanks for posting

                                              laurie from maine 

                                              Laurie from maine
                                              Participant

                                                wonderful news, that is great!  you must be thrilled, hows your dad feeling?

                                                thanks for posting

                                                laurie from maine 

                                              Richard_K
                                              Participant
                                                Nahmi
                                                Great news, thanks for sharing.
                                                Dick
                                                Richard_K
                                                Participant
                                                  Nahmi
                                                  Great news, thanks for sharing.
                                                  Dick
                                              Viewing 5 reply threads
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