ValinMtl –Val, how are you doing!

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  • Post
    • November 30, 2011 at 11:01 pm
    killmel
    Participant

      Hi

      Val, how are you doing!

      I am been traveling & trying to catch up on everyone. I cannot find out anything from Valin from Canada. Anyone heard from Val?

      Hoping the best for you Val.

      God Bless

      Mary

      Hi

      Val, how are you doing!

      I am been traveling & trying to catch up on everyone. I cannot find out anything from Valin from Canada. Anyone heard from Val?

      Hoping the best for you Val.

      God Bless

      Mary

    Viewing 2 reply threads
    • Replies
        • December 3, 2011 at 12:35 pm
        Vermont_Donna
        Participant

          HI,

          I did hear by email from Val on 11/20…she was waiting to hear from two places for possible treatments and hoping to get in soon…..I dont think she will mind if I pass along that she said she was in a lot of pain and that her leg was a nightmare…..she is hoping to get into the anti-pd 1 trreatment……so say alot of prayers for Val!!!!

          Thanks for asking about her….

          Vermont_Donna, stage 3a, NED

          ps I will write her again and see what the update is, if she can answer

          • December 3, 2011 at 12:35 pm
          Vermont_Donna
          Participant

            HI,

            I did hear by email from Val on 11/20…she was waiting to hear from two places for possible treatments and hoping to get in soon…..I dont think she will mind if I pass along that she said she was in a lot of pain and that her leg was a nightmare…..she is hoping to get into the anti-pd 1 trreatment……so say alot of prayers for Val!!!!

            Thanks for asking about her….

            Vermont_Donna, stage 3a, NED

            ps I will write her again and see what the update is, if she can answer

            • December 3, 2011 at 12:35 pm
            Vermont_Donna
            Participant

              HI,

              I did hear by email from Val on 11/20…she was waiting to hear from two places for possible treatments and hoping to get in soon…..I dont think she will mind if I pass along that she said she was in a lot of pain and that her leg was a nightmare…..she is hoping to get into the anti-pd 1 trreatment……so say alot of prayers for Val!!!!

              Thanks for asking about her….

              Vermont_Donna, stage 3a, NED

              ps I will write her again and see what the update is, if she can answer

                • December 5, 2011 at 11:01 pm
                boot2aboot
                Participant

                  i encouraged her to try the anti-pd1 trial at moffitt…but i think it is too far for her to go…she is not doing well with that leg…til therapy just made her sick as heck…

                  boots

                  • December 5, 2011 at 11:01 pm
                  boot2aboot
                  Participant

                    i encouraged her to try the anti-pd1 trial at moffitt…but i think it is too far for her to go…she is not doing well with that leg…til therapy just made her sick as heck…

                    boots

                    • December 5, 2011 at 11:01 pm
                    boot2aboot
                    Participant

                      i encouraged her to try the anti-pd1 trial at moffitt…but i think it is too far for her to go…she is not doing well with that leg…til therapy just made her sick as heck…

                      boots

                      • December 6, 2011 at 12:39 am
                      FormerCaregiver
                      Participant

                        I think that TIL treatment was unsuitable and ineffective for Val. In a previous post, I
                        wondered if she has primary dermal melanoma. See:
                        http://www.ncbi.nlm.nih.gov/pubmed/18209168

                        If this is the case, then perhaps this is why TIL therapy didn't work? Maybe a different
                        approach such as PV-10 or imiquimod (Aldara) topical cream should have been used
                        instead?

                        She is in my thoughts and prayers.

                        Frank from Australia

                        • December 6, 2011 at 12:39 am
                        FormerCaregiver
                        Participant

                          I think that TIL treatment was unsuitable and ineffective for Val. In a previous post, I
                          wondered if she has primary dermal melanoma. See:
                          http://www.ncbi.nlm.nih.gov/pubmed/18209168

                          If this is the case, then perhaps this is why TIL therapy didn't work? Maybe a different
                          approach such as PV-10 or imiquimod (Aldara) topical cream should have been used
                          instead?

                          She is in my thoughts and prayers.

                          Frank from Australia

                          • December 6, 2011 at 12:39 am
                          FormerCaregiver
                          Participant

                            I think that TIL treatment was unsuitable and ineffective for Val. In a previous post, I
                            wondered if she has primary dermal melanoma. See:
                            http://www.ncbi.nlm.nih.gov/pubmed/18209168

                            If this is the case, then perhaps this is why TIL therapy didn't work? Maybe a different
                            approach such as PV-10 or imiquimod (Aldara) topical cream should have been used
                            instead?

                            She is in my thoughts and prayers.

                            Frank from Australia

                      Viewing 2 reply threads
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