Clean quarterly scans; no BRAF mutation

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  • Post
    • November 23, 2011 at 7:00 pm
    Rocco
    Participant

      I was blessed to have received word yesterday that my scans for this quarter were again clean.   While I am certainly happy about that, my joy was truly shadowed by sadness having learned yesterday morning that two other melanoma warriors had lost their battle, each leaving behind grieving spouses, children, family and friends.  My condolences to all those close to them.  

      I was blessed to have received word yesterday that my scans for this quarter were again clean.   While I am certainly happy about that, my joy was truly shadowed by sadness having learned yesterday morning that two other melanoma warriors had lost their battle, each leaving behind grieving spouses, children, family and friends.  My condolences to all those close to them.  

      On another note, a couple of months ago I had asked my Onc to have my tumor tested for BRAF just in case my NED status were to change in the future.  Received the results yesterday that I do not have the BRAF mutation. 

      Rocco, Stage IV since 2005

    Viewing 11 reply threads
    • Replies
        • November 23, 2011 at 8:13 pm
        Lisa13
        Participant

          Congrats Rocco!  Arn't you an ipi responder which is why you're now NED??

          • November 23, 2011 at 8:13 pm
          Lisa13
          Participant

            Congrats Rocco!  Arn't you an ipi responder which is why you're now NED??

            • November 23, 2011 at 8:13 pm
            Lisa13
            Participant

              Congrats Rocco!  Arn't you an ipi responder which is why you're now NED??

              • November 23, 2011 at 10:36 pm
              MariaH
              Participant

                Congrats on the scans Rocco!

                I agree though, sometimes good news can be overshadowed by another's passing.  We just learned that a fellow warrior who did IL-2 with my husband passed as well.  His spread to the brain very quickly.  It was such a shock, and he was such a nice guy.  His wife Linda is just a sweetheart.

                Hopefully, you will have no need for another treatment, and you can continue the fight – always remembering those who have lost.

                • November 23, 2011 at 10:36 pm
                MariaH
                Participant

                  Congrats on the scans Rocco!

                  I agree though, sometimes good news can be overshadowed by another's passing.  We just learned that a fellow warrior who did IL-2 with my husband passed as well.  His spread to the brain very quickly.  It was such a shock, and he was such a nice guy.  His wife Linda is just a sweetheart.

                  Hopefully, you will have no need for another treatment, and you can continue the fight – always remembering those who have lost.

                  • November 23, 2011 at 10:36 pm
                  MariaH
                  Participant

                    Congrats on the scans Rocco!

                    I agree though, sometimes good news can be overshadowed by another's passing.  We just learned that a fellow warrior who did IL-2 with my husband passed as well.  His spread to the brain very quickly.  It was such a shock, and he was such a nice guy.  His wife Linda is just a sweetheart.

                    Hopefully, you will have no need for another treatment, and you can continue the fight – always remembering those who have lost.

                    • November 24, 2011 at 12:22 pm
                    James from Sydney
                    Participant

                      great news Rocco, have a look at P-REX1 a post on the previous page. It works downline from BRAF and may help those without BRAF Mutation. Hopefully they can develop a drug that can block its pathway.

                      best wishes

                      James

                      • November 24, 2011 at 12:22 pm
                      James from Sydney
                      Participant

                        great news Rocco, have a look at P-REX1 a post on the previous page. It works downline from BRAF and may help those without BRAF Mutation. Hopefully they can develop a drug that can block its pathway.

                        best wishes

                        James

                          • November 25, 2011 at 1:11 pm
                          Vermont_Donna
                          Participant

                            Hi Rocco,

                            So happy to hear this GREAT news! I also do not have the BRAF mutation. This is good information for you to have I was supposed to have a previous melanoma tumor analysed for the HLAA but no-one seems to be able to find those results. Guess I will ask again. Its good to have plan B, C, etc for down the road.

                            Hugs,

                            Vermont_Donna, stage 3a, NED

                            • November 25, 2011 at 1:11 pm
                            Vermont_Donna
                            Participant

                              Hi Rocco,

                              So happy to hear this GREAT news! I also do not have the BRAF mutation. This is good information for you to have I was supposed to have a previous melanoma tumor analysed for the HLAA but no-one seems to be able to find those results. Guess I will ask again. Its good to have plan B, C, etc for down the road.

                              Hugs,

                              Vermont_Donna, stage 3a, NED

                              • November 25, 2011 at 1:11 pm
                              Vermont_Donna
                              Participant

                                Hi Rocco,

                                So happy to hear this GREAT news! I also do not have the BRAF mutation. This is good information for you to have I was supposed to have a previous melanoma tumor analysed for the HLAA but no-one seems to be able to find those results. Guess I will ask again. Its good to have plan B, C, etc for down the road.

                                Hugs,

                                Vermont_Donna, stage 3a, NED

                              • November 24, 2011 at 12:22 pm
                              James from Sydney
                              Participant

                                great news Rocco, have a look at P-REX1 a post on the previous page. It works downline from BRAF and may help those without BRAF Mutation. Hopefully they can develop a drug that can block its pathway.

                                best wishes

                                James

                                • November 25, 2011 at 6:51 pm
                                LynnLuc
                                Participant

                                  This is great news Rocco. Plan B's and C's will change as the new immunotherapy trials continue..B-raf is just one and in itself isn't the answer for most folks.

                                  • November 25, 2011 at 6:51 pm
                                  LynnLuc
                                  Participant

                                    This is great news Rocco. Plan B's and C's will change as the new immunotherapy trials continue..B-raf is just one and in itself isn't the answer for most folks.

                                    • November 25, 2011 at 6:51 pm
                                    LynnLuc
                                    Participant

                                      This is great news Rocco. Plan B's and C's will change as the new immunotherapy trials continue..B-raf is just one and in itself isn't the answer for most folks.

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