Just an update

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  • Post
    • September 17, 2011 at 8:12 am
    LynnLuc
    Participant

      My Friend  Linda S ( Magnolia Springs) was put on the sister trial that I am on for melanoma that couldn't be resected ( mine was for NED pateints)…she has completed 2 twelve weeks of the anti PD 1 and peptides and has shown 30% reduction in her multiple melanomas, and no progression. Some melanomas are gone. She now begins the booster IV's of anti PD 1 every 3 months. She is the one in my picture with the shortest hair…although she now has much more hair!! Yes its awesome news!!

      My Friend  Linda S ( Magnolia Springs) was put on the sister trial that I am on for melanoma that couldn't be resected ( mine was for NED pateints)…she has completed 2 twelve weeks of the anti PD 1 and peptides and has shown 30% reduction in her multiple melanomas, and no progression. Some melanomas are gone. She now begins the booster IV's of anti PD 1 every 3 months. She is the one in my picture with the shortest hair…although she now has much more hair!! Yes its awesome news!!

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    • Replies
        • September 17, 2011 at 1:48 pm
        DebbieH
        Participant

          This is wonderful news and it's nice to see the happy picture of you two!  May her shrinkage continue until it's gone forever.

          DebbieH

          • September 17, 2011 at 1:48 pm
          DebbieH
          Participant

            This is wonderful news and it's nice to see the happy picture of you two!  May her shrinkage continue until it's gone forever.

            DebbieH

            • September 17, 2011 at 11:55 pm
            killmel
            Participant

              Hi Lynn,

               

              Great news about your friend. Do you know if that sisiter trial is still recruiting with DR. Weber?

              http://clinicaltrials.gov/ct2/show/NCT01176461

               

              Thanks for your repy.

              Barb

               

              • September 17, 2011 at 11:55 pm
              killmel
              Participant

                Hi Lynn,

                 

                Great news about your friend. Do you know if that sisiter trial is still recruiting with DR. Weber?

                http://clinicaltrials.gov/ct2/show/NCT01176461

                 

                Thanks for your repy.

                Barb

                 

                  • September 18, 2011 at 12:50 am
                  LynnLuc
                  Participant

                    hi Barb, I believe it is still accepting patients…you could write dr Weber directly and ask =:o) and he always writes back himself jeffrey.weber@moffitt.org  . He is in China doing a seminar or something this week, but he responded to me yesterday. You could also e mail one of his nurses- hummm Jennifer.Diehl@moffitt.org she could tell you as well!! I believe it's a great trial!- Lynn

                    • September 18, 2011 at 12:50 am
                    LynnLuc
                    Participant

                      hi Barb, I believe it is still accepting patients…you could write dr Weber directly and ask =:o) and he always writes back himself jeffrey.weber@moffitt.org  . He is in China doing a seminar or something this week, but he responded to me yesterday. You could also e mail one of his nurses- hummm Jennifer.Diehl@moffitt.org she could tell you as well!! I believe it's a great trial!- Lynn

                      • September 18, 2011 at 12:51 am
                      LynnLuc
                      Participant

                        hi Barb, I believe it is still accepting patients…you could write dr Weber directly and ask =:o) and he always writes back himself jeffrey.weber@moffitt.org  . He is in China doing a seminar or something this week, but he responded to me yesterday. You could also e mail one of his nurses- hummm Jennifer.Diehl@moffitt.org she could tell you as well!! I believe it's a great trial!- Lynn

                        • September 18, 2011 at 12:51 am
                        LynnLuc
                        Participant

                          hi Barb, I believe it is still accepting patients…you could write dr Weber directly and ask =:o) and he always writes back himself jeffrey.weber@moffitt.org  . He is in China doing a seminar or something this week, but he responded to me yesterday. You could also e mail one of his nurses- hummm Jennifer.Diehl@moffitt.org she could tell you as well!! I believe it's a great trial!- Lynn

                        • September 18, 2011 at 3:59 pm
                        dian in spokane
                        Participant

                          Lynn, great news! BOTH of you keep doing great!!!

                           

                          dian

                          • September 18, 2011 at 3:59 pm
                          dian in spokane
                          Participant

                            Lynn, great news! BOTH of you keep doing great!!!

                             

                            dian

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