Update on my experience with Yervoy

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  • Post
    • September 10, 2011 at 9:29 pm
    Lisa13
    Participant

      I'm 9 days out from my second infusion of Yervoy and havn't experienced any side effects. However, within the past couple of days, I've been feeling fatigued which is quite out of character for me. I just finished moving house and thought I was tired as a result of moving, but I find myself wanting to sleep in more in the morning and get tired in the afternoon. After reading my clinical trial notes, fatigues/tiredness is an autoimmune response, so at least something is starting to happen.

      I'm 9 days out from my second infusion of Yervoy and havn't experienced any side effects. However, within the past couple of days, I've been feeling fatigued which is quite out of character for me. I just finished moving house and thought I was tired as a result of moving, but I find myself wanting to sleep in more in the morning and get tired in the afternoon. After reading my clinical trial notes, fatigues/tiredness is an autoimmune response, so at least something is starting to happen.

      On another note, my hair is VERY dry!  I wish the very best for everyone in this battle.

      Lisa – Stage 4

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    • Replies
        • September 11, 2011 at 12:44 am
        JerryfromFauq
        Participant

          Interesting about the dry hair.  That is one thing I have noticed on my c-kit  targeted therapy as well.  Mine used to be on the greasy side and now it's very dry.

          • September 11, 2011 at 12:44 am
          JerryfromFauq
          Participant

            Interesting about the dry hair.  That is one thing I have noticed on my c-kit  targeted therapy as well.  Mine used to be on the greasy side and now it's very dry.

            • September 12, 2011 at 1:44 pm
            TracyLee
            Participant

              Lisa,

              Fatigue was my main side effect, particularly by the end of work. I often was too tired to fix dinner, schlep kids to stuff, etc after work. Would come home and rest.

              Prayers for an awesome ipi response!

              TracyLee

              • September 12, 2011 at 1:44 pm
              TracyLee
              Participant

                Lisa,

                Fatigue was my main side effect, particularly by the end of work. I often was too tired to fix dinner, schlep kids to stuff, etc after work. Would come home and rest.

                Prayers for an awesome ipi response!

                TracyLee

                  • September 12, 2011 at 5:52 pm
                  Lisa13
                  Participant

                    Hi TracyLee,

                    Fatigue is big for me – especially around this time. In the morning, I have loads of energy and then by mid afternoon, I just want to take a nap and not do anything.

                    I'm so very happy for you and your BRAF response. Just when everything seemed bad, everything changed and now you are responding very well. I hope this continues for a long time.

                    Thanks for the prayers for the ipi response. I continue to pray and wish for all the best. 

                    Lisa

                    • September 12, 2011 at 5:52 pm
                    Lisa13
                    Participant

                      Hi TracyLee,

                      Fatigue is big for me – especially around this time. In the morning, I have loads of energy and then by mid afternoon, I just want to take a nap and not do anything.

                      I'm so very happy for you and your BRAF response. Just when everything seemed bad, everything changed and now you are responding very well. I hope this continues for a long time.

                      Thanks for the prayers for the ipi response. I continue to pray and wish for all the best. 

                      Lisa

                    • September 13, 2011 at 3:08 am
                    mclaus23
                    Participant

                      Hi Lisa!

                       

                      My father is 12 days out and started feeling very fatigued this past thursday so 8 days out…he has found that he has more energy in the morning and by mid afternoon he needs a nap.

                      Fingers crossed this is a response for you, for my father and everyone else on ipi!!

                       

                      Maggie

                      • September 13, 2011 at 3:08 am
                      mclaus23
                      Participant

                        Hi Lisa!

                         

                        My father is 12 days out and started feeling very fatigued this past thursday so 8 days out…he has found that he has more energy in the morning and by mid afternoon he needs a nap.

                        Fingers crossed this is a response for you, for my father and everyone else on ipi!!

                         

                        Maggie

                        • September 13, 2011 at 7:11 pm
                        JerryfromFauq
                        Participant

                          Rest is a important factor.  Fatique works on our minds because we cannot do all wwe used to or all that we want/need to.  Do NOT be "TO STRONG" to ask for the help you need in getting things done.  Tell friends, church members,, etc of specific things that will help you get the needed things done.  Some one to babysit when you need a nap, some o ne to help sometimes prepare meals.  Peolpe don't know ht you need and many are afraid that you will feel they are butting in to do things.  Tell others what will help.

                          • September 13, 2011 at 7:11 pm
                          JerryfromFauq
                          Participant

                            Rest is a important factor.  Fatique works on our minds because we cannot do all wwe used to or all that we want/need to.  Do NOT be "TO STRONG" to ask for the help you need in getting things done.  Tell friends, church members,, etc of specific things that will help you get the needed things done.  Some one to babysit when you need a nap, some o ne to help sometimes prepare meals.  Peolpe don't know ht you need and many are afraid that you will feel they are butting in to do things.  Tell others what will help.

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