Good scans!

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  • Post
    • June 9, 2011 at 10:05 am
    Rocco
    Participant

      Scan results yesterday.  CT of chest/adb/pelvis and brain MRI both clean!  Scanxiety was pretty bad this time around, so greatly appreciated everyone's kind thoughts, good vibes and prayers.   Will be scanned again late August. 

      Scan results yesterday.  CT of chest/adb/pelvis and brain MRI both clean!  Scanxiety was pretty bad this time around, so greatly appreciated everyone's kind thoughts, good vibes and prayers.   Will be scanned again late August. 

      Was told in order to stay on the Compassionate Use Trial protocol (10MG/KG) that I would need to stay on the 3 month scan schedule.  So in case I had reoccurance I would get the10MG instead of the 3MG dose.  Need to confirm with my Onc on this, as I saw a newbie (to me) Dr. yesterday…. need to weigh pros and cons of this approach.

      Also asked to resign my trial paperwork as they added 2 more "rare" potential side effects for ipi/Yervoy – since I last resigned in March!   Reviewing now and will post what those new side effects are under separate posting in case folks are interested. 

      Rocco – IV since  2005, THX2MDX / Ipi

    Viewing 17 reply threads
    • Replies
        • June 9, 2011 at 10:26 am
        shellebrownies
        Participant

          Congrats, Rocco for such great news! I am so happy for you! 

          Michelle, wife of Don, Stage IV

          • June 9, 2011 at 10:26 am
          shellebrownies
          Participant

            Congrats, Rocco for such great news! I am so happy for you! 

            Michelle, wife of Don, Stage IV

            • June 9, 2011 at 11:33 am
            Carol Taylor
            Participant

              Hallelujah, Rocco! Rock on ! Wonderfyl news…celebrate!

              Lord, in Your mercy, make it so. Amen and Amen!

              Grace and peace,

              Carol

                • June 9, 2011 at 12:42 pm
                Vermont_Donna
                Participant

                  Dear Rocco,

                  Good news on the scans! I would be interested in the "newer" side effects of Ipi (at the 10mg/kg dose, or any dose?). How long does this study go on for?? My oncologist said the 10mg/kg study that they participated in was brutal for many of their patients enrolled in the study and some of them died due to the severe side effects (and their health status may have been way more compromised to begin with, I am not sure but I think he said that). So not trying to scare you but he did say the 3mg/kg seemed to be a more manageable dose, with good results with fewer side effects. STILL he cautioned me that since we are "messing with my immune system" the side effects can still occur months or years later, so be diligent, and early reporting of any symptoms will lead to early management of them.

                  I am so happy for you!!

                  Vermont_Donna, stage 3a, now NED due to Ipi (Yervoy)

                  • June 9, 2011 at 12:42 pm
                  Vermont_Donna
                  Participant

                    Dear Rocco,

                    Good news on the scans! I would be interested in the "newer" side effects of Ipi (at the 10mg/kg dose, or any dose?). How long does this study go on for?? My oncologist said the 10mg/kg study that they participated in was brutal for many of their patients enrolled in the study and some of them died due to the severe side effects (and their health status may have been way more compromised to begin with, I am not sure but I think he said that). So not trying to scare you but he did say the 3mg/kg seemed to be a more manageable dose, with good results with fewer side effects. STILL he cautioned me that since we are "messing with my immune system" the side effects can still occur months or years later, so be diligent, and early reporting of any symptoms will lead to early management of them.

                    I am so happy for you!!

                    Vermont_Donna, stage 3a, now NED due to Ipi (Yervoy)

                  • June 9, 2011 at 11:33 am
                  Carol Taylor
                  Participant

                    Hallelujah, Rocco! Rock on ! Wonderfyl news…celebrate!

                    Lord, in Your mercy, make it so. Amen and Amen!

                    Grace and peace,

                    Carol

                    • June 9, 2011 at 1:52 pm
                    dian in spokane
                    Participant

                      Rocco!

                      I'm THRILLED to hear your news this morning. What a great way to start off the day.

                      Keep on having great successes!

                      dian in spokane

                      • June 9, 2011 at 1:52 pm
                      dian in spokane
                      Participant

                        Rocco!

                        I'm THRILLED to hear your news this morning. What a great way to start off the day.

                        Keep on having great successes!

                        dian in spokane

                        • June 9, 2011 at 2:40 pm
                        King
                        Participant

                          Great news, Rocco!  This should give others some hope.  You and your husband should celebrate big time since you both got wonderful news.

                           

                          Stay Strong
                          King

                          Stage IV 7/05  Liver mets

                          • June 9, 2011 at 2:40 pm
                          King
                          Participant

                            Great news, Rocco!  This should give others some hope.  You and your husband should celebrate big time since you both got wonderful news.

                             

                            Stay Strong
                            King

                            Stage IV 7/05  Liver mets

                            • June 9, 2011 at 3:18 pm
                            ValinMtl
                            Participant

                              Hi Rocco…doing the happy dance for you…so glad to hear this news.  Val xx stage IV, failed ipi looking for new trial.

                              • June 9, 2011 at 3:18 pm
                              ValinMtl
                              Participant

                                Hi Rocco…doing the happy dance for you…so glad to hear this news.  Val xx stage IV, failed ipi looking for new trial.

                                • June 9, 2011 at 4:58 pm
                                mom3girlsFL
                                Participant

                                  Thanks for the great update Rocco!

                                  Laurie

                                    • June 9, 2011 at 8:14 pm
                                    boot2aboot
                                    Participant

                                      Rocco,

                                      glad you picked the right dart and the researchers found the dart board…congrats…

                                      • June 9, 2011 at 8:14 pm
                                      boot2aboot
                                      Participant

                                        Rocco,

                                        glad you picked the right dart and the researchers found the dart board…congrats…

                                      • June 9, 2011 at 4:58 pm
                                      mom3girlsFL
                                      Participant

                                        Thanks for the great update Rocco!

                                        Laurie

                                        • June 9, 2011 at 9:17 pm
                                        lhaley
                                        Participant

                                          That is fantastic news!!  Hope you never have to even consider using the drug again so it won't be a thought.

                                          Linda

                                          • June 9, 2011 at 9:17 pm
                                          lhaley
                                          Participant

                                            That is fantastic news!!  Hope you never have to even consider using the drug again so it won't be a thought.

                                            Linda

                                            • June 10, 2011 at 2:46 am
                                            FormerCaregiver
                                            Participant

                                              Congratulations on your great scan results! I have just read your profile, and I encourage
                                              everyone to do the same. You have defied all the odds and given us hope and inspiration!

                                              Best wishes

                                              Frank from Australia

                                              • June 10, 2011 at 2:46 am
                                              FormerCaregiver
                                              Participant

                                                Congratulations on your great scan results! I have just read your profile, and I encourage
                                                everyone to do the same. You have defied all the odds and given us hope and inspiration!

                                                Best wishes

                                                Frank from Australia

                                                • June 10, 2011 at 5:55 pm
                                                KevinM
                                                Participant

                                                  Such awesome news Rocco!!! I was thrilled to read your post! Seems like we are on a bit of a winning streak around Boston these days….Bruins, Red Sox and now you!!!

                                                  Congrats…keep kickin butt!

                                                  Kevin

                                                  • June 10, 2011 at 5:55 pm
                                                  KevinM
                                                  Participant

                                                    Such awesome news Rocco!!! I was thrilled to read your post! Seems like we are on a bit of a winning streak around Boston these days….Bruins, Red Sox and now you!!!

                                                    Congrats…keep kickin butt!

                                                    Kevin

                                                Viewing 17 reply threads
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