Melanoma research that’s just plain weird!!!

› Forums › General Melanoma Community › Melanoma research that’s just plain weird!!!

  • Post
    • August 15, 2018 at 3:59 pm
    Bubbles
    Participant

      Hey guys,

      Hope you are all having as good a day as possible in your worlds.  Don't waste your time on this post if you are in a serious mood looking for real live melanoma answers.  However, if you want a little mental puzzle and break from that, while still learning about melanoma world, these may be for you!  I think neither of these reports are particularly useful in immediate outcomes for melanoma patients, but through them it may be affirming to:

      1.  Know that melanoma research of all sorts continues.

      2.  Weirdo's like myself search it out, review and post it.

      3.  And while I don't think happiness will cure our conditions, it never hurts to smile!!!

      For what it's worth:  https://chaoticallypreciselifeloveandmelanoma.blogspot.com/2018/08/research-that-makes-you-scratch-your.html

      Wishing you all my best!  C

    Viewing 4 reply threads
    • Replies
        • August 15, 2018 at 7:49 pm
        ed williams
        Participant

          I just came across this and thought you might find it funny!!! I hope it copies properly!!! https://pdfs.semanticscholar.org/presentation/d3a1/1d470332dcf02d58d9c55c601c37eb097d03.pdf

            • August 15, 2018 at 8:06 pm
            ed williams
            Participant

              That was not what I wanted to send you, I will try again!!! It is a photo of a GIF, must be some copyright stuff!!!.

              • August 15, 2018 at 11:40 pm
              Bubbles
              Participant

                Awwwe!  I wanna see!!!  Here's the best comic I've seen re ratties!!!  (Tried to just give you the pic…but it wouldn't do!)  So here's the link (that includes the pic): 

                 https://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/01/part-2-ratties-and-hope.html  

                Love my Edster.  Listen to him guys!  He can always find the perfect vid!  Thanks for all you do! – c

                 

              • August 16, 2018 at 12:30 am
              Ridingaroundwith27Jennifers
              Participant

                Hi Celeste,

                Just want to say thank you to you and to Ed for continuing to support us all, for helping us find the answers and for continuing to be committed to everyone fighting the melanoma fight.  You both do so much good.  You deserve a little thanks now and again.

                Good wishes to you both,

                Jennifer

                 

                • August 16, 2018 at 2:24 am
                ed williams
                Participant

                  Well, I am not giving up on posting this funny little mouse photo, but for now technology is winning and I am losing! So if you close your eyes and just imagine a picture of a little mouse beside a mouse trap, now look below and there is another little mouse using the mouse trap as a home rowing machine getting exercise and eating the piece of cheese. I think that I am going to have to buy the app in order to be able to down load the GIF photo. 

                    • August 16, 2018 at 2:29 am
                    ed williams
                    Participant

                      THanks for the kind words Jennifer, just trying to do my small part to help new members find their way in this crazy melanoma world!!! 

                      • August 16, 2018 at 4:45 pm
                      Bubbles
                      Participant

                        Thanks, Jennifer.  You were sweet to say that.  I just think it takes a village.  As a team we are stronger together.  I know I have certainly found plenty of strength here.  Hang tough, ratties!!  love, c

                        • August 16, 2018 at 2:50 am
                        BillB
                        Participant

                          Hi Ed, can you do a screen capture and then post. Seems like it might work and you wouldnt have to get the app.

                          Bill

                        • August 17, 2018 at 8:47 pm
                        MelanomaMike
                        Participant

                          Hi Bubbles! why i havnt clicked on yer link connecting us to your BlogSpot site i dont have an answer but, ITS SO COOL! its like your ongoing journal! how long have you had this going? i mean in retrospect to having Melanoma? can i ask, can we post photos? iv created a few wooden plaques, one having relation to our shared desease, Melanoma, id love to share it with you, i donated the plaque to my Oncologist/infusion room..wish we could post here without creating a link, im not to computer saavy…, MRF needs to create a photo space for us here so we can share stuff, pics of our melanoma sites, misc pics etc…Mike

                            • August 17, 2018 at 9:04 pm
                            Bubbles
                            Participant

                              I think you can post pics on my blog in a comment.  However, you can also reach me via email through MRF and send me a pic so that I could make a post about it at some point.  Yes, it would be nice to be able to post pics here, but I've never been able to do that.  I started my blog in 2010 when I advanced to Stage IV melanoma (had been Stage III for 7 years before that) at first as a way to keep family and friends up to date on what was going on as I had brain mets zapped, lung mets removed and started a Phase 1 Nivo (Opdivo) trial before it was FDA approved. Since then, it's been me writing about things that enter my crazy brain and lots of melanoma research with my best interpretation of what it really means for melanoma peeps.  Glad you liked it.  celeste

                              • August 17, 2018 at 10:15 pm
                              ed williams
                              Participant

                                Be very careful Mike, after only a few visits to Bubbles site I found myself googling sewing patterns!!!

                                • August 17, 2018 at 10:59 pm
                                Bubbles
                                Participant

                                  You silly mouse!!  Made me laugh out loud!!!  Have a great weekend guys!!! c

                                  • August 18, 2018 at 7:58 pm
                                  Sharon93065
                                  Participant

                                    That was my first response, LOL!!

                                    Thank you Celeste for all your research.  You have no idea how much you have helped so many many of us.

                                    Sharon 

                                  • August 19, 2018 at 9:31 pm
                                  Jubes
                                  Participant

                                    Haha Celeste! Funny when I had to go on infliximab they sent me to a respiratory clinic to check on TB exposure. I had to take some pills for 9 months as I had possible exposure. Then they did a sleep clinic on me and I was officially needing a sepac machine!  However I declined and actually breathing better at night since I stopped having a glass of wine after work… and as far as happy I’ve always accepted whatever comes and felt fullfillled so that’s happiness isn’t it? I haven’t been on the forum for a while but think of you often. Thanks for everything! Anne-Louise 

                                      • August 20, 2018 at 12:25 am
                                      Bubbles
                                      Participant

                                        Good grief!!  That is crazy!!!  Didn't know that part of the story!!!  I think of you, too, my sister!! love, les

                                  Viewing 4 reply threads
                                  • You must be logged in to reply to this topic.
                                  About the MRF Patient Forum

                                  The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                  The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                  Popular Topics