Finally! Infusion#2

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  • Post
    • June 20, 2018 at 5:13 pm
    MelanomaMike
    Participant
      Hello MRF Family! I hope everyones doing ok & maintaining a positive attitude towards our mutual battle with this damn crap!
      So, update, combo#2 finally is flowing through these veins of mine (June 18th) , a few weeks there it was postponed, 1st one due to irregular bowel movements (saftey precaution) 2nd time was due to my ACTH level being at 1.0.
      So ya, finally back in the fight, im rearmed with weaponry (ipi & nivo) now im anxious to see what day 6 brings, as you remember, after my 1st bag of goodness i began the week & a half of pure hell starting at day 6 with the flu like feeling, and by day 8 or 9 my appetite was nowhere to be found (looked everywhere, even under the couch) pounding headaches (when i stooped down), nausea, dry heaves/vomiting, i couldnt eat for close to 7, 9 days! Then, as iv told you, Megace came into my life and after 2 or 3 teaspoon fulls i was instantly back on track! MEGACE IS GOD!
      You guys, that was the worst experience so far in my life physicaly, & i just hope it doesnt happen again, im suspecting the corporate is Yervoy, hes the BUTT KICKER! Lol….
      But anyhow, day 3 i feel just fine.Doing my wood working & keeping busy…
      Ok guys, just checkin with ya’s and ill write soon (hopefully NOT complaining) haha…
      Love ya, Mike…
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    • Replies
        • June 20, 2018 at 5:35 pm
        GeoTony
        Participant

          Good luck Mike, not that you need any with your fighting spirit and superb attitude

          • June 21, 2018 at 1:26 am
          Mark_DC
          Participant

            Mike – I dont have much to add, but am hoping the side effects wont be so bad this time, I would not read too much into day 6, this time round I hope will be completely different. Wish also for good blood work and that you will soon be on combo 3 and that this combo will work. Good luck and prayers Mark

            • June 21, 2018 at 2:55 am
            BillB
            Participant

              Great news Mike. Keep it going.

              Bii

              • June 21, 2018 at 7:52 pm
              TexMelanomex
              Participant

                Right on Big Mike!! Deep in the fight my warrior brother! Stay tuned or a #mikestrong appearance in Las Vegas in the next few days…check you inbox and you'll see what I mean. 

                 

                Warrior On!!

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