Headaches from Nivo treatment.

› Forums › General Melanoma Community › Headaches from Nivo treatment.

  • Post
    • September 7, 2017 at 7:04 pm
    guynamedbilly
    Participant
      I just had my second injection last Thursday. I’ve had a headache since Monday evening. I did contact my oncologist and she said to try ibuprofen and call again if it persited past the weekend. That did help, but it is still hurts if I don’t take it today. I’m wondering how bad pituitary gland swelling hurts so I can know what to watch for. Anyone have any experience with headaches in Novo?
    Viewing 1 reply thread
    • Replies
        • September 7, 2017 at 8:49 pm
        MovingOn
        Participant

          I had hypophysitis from Ipi. I had a medium headache and wanted to lay around (trying to sleep) all the time. At the time I thought my headache was from pituitary swelling but now I think it was from my cortisol dropping due to pituitary swelling. I think everyone on Ipi (or PD1 inhibitors) should ask to have their cortisol checked (simple blood test). We have our liver enzymes checked, thyroid levels checked, why not also cortisol? (The first time my cortisol was checked the reading was too low to measure. No I'm on hydrocortisone pills.)

            • September 8, 2017 at 1:44 pm
            guynamedbilly
            Participant

              Thanks, I'll talk to my doctor about getting cortisol tested.

            • September 8, 2017 at 12:09 pm
            marta010
            Participant

              If you have fatigue along with the headache, I'd definitely request labwork to check cortisol, thyroid and other adrenal functions.  Take care.

                • September 8, 2017 at 1:45 pm
                guynamedbilly
                Participant

                  Thanks, I haven't really felt fatigued, but I think I'll ask about testing cortisol anyways.

            Viewing 1 reply thread
            • You must be logged in to reply to this topic.
            About the MRF Patient Forum

            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

            Popular Topics