NED

  • Post
    Hukill
    Participant

      In June I was told I was in remission after 14 months of nivo/ipi combo and ipi alone. I had another scan last friday and now being told NED!!!!!!!!!!! Don't know if there is much difference between remission and NED but it just sounds better. I still get ipi every other week and dealing with multiple side effects but small price to pay for no melanoma. Vitiligo is still spreading, started on hands and arms but has moved to ankles and knees, love it as it is a positive sign.

    Viewing 5 reply threads
    • Replies
        sister of patient
        Participant

          Great news – so pleased for you!!! Congrats and enjoy your new status!!! Best wishes always!!  🙂

          Barb

          jennunicorn
          Participant

            AWESOME!! Best 3 letter acronym ever! Hope NED is your title for good!

            Congratulations!  Wonderful news!!

            Casitas1
            Participant

              Well done!

              Nick C
              Participant

                Way to go!!!

                Nick

                 

                Bubbles
                Participant

                  Congrats!!  Enjoy!!  Just wondering….are you still getting ipi infusions q other week…or nivo???  Here's to a walk on the white side!!!  If you and others are interested….here's a bunch of links re: vitiligo –

                  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/09/all-things-vitiligo.html

                  Best wishes.  Celeste

                    Hukill
                    Participant

                      I'm sorry, I meant nivo every other week. The plan right now is continue untill the end of december and then stop if my scans are still clean.

                Viewing 5 reply threads
                • You must be logged in to reply to this topic.
                About the MRF Patient Forum

                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                Popular Topics