Help with Plan

Forums General Melanoma Community Help with Plan

  • Post
    Scooby123
    Participant

      Hi all, i recent put on my pet results, from starting ipp in 2015 where my cancer was which was liver , lungs, heart, and probs dots around. Ippi shrunk my tumours all over by 50 %. so plan was watch and wait see how long i respond to it. In 2016 i had a 5mm brain met which i was told at the time probably ippi did not stop it in track. Had Gamma Knife for that and thank god clear scan since 2016 on brain.

       

      Had a pet scan which showed every where my cancer was prior starting ippi no intake on scan which is good news. But lymph nodes in chest 2 nodes up on intake. i am planned to have it biopsy on the nodes to see if mel and if yes Radiopherapy we are looking at to treat nodes. My consultant does not want to give me immunotherapy due i think stable eles where and just new nodes which lit up if mel.

      My scans from starting treatment never showed any lymph nodes up in chest , so from starting ippi i have progressed but because the areas when had ippi was treated and not changed at all thats why he does not want to give treatment than radiotherapy for nodes.

      Do you agree or should i push for immunotherapy or will radiotherapy kill the cancer in nodes. I just dont want to keep getting new areas each year lit up and then hard to control it. Part of me understands but then part of me does not

      Please can i have your advice if had this situation or what would you guys do .

      Thanks Guys

      Scooby x

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    • Replies
        Julie in SoCal
        Participant

          This is a tough one Scooby.  I'd probably be like you and want to keep going with the imuniotherapy because radiation and imuniotherapy play nicely with each other to kill melanoma. 

          Is Pembro or Opdivo an option?

          Julie

          Bubbles
          Participant

            I think it is pretty clear given from my post and my past…..I like radiation WITH immunotherapy!!! wishing you my best.  c

              Scooby123
              Participant

                Hi Hun,

                I agree but it depends if they will do it, i will ask on visit to see if possible.

                Scooby xx

                Bubbles
                Participant

                  I understand!!!  Hang in there! love, c

                liberty04281
                Participant
                  I had melanoma in chest lymph nose. It was removed by the surgery, and afterwards I had radiation. It helped
                  Good Luck!
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