A few weeks ago I started with groin and abdominal pain, this is after 8 treatments of Keytruda. Scan showed existing tumors stable but new involvement with 3 Lymph nodes. One is quite large and is supposedly the source of my pain. My doctor does not consider Keytruda a failure at this point so we are continuing with infusions. I just finished 3 weeks radiation on the nodes and am still not getting the relief I expected . Am I expecting too much too soon? Does anyone have personal experience to share? Thanks Lisa
No personal experience to report- except that my largish lymph nodes in groin were not painful prior to surgery. However, I have read reports where nodes/ tumours are painful as they are regressing and are necrotic or dying.. Think radiation to bones is different re pain relief and the radiation and keytruda may work together to get your immune system to attack then clean up the area and it becomes sore and painful during the process. Probably worth reporting continued pain to docs even if only to get help with better pain relief ?
Deb, I hope my pain is a good sign that the tumor is responding. My femur tumor responded quickly, Lymph nodes seem more stubborn. I see the doctor next week and it's time to talk pain management until keytruda or radiation does its job. Thanks
Deb, I hope my pain is a good sign that the tumor is responding. My femur tumor responded quickly, Lymph nodes seem more stubborn. I see the doctor next week and it's time to talk pain management until keytruda or radiation does its job. Thanks
Deb, I hope my pain is a good sign that the tumor is responding. My femur tumor responded quickly, Lymph nodes seem more stubborn. I see the doctor next week and it's time to talk pain management until keytruda or radiation does its job. Thanks
Deb, I hope my pain is a good sign that the tumor is responding. My femur tumor responded quickly, Lymph nodes seem more stubborn. I see the doctor next week and it's time to talk pain management until keytruda or radiation does its job. Thanks
Deb, I hope my pain is a good sign that the tumor is responding. My femur tumor responded quickly, Lymph nodes seem more stubborn. I see the doctor next week and it's time to talk pain management until keytruda or radiation does its job. Thanks
Deb, I hope my pain is a good sign that the tumor is responding. My femur tumor responded quickly, Lymph nodes seem more stubborn. I see the doctor next week and it's time to talk pain management until keytruda or radiation does its job. Thanks
No personal experience to report- except that my largish lymph nodes in groin were not painful prior to surgery. However, I have read reports where nodes/ tumours are painful as they are regressing and are necrotic or dying.. Think radiation to bones is different re pain relief and the radiation and keytruda may work together to get your immune system to attack then clean up the area and it becomes sore and painful during the process. Probably worth reporting continued pain to docs even if only to get help with better pain relief ?
No personal experience to report- except that my largish lymph nodes in groin were not painful prior to surgery. However, I have read reports where nodes/ tumours are painful as they are regressing and are necrotic or dying.. Think radiation to bones is different re pain relief and the radiation and keytruda may work together to get your immune system to attack then clean up the area and it becomes sore and painful during the process. Probably worth reporting continued pain to docs even if only to get help with better pain relief ?
Sorry you are dealing with all this, Lisa. But there is very good evidence that radiation COMBINED with immunotherapy does a much better job dealing with melanoma than either alone!
Hopefully your pain will improve very soon, but I would certainly speak with my doc about what you're experiencing, their idea on the source, and pain control options.
Sorry you are dealing with all this, Lisa. But there is very good evidence that radiation COMBINED with immunotherapy does a much better job dealing with melanoma than either alone!
Hopefully your pain will improve very soon, but I would certainly speak with my doc about what you're experiencing, their idea on the source, and pain control options.
Sorry you are dealing with all this, Lisa. But there is very good evidence that radiation COMBINED with immunotherapy does a much better job dealing with melanoma than either alone!
Hopefully your pain will improve very soon, but I would certainly speak with my doc about what you're experiencing, their idea on the source, and pain control options.
I wish you well. Celeste
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