Waiting and scared.

Forums General Melanoma Community Waiting and scared.

  • Post
    AimeeB
    Participant
      Hi there all, I am new here. I have an area on my face/scalp/hairline. I am not sure when it started exactly, but have been aware of it for about a year. It has been slowly growing, but I have been successful in ignoring it, lol. I only really notice it when I blow dry my hair. Finally, I realized I needed to have it examined. I had a biopsy on Monday. Normally the doc will say “I will call you tomorrow (in 2 days, etc) to give you the results. This time he said, let’s set up a time for you to come in and talk about the results. Ugh! We have online chart system, but they only put normal results on, until they speak to you. Of course, I have been stalking that site, and my results are not there. I am scared, as my father had melenoma on the top of his bald head 3 years ago and now has a big crater. I wish I knew how to post a picture. I also wish I knew either way, since the doctor didn’t give me any non-cancerous diagnosis.

      Thanks for listening to me. Just scared.

    Viewing 8 reply threads
    • Replies
        Charlie S
        Participant

          It's okay to be scared and I hear you.

          Breathe deep as the facts come in.

          You are not alone.

          It's weird, but there is a silent scream inside when confronted with melanoma and that is some of what of makes it such a lonely cancer.

          Charlie S

            AimeeB
            Participant
              Thanks much Charlie… ๐Ÿ™‚
              AimeeB
              Participant
                Thanks much Charlie… ๐Ÿ™‚
                AimeeB
                Participant
                  Thanks much Charlie… ๐Ÿ™‚
                Charlie S
                Participant

                  It's okay to be scared and I hear you.

                  Breathe deep as the facts come in.

                  You are not alone.

                  It's weird, but there is a silent scream inside when confronted with melanoma and that is some of what of makes it such a lonely cancer.

                  Charlie S

                  Charlie S
                  Participant

                    It's okay to be scared and I hear you.

                    Breathe deep as the facts come in.

                    You are not alone.

                    It's weird, but there is a silent scream inside when confronted with melanoma and that is some of what of makes it such a lonely cancer.

                    Charlie S

                    Charlie S
                    Participant

                      As a followup, one of the more frustrating things that haunt people and drive them crazy following a melanoma diagnosis is the uncertainity,  the waiting,  the sense of  having no control and being almost paralyzed by the lack of feedback (urgency) from your medical provider .

                      For the patient, it is a crisis…………the medical provider, well it's a job.

                      As a countermeasure I would suggest that you consider this:

                      Problem. Need. Solution.

                      Get three pieces of paper; this will not work with a computer, you MUST use either a pencil or pen and do three things.

                      First piece of paper write down why you are mad.  Use abusive language, make accusations, call people names, question the integrity of everyone………..then burn that piece of paper.  That is Problem.

                      Second piece of paper in hand, go stare into your own eyes in a mirror ……………..I am serious here……and tell yourself outloud what you are afraid of and write it down.  Do not lie to yourself…..this is important.  That is Need.

                      Third piece of paper?

                      Headline: Solution.   

                      What do you want? Be specific.  

                      Are you confused about your biopsy?  Fine , call the doc that TOOK the biopsy and ask where it was sent for pathological interpretation and ask for all  written reports.

                      Do NOT let them mess you around…………demand the written report of the biopsy; it is your medical record.

                      Request (in writing), a second pathology reading from a DermaPathologist.

                      Do not accept no for an answer.

                      (It may be necessary at this point to contact your insurance company and ask for a case manager)

                      The point is the solution might be to  take charge of your own medical care.

                      By  taking charge of a seeming out of control situation may give you some degree of control.

                      Just a start.

                      Just thinking out loud.

                       

                      Cheers,

                      Charlie S

                       

                      Charlie S
                      Participant

                        As a followup, one of the more frustrating things that haunt people and drive them crazy following a melanoma diagnosis is the uncertainity,  the waiting,  the sense of  having no control and being almost paralyzed by the lack of feedback (urgency) from your medical provider .

                        For the patient, it is a crisis…………the medical provider, well it's a job.

                        As a countermeasure I would suggest that you consider this:

                        Problem. Need. Solution.

                        Get three pieces of paper; this will not work with a computer, you MUST use either a pencil or pen and do three things.

                        First piece of paper write down why you are mad.  Use abusive language, make accusations, call people names, question the integrity of everyone………..then burn that piece of paper.  That is Problem.

                        Second piece of paper in hand, go stare into your own eyes in a mirror ……………..I am serious here……and tell yourself outloud what you are afraid of and write it down.  Do not lie to yourself…..this is important.  That is Need.

                        Third piece of paper?

                        Headline: Solution.   

                        What do you want? Be specific.  

                        Are you confused about your biopsy?  Fine , call the doc that TOOK the biopsy and ask where it was sent for pathological interpretation and ask for all  written reports.

                        Do NOT let them mess you around…………demand the written report of the biopsy; it is your medical record.

                        Request (in writing), a second pathology reading from a DermaPathologist.

                        Do not accept no for an answer.

                        (It may be necessary at this point to contact your insurance company and ask for a case manager)

                        The point is the solution might be to  take charge of your own medical care.

                        By  taking charge of a seeming out of control situation may give you some degree of control.

                        Just a start.

                        Just thinking out loud.

                         

                        Cheers,

                        Charlie S

                         

                        Charlie S
                        Participant

                          As a followup, one of the more frustrating things that haunt people and drive them crazy following a melanoma diagnosis is the uncertainity,  the waiting,  the sense of  having no control and being almost paralyzed by the lack of feedback (urgency) from your medical provider .

                          For the patient, it is a crisis…………the medical provider, well it's a job.

                          As a countermeasure I would suggest that you consider this:

                          Problem. Need. Solution.

                          Get three pieces of paper; this will not work with a computer, you MUST use either a pencil or pen and do three things.

                          First piece of paper write down why you are mad.  Use abusive language, make accusations, call people names, question the integrity of everyone………..then burn that piece of paper.  That is Problem.

                          Second piece of paper in hand, go stare into your own eyes in a mirror ……………..I am serious here……and tell yourself outloud what you are afraid of and write it down.  Do not lie to yourself…..this is important.  That is Need.

                          Third piece of paper?

                          Headline: Solution.   

                          What do you want? Be specific.  

                          Are you confused about your biopsy?  Fine , call the doc that TOOK the biopsy and ask where it was sent for pathological interpretation and ask for all  written reports.

                          Do NOT let them mess you around…………demand the written report of the biopsy; it is your medical record.

                          Request (in writing), a second pathology reading from a DermaPathologist.

                          Do not accept no for an answer.

                          (It may be necessary at this point to contact your insurance company and ask for a case manager)

                          The point is the solution might be to  take charge of your own medical care.

                          By  taking charge of a seeming out of control situation may give you some degree of control.

                          Just a start.

                          Just thinking out loud.

                           

                          Cheers,

                          Charlie S

                           

                            AimeeB
                            Participant
                              Thanks charlie. It is wonderful to have someone to hear my concerns. My appointment is tomorrow, I saw the nurse in the grocery store (small town here) I asked her if my results came in… she said yes. I asked her why they had not been posted online, and she said, best to wait and talk to the doctor. Ugh! That did not make me feel any better. I did some talking to my family, and my dad’s was ssm (not sure what stage, but they did radiation in action to mohs surgery) my sister also had ssm on hurt bumper, 5 years ago…. I can’t wait till tomorrow. Hopefully all this worry will be for not…
                              AimeeB
                              Participant
                                Thanks charlie. It is wonderful to have someone to hear my concerns. My appointment is tomorrow, I saw the nurse in the grocery store (small town here) I asked her if my results came in… she said yes. I asked her why they had not been posted online, and she said, best to wait and talk to the doctor. Ugh! That did not make me feel any better. I did some talking to my family, and my dad’s was ssm (not sure what stage, but they did radiation in action to mohs surgery) my sister also had ssm on hurt bumper, 5 years ago…. I can’t wait till tomorrow. Hopefully all this worry will be for not…
                                AimeeB
                                Participant
                                  Thanks charlie. It is wonderful to have someone to hear my concerns. My appointment is tomorrow, I saw the nurse in the grocery store (small town here) I asked her if my results came in… she said yes. I asked her why they had not been posted online, and she said, best to wait and talk to the doctor. Ugh! That did not make me feel any better. I did some talking to my family, and my dad’s was ssm (not sure what stage, but they did radiation in action to mohs surgery) my sister also had ssm on hurt bumper, 5 years ago…. I can’t wait till tomorrow. Hopefully all this worry will be for not…
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