Question on Till treatment

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  • Post
    • December 29, 2016 at 7:29 pm
    Scooby123
    Participant

      Can anyone tell me if you can have your cells saved for Till treatment  if you ever need to go down that route. This is if you was having it done private. 

      Sorry I have read about how the treatment works but also have read readings when you are so ill and cannot wait for cells to grow . Could you have them saved if you ever needed them. I know it might not work in the first place but if it did would this be possible if paying for it. Plus I have no idea how much it would be but it was on my mind. You can only get it I think but  could be wrong in Uk private. 

      Sorry if you think this is a silly question but was woundering, I am braf negative so finding as much I can  on treatments for braf negative.

      scooby

    Viewing 2 reply threads
    • Replies
        • December 29, 2016 at 10:51 pm
        maperny
        Participant

          Hi Scooby,

          It is possible to do this.  When they have harvested your T-cells from some tumour specimens then they freeze them until such time as the procedure and infusion is needed.  I believe they usually like to take sub-q samples if they can but in my husband's case they extracted from the liver.

          Cost and where it could be done in the U.K. I am afraid I don't know but I would imagine it would be in one of the large research hospitals (maybe Manchester?)

          Hope that helps

          • December 29, 2016 at 10:51 pm
          maperny
          Participant

            Hi Scooby,

            It is possible to do this.  When they have harvested your T-cells from some tumour specimens then they freeze them until such time as the procedure and infusion is needed.  I believe they usually like to take sub-q samples if they can but in my husband's case they extracted from the liver.

            Cost and where it could be done in the U.K. I am afraid I don't know but I would imagine it would be in one of the large research hospitals (maybe Manchester?)

            Hope that helps

            • December 29, 2016 at 10:51 pm
            maperny
            Participant

              Hi Scooby,

              It is possible to do this.  When they have harvested your T-cells from some tumour specimens then they freeze them until such time as the procedure and infusion is needed.  I believe they usually like to take sub-q samples if they can but in my husband's case they extracted from the liver.

              Cost and where it could be done in the U.K. I am afraid I don't know but I would imagine it would be in one of the large research hospitals (maybe Manchester?)

              Hope that helps

                • December 30, 2016 at 8:31 am
                Scooby123
                Participant

                  Thanks for reply will contact the hospital who does it and ask.

                  scooby x

                  • December 30, 2016 at 11:01 pm
                  debwray
                  Participant

                    Hi Scooby,

                    The Christie Manchester has a Til trial registered on Clinicaltrials.gov but this is not recruiting and looks old, although a Dutch one is active. https://clinicaltrials.gov/ct2/results?term=til+manchester+melanoma&Search=Search with Manchester listed as a collaborator ??

                    Deb

                     

                     

                    • January 16, 2017 at 5:37 am
                    SOLE
                    Participant

                      scooby has ther same concern as me: can we can get a Till therapy done privately somewhere on this planet without going through a trial? the reason I ask is because some of us do not fulfill all required patameters . so what if I want to pay, where is that hospital that will let me Till therapy?

                      • January 16, 2017 at 5:37 am
                      SOLE
                      Participant

                        scooby has ther same concern as me: can we can get a Till therapy done privately somewhere on this planet without going through a trial? the reason I ask is because some of us do not fulfill all required patameters . so what if I want to pay, where is that hospital that will let me Till therapy?

                        • January 16, 2017 at 5:37 am
                        SOLE
                        Participant

                          scooby has ther same concern as me: can we can get a Till therapy done privately somewhere on this planet without going through a trial? the reason I ask is because some of us do not fulfill all required patameters . so what if I want to pay, where is that hospital that will let me Till therapy?

                          • December 30, 2016 at 11:01 pm
                          debwray
                          Participant

                            Hi Scooby,

                            The Christie Manchester has a Til trial registered on Clinicaltrials.gov but this is not recruiting and looks old, although a Dutch one is active. https://clinicaltrials.gov/ct2/results?term=til+manchester+melanoma&Search=Search with Manchester listed as a collaborator ??

                            Deb

                             

                             

                            • December 30, 2016 at 11:01 pm
                            debwray
                            Participant

                              Hi Scooby,

                              The Christie Manchester has a Til trial registered on Clinicaltrials.gov but this is not recruiting and looks old, although a Dutch one is active. https://clinicaltrials.gov/ct2/results?term=til+manchester+melanoma&Search=Search with Manchester listed as a collaborator ??

                              Deb

                               

                               

                              • December 30, 2016 at 8:31 am
                              Scooby123
                              Participant

                                Thanks for reply will contact the hospital who does it and ask.

                                scooby x

                                • December 30, 2016 at 8:31 am
                                Scooby123
                                Participant

                                  Thanks for reply will contact the hospital who does it and ask.

                                  scooby x

                            Viewing 2 reply threads
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