I'm stage 4 with many 1-3 cm mets strewn across my body. I've responded well to treatment (PD-1) according to scans from 2 weeks ago. LDH is low, and eos/lymphocytes are in the right range. I remember (in retrospect) having mild muscle twitching when I first started having pains associated with developing mets. Those twitches last about 3 seconds at a time, but recur frequently. They've been happening more frequently lately — does anyone know what the cause of these twitches might be? I'm thinking its some sort of chemokine or cytokine reaction in my body, or some other side effect of my body duking it out with the cancer.
does anyone have any experience with muscle twitching? better yet, do you know what the cause may be? Keep in mind that this happened before I started PD-1, and has just started up again.
I have some muscle twithching / numb feet but like you this started well before immunotherapy treatment.
Mine is probably linked to compressed nerves in my lumbar spine- as indicated by spinal MRI and nerve conduction tests. Where in the body is this located ? Often nerve problems show up on the extremeties first- as these nerves have to send signals the furthest from the brain.
If you are bothered by anything out of the ordinary it helps me to write it down- work out the frequency and report it to the oncologist—sometimes I feel I'm just doing it for reassurance- but that is worth a lot and the docs seem to be continually learning about how these drugs affect us .
I have some muscle twithching / numb feet but like you this started well before immunotherapy treatment.
Mine is probably linked to compressed nerves in my lumbar spine- as indicated by spinal MRI and nerve conduction tests. Where in the body is this located ? Often nerve problems show up on the extremeties first- as these nerves have to send signals the furthest from the brain.
If you are bothered by anything out of the ordinary it helps me to write it down- work out the frequency and report it to the oncologist—sometimes I feel I'm just doing it for reassurance- but that is worth a lot and the docs seem to be continually learning about how these drugs affect us .
I have some muscle twithching / numb feet but like you this started well before immunotherapy treatment.
Mine is probably linked to compressed nerves in my lumbar spine- as indicated by spinal MRI and nerve conduction tests. Where in the body is this located ? Often nerve problems show up on the extremeties first- as these nerves have to send signals the furthest from the brain.
If you are bothered by anything out of the ordinary it helps me to write it down- work out the frequency and report it to the oncologist—sometimes I feel I'm just doing it for reassurance- but that is worth a lot and the docs seem to be continually learning about how these drugs affect us .
I had a rare form of Melanoma Desmoplastic Neurotropic. My disease tracked along the nerves. My first tumor was numb and all the rest had that twitching feeling. After several weeks on Pembro it subsided(quick response) and gone at 4 months. NED after 7 months. I will always have numbness from all the surgeries though. Best,Paul
I had a rare form of Melanoma Desmoplastic Neurotropic. My disease tracked along the nerves. My first tumor was numb and all the rest had that twitching feeling. After several weeks on Pembro it subsided(quick response) and gone at 4 months. NED after 7 months. I will always have numbness from all the surgeries though. Best,Paul
I had a rare form of Melanoma Desmoplastic Neurotropic. My disease tracked along the nerves. My first tumor was numb and all the rest had that twitching feeling. After several weeks on Pembro it subsided(quick response) and gone at 4 months. NED after 7 months. I will always have numbness from all the surgeries though. Best,Paul
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