After scan

Forums General Melanoma Community After scan

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    Dhva
    Participant

      My son (T3b N1a M0 ,primary 3.9mm ulcerated) had an appointment with the surgical oncologist, who along with the medical oncologist had recommended clnd and treatment (ipi or trial of Keytruda/ipi). His ct scan was negative -yay- except for "a small spot in his chest which is probably just reactive." Now the surg onc is saying he is on the fence about the clnd because there was only a little bit of cancer in the node, but the med once wants it done. My son had decided to have the surgery and go for the trial in the hopes of receiving Keytruda ,but now there is uncertainty. And while I know the decision is not mine to make, I am not in favor of the clnd.Is the advice of the med onc in the best interest of the patient or the trial? What do you do when the two Drs treating you no longer seem to be on the same page? Any thoughts would be helpful,thanks!

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    • Replies
        SOLE
        Participant

          Hi

          You can look up my threads on the same discussion. I have a T3bN1aM0 myself with an at least 2.85mm and ulceration.

          I wanted to have a second opinion before making my decision. I finally met with a second oncoogist last week and he asked me to give him my decision this Wednesday. I am not ready at all.

          What I came to understand from these people is that the field is completely divided. Some will be on the surgery side and some wont.

          Are you able to describe the «small cancer in one node only»? My path report said «rare isolated cells» found in one lymph node which absolutely no one here (Montreal, Canada where I am) wants to discuss. They think its all irrelevant. 

          I think otherwise. Maybe I choose to think otherwise. My findings were only seen through immunohischemistry which is apparently sub-microscopic (only seen through special staining and not directcly at the microscope).

          I know this is not what you want to hear but I dont think that in your case you can find your answer through the docs.

          It will be your choice only (or your son's). But you should both educate yourselves a little bit before making your decision.

          I've just received the link to a webinar conducted for Stage 3 patients on this site that was recently done. I submitted quite a few questions. Haven't seen it yet.

          Maybe we'll find answers or… more unanswered questions…

          Lets watch!

           

          SOLE
          Participant

            Hi

            You can look up my threads on the same discussion. I have a T3bN1aM0 myself with an at least 2.85mm and ulceration.

            I wanted to have a second opinion before making my decision. I finally met with a second oncoogist last week and he asked me to give him my decision this Wednesday. I am not ready at all.

            What I came to understand from these people is that the field is completely divided. Some will be on the surgery side and some wont.

            Are you able to describe the «small cancer in one node only»? My path report said «rare isolated cells» found in one lymph node which absolutely no one here (Montreal, Canada where I am) wants to discuss. They think its all irrelevant. 

            I think otherwise. Maybe I choose to think otherwise. My findings were only seen through immunohischemistry which is apparently sub-microscopic (only seen through special staining and not directcly at the microscope).

            I know this is not what you want to hear but I dont think that in your case you can find your answer through the docs.

            It will be your choice only (or your son's). But you should both educate yourselves a little bit before making your decision.

            I've just received the link to a webinar conducted for Stage 3 patients on this site that was recently done. I submitted quite a few questions. Haven't seen it yet.

            Maybe we'll find answers or… more unanswered questions…

            Lets watch!

             

              SOLE
              Participant

                Also,

                I am trying to get my case to be reviewed at the Rochester Mayo clinic to get another opinion and more over to have a much better description of my «rare isolated cells».

                SOLE
                Participant

                  Also,

                  I am trying to get my case to be reviewed at the Rochester Mayo clinic to get another opinion and more over to have a much better description of my «rare isolated cells».

                  SOLE
                  Participant

                    Also,

                    I am trying to get my case to be reviewed at the Rochester Mayo clinic to get another opinion and more over to have a much better description of my «rare isolated cells».

                  SOLE
                  Participant

                    Hi

                    You can look up my threads on the same discussion. I have a T3bN1aM0 myself with an at least 2.85mm and ulceration.

                    I wanted to have a second opinion before making my decision. I finally met with a second oncoogist last week and he asked me to give him my decision this Wednesday. I am not ready at all.

                    What I came to understand from these people is that the field is completely divided. Some will be on the surgery side and some wont.

                    Are you able to describe the «small cancer in one node only»? My path report said «rare isolated cells» found in one lymph node which absolutely no one here (Montreal, Canada where I am) wants to discuss. They think its all irrelevant. 

                    I think otherwise. Maybe I choose to think otherwise. My findings were only seen through immunohischemistry which is apparently sub-microscopic (only seen through special staining and not directcly at the microscope).

                    I know this is not what you want to hear but I dont think that in your case you can find your answer through the docs.

                    It will be your choice only (or your son's). But you should both educate yourselves a little bit before making your decision.

                    I've just received the link to a webinar conducted for Stage 3 patients on this site that was recently done. I submitted quite a few questions. Haven't seen it yet.

                    Maybe we'll find answers or… more unanswered questions…

                    Lets watch!

                     

                Viewing 2 reply threads
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