Update on Dad & Gamma Knife

Forums General Melanoma Community Update on Dad & Gamma Knife

  • Post
    snow white
    Participant

      Well I am happy to report that Dad did well with the Gamma Knife procedure.  I on the other hand can't stop crying, my heart just aches for him.  I guess I am just feeling sad because I know this is going to be such a long journey for him, he has always been my rock and cheerleader, and to see him go through this just kills me.  But, I will be his rock and cheerleader now, no doubt about it!!!!

      It took 144 minutes and they got 15 lesions, we knew to expect more than orginally diagnosed.  He says he is feeling tired and a bit of a headache.  The nurse told Mom that its possible that he will have pretty bad insomnia, but that he can take meds to help with that.  They also doubled his dose of Keppra.  Happy to have this behind us and moving on to the next thing.

       

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    • Replies
        cancersnewnormal
        Participant

          Glad to hear he made it through with no unexpected issues.  : )  E-hugs to you… I always think this is so much more emotionallly/mentally difficult for care givers than it is to be the actual patient. We know how we feel physically, and we are the ones knowing exactly what is going on during a procedure. You caregivers are left to watch, wonder, and feel helpless while waiting down the hall.

          15 spare bits of meat… all zapped and on their way to being dead meat. Your dad's brain is a stud. yes

          Thanks for the update!

          cancersnewnormal
          Participant

            Glad to hear he made it through with no unexpected issues.  : )  E-hugs to you… I always think this is so much more emotionallly/mentally difficult for care givers than it is to be the actual patient. We know how we feel physically, and we are the ones knowing exactly what is going on during a procedure. You caregivers are left to watch, wonder, and feel helpless while waiting down the hall.

            15 spare bits of meat… all zapped and on their way to being dead meat. Your dad's brain is a stud. yes

            Thanks for the update!

              snow white
              Participant

                Thank you Niki.  I appreciate any and all hugs! You are right being a caregiver does make one feel so helpless, I just want him to be better and I know its such a long road.

                Thank you so much for your support and kindness.

                ๐Ÿ™‚

                 

                 

                snow white
                Participant

                  Thank you Niki.  I appreciate any and all hugs! You are right being a caregiver does make one feel so helpless, I just want him to be better and I know its such a long road.

                  Thank you so much for your support and kindness.

                  ๐Ÿ™‚

                   

                   

                  snow white
                  Participant

                    Thank you Niki.  I appreciate any and all hugs! You are right being a caregiver does make one feel so helpless, I just want him to be better and I know its such a long road.

                    Thank you so much for your support and kindness.

                    ๐Ÿ™‚

                     

                     

                  cancersnewnormal
                  Participant

                    Glad to hear he made it through with no unexpected issues.  : )  E-hugs to you… I always think this is so much more emotionallly/mentally difficult for care givers than it is to be the actual patient. We know how we feel physically, and we are the ones knowing exactly what is going on during a procedure. You caregivers are left to watch, wonder, and feel helpless while waiting down the hall.

                    15 spare bits of meat… all zapped and on their way to being dead meat. Your dad's brain is a stud. yes

                    Thanks for the update!

                    debwray
                    Participant

                      Hi Jennifer,

                      Thank you for letting us know how it all went. Its such a relief as patient or family to be the other side of surgery. My tears usually hit on day 2 or three- as they cut back on the pain relief ! I think a good cry is supposed to relieve stress and release some helpful endorphins. Lets hope its all true .

                      Bet you have been trying to keep a lid on the emotional side as the the rational organiser had to take charge over the last week or so.. with business trips adding that extra degree of difficulty, all at the same time as assessing the likely immunotherapy or other treatments going forwards. Think you can allow yourself a bit of a tearful meltdown before the next set of decision making comes sharply in to focus. Think you and your family are coping admirably given the circumstances. Please let us know how it pans out with the oncologist.

                      Increasing the Keppra sounds like a sensible immediate post op decision and if the sleeping meds are prescribed on an as required basis, it sounds like they have got things covered. Sorry there were more mets than originally detected- but at least you had been prepared for that.

                      Your Dad has taken a big step forward in controlling the situation- long may it continue- 

                      Good luck on the journey

                      Deb

                      xx

                       

                       

                       

                      debwray
                      Participant

                        Hi Jennifer,

                        Thank you for letting us know how it all went. Its such a relief as patient or family to be the other side of surgery. My tears usually hit on day 2 or three- as they cut back on the pain relief ! I think a good cry is supposed to relieve stress and release some helpful endorphins. Lets hope its all true .

                        Bet you have been trying to keep a lid on the emotional side as the the rational organiser had to take charge over the last week or so.. with business trips adding that extra degree of difficulty, all at the same time as assessing the likely immunotherapy or other treatments going forwards. Think you can allow yourself a bit of a tearful meltdown before the next set of decision making comes sharply in to focus. Think you and your family are coping admirably given the circumstances. Please let us know how it pans out with the oncologist.

                        Increasing the Keppra sounds like a sensible immediate post op decision and if the sleeping meds are prescribed on an as required basis, it sounds like they have got things covered. Sorry there were more mets than originally detected- but at least you had been prepared for that.

                        Your Dad has taken a big step forward in controlling the situation- long may it continue- 

                        Good luck on the journey

                        Deb

                        xx

                         

                         

                         

                          snow white
                          Participant

                            Awe.  Thanks Deb, your words are always so kind and comforting.  You are right, I have been trying to keep my emotions in check, but after it was all over yesterday I felt such a relief to know it was over that the tears just started pouring.  I spoke to Dad today and he sounds good, said he is a little shaky and had a bit of a hard time putting his pants on.  They stopped at the Hospital to see the RN and she said it was normal with the large dose of steroids and the double Keppra.  So no worries.

                            Dad has some time now to recover a bit before he starts the rest of his treatment.  I believe it will be about 10 days or so. I will update as soon as we know any firm plans.

                            I hope you are feeling better!  Take care of yourself.

                            XX

                            snow white
                            Participant

                              Awe.  Thanks Deb, your words are always so kind and comforting.  You are right, I have been trying to keep my emotions in check, but after it was all over yesterday I felt such a relief to know it was over that the tears just started pouring.  I spoke to Dad today and he sounds good, said he is a little shaky and had a bit of a hard time putting his pants on.  They stopped at the Hospital to see the RN and she said it was normal with the large dose of steroids and the double Keppra.  So no worries.

                              Dad has some time now to recover a bit before he starts the rest of his treatment.  I believe it will be about 10 days or so. I will update as soon as we know any firm plans.

                              I hope you are feeling better!  Take care of yourself.

                              XX

                              snow white
                              Participant

                                Awe.  Thanks Deb, your words are always so kind and comforting.  You are right, I have been trying to keep my emotions in check, but after it was all over yesterday I felt such a relief to know it was over that the tears just started pouring.  I spoke to Dad today and he sounds good, said he is a little shaky and had a bit of a hard time putting his pants on.  They stopped at the Hospital to see the RN and she said it was normal with the large dose of steroids and the double Keppra.  So no worries.

                                Dad has some time now to recover a bit before he starts the rest of his treatment.  I believe it will be about 10 days or so. I will update as soon as we know any firm plans.

                                I hope you are feeling better!  Take care of yourself.

                                XX

                              debwray
                              Participant

                                Hi Jennifer,

                                Thank you for letting us know how it all went. Its such a relief as patient or family to be the other side of surgery. My tears usually hit on day 2 or three- as they cut back on the pain relief ! I think a good cry is supposed to relieve stress and release some helpful endorphins. Lets hope its all true .

                                Bet you have been trying to keep a lid on the emotional side as the the rational organiser had to take charge over the last week or so.. with business trips adding that extra degree of difficulty, all at the same time as assessing the likely immunotherapy or other treatments going forwards. Think you can allow yourself a bit of a tearful meltdown before the next set of decision making comes sharply in to focus. Think you and your family are coping admirably given the circumstances. Please let us know how it pans out with the oncologist.

                                Increasing the Keppra sounds like a sensible immediate post op decision and if the sleeping meds are prescribed on an as required basis, it sounds like they have got things covered. Sorry there were more mets than originally detected- but at least you had been prepared for that.

                                Your Dad has taken a big step forward in controlling the situation- long may it continue- 

                                Good luck on the journey

                                Deb

                                xx

                                 

                                 

                                 

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