8th &9th primary . ..ugh

Sorry to hear this, Bob. More cutting, more scars. But alive and kicking, that's the main thing. Can I ask – do you notice these new melanomas changing, or are they totally new as in popping up overnight? I've had three primaries and two were slowly changing over the course of years, one I'm not so sure about. Two were stage 1, and 1 in situ. Horrible as WLEs are, in situ melanomas really are the ones that you want, not anything invasive. Hopefully this is the last of it for you, I asked my doc once how many she had taken off one patient. Five was the highest.

Sorry to hear this, Bob. More cutting, more scars. But alive and kicking, that's the main thing. Can I ask – do you notice these new melanomas changing, or are they totally new as in popping up overnight? I've had three primaries and two were slowly changing over the course of years, one I'm not so sure about. Two were stage 1, and 1 in situ. Horrible as WLEs are, in situ melanomas really are the ones that you want, not anything invasive. Hopefully this is the last of it for you, I asked my doc once how many she had taken off one patient. Five was the highest.

THanks for replying. It is really unusual. I (used to) go to a skin cancer doctor in Australia, which is kind of melanoma capital of the world (though I guess Hawaii is nice and sunny, too). She sees hundreds of patients who have pretty much all had a crazy amount of sun exposure, and like I mentioned the most she has removed from one person is five. I did read an article once about an elderly athlete in Australia – a lady – who was having her 8th melanoma removed. She was well into her 80s and had these 8 spread out over the last 40 years. You are quite an interesting patient, I imagine! Have you considered asking to be put on an immunotherapy trial as an 'exceptional' stage 1 patient to see if that might have a preventative effect? I imagine that you are so unique that you might have a shot at this. I'm thinking of the drugs that stimulate the immune system. Yours might be of interest to them (they are available for stage 4 patients in Australia, and some stage 3 – not as a trial, on our normal treatment schedule – but I just wonder if a really unusual stage 1 case like yourself might not beneft as well?). Either way, I hope for your sake that these are the last of the melanomas. I really hate WLEs and dread ever having to get any more.

THanks for replying. It is really unusual. I (used to) go to a skin cancer doctor in Australia, which is kind of melanoma capital of the world (though I guess Hawaii is nice and sunny, too). She sees hundreds of patients who have pretty much all had a crazy amount of sun exposure, and like I mentioned the most she has removed from one person is five. I did read an article once about an elderly athlete in Australia – a lady – who was having her 8th melanoma removed. She was well into her 80s and had these 8 spread out over the last 40 years. You are quite an interesting patient, I imagine! Have you considered asking to be put on an immunotherapy trial as an 'exceptional' stage 1 patient to see if that might have a preventative effect? I imagine that you are so unique that you might have a shot at this. I'm thinking of the drugs that stimulate the immune system. Yours might be of interest to them (they are available for stage 4 patients in Australia, and some stage 3 – not as a trial, on our normal treatment schedule – but I just wonder if a really unusual stage 1 case like yourself might not beneft as well?). Either way, I hope for your sake that these are the last of the melanomas. I really hate WLEs and dread ever having to get any more.

THanks for replying. It is really unusual. I (used to) go to a skin cancer doctor in Australia, which is kind of melanoma capital of the world (though I guess Hawaii is nice and sunny, too). She sees hundreds of patients who have pretty much all had a crazy amount of sun exposure, and like I mentioned the most she has removed from one person is five. I did read an article once about an elderly athlete in Australia – a lady – who was having her 8th melanoma removed. She was well into her 80s and had these 8 spread out over the last 40 years. You are quite an interesting patient, I imagine! Have you considered asking to be put on an immunotherapy trial as an 'exceptional' stage 1 patient to see if that might have a preventative effect? I imagine that you are so unique that you might have a shot at this. I'm thinking of the drugs that stimulate the immune system. Yours might be of interest to them (they are available for stage 4 patients in Australia, and some stage 3 – not as a trial, on our normal treatment schedule – but I just wonder if a really unusual stage 1 case like yourself might not beneft as well?). Either way, I hope for your sake that these are the last of the melanomas. I really hate WLEs and dread ever having to get any more.

My friend, Murray, and his wife participated here for many years.  Murray had 8 primaries, maybe 9.  He lived in Canada and some of his treatment was different than they might have done in the US.  I've met a few others with 6 or 7 but you are just special, Bob.

My friend, Murray, and his wife participated here for many years.  Murray had 8 primaries, maybe 9.  He lived in Canada and some of his treatment was different than they might have done in the US.  I've met a few others with 6 or 7 but you are just special, Bob.

My friend, Murray, and his wife participated here for many years.  Murray had 8 primaries, maybe 9.  He lived in Canada and some of his treatment was different than they might have done in the US.  I've met a few others with 6 or 7 but you are just special, Bob.

Sorry to hear this, Bob. More cutting, more scars. But alive and kicking, that's the main thing. Can I ask – do you notice these new melanomas changing, or are they totally new as in popping up overnight? I've had three primaries and two were slowly changing over the course of years, one I'm not so sure about. Two were stage 1, and 1 in situ. Horrible as WLEs are, in situ melanomas really are the ones that you want, not anything invasive. Hopefully this is the last of it for you, I asked my doc once how many she had taken off one patient. Five was the highest.