What do you make of this

› Forums › General Melanoma Community › What do you make of this

  • Post
    • November 7, 2015 at 5:56 pm
    Scooby123
    Participant

      Hi all, I have just been for my 3 month check up with my oncologist and to sort out scans. On arrival we was seen by another of his second commands in charge. I wanted to speak to my oncologist due to I am going to another hospital to see a consultant who just deals with melanoma. Mine deals with head, neck, lungs, melanoma. I want to explore treatments I do not have the braf gene so ippi was my first treatment with 50% reduction in all my cancer. After speaking with the second in command oncologist he said that my consultant said scans every 6 months. I said surely not due to me having lungs, liver and others scatterd around even one next to my heart.  I wanted to also explain my reasons for going to see another consultant . It is not that am not happy with him but past experience been reassured all ok  and it was not I feel I have to be on the ball with this for myself. 

      Anyway the other consultant brought my consultant in so I could explain to him my reasons for seeing another consultant, he only does NHS patients this other consultant could recomend other private treatments who knows till I have seen him. He was Fine about it and I mentioned chemo saturation to the liver he replied you have not a problem with your liver. I said I have 3 tumours on liver, he just looked at my notes. This is not my first time seeing him so he should know my situation .

      well how would you guys feel if your consultant did not even know we're your tumours are. 

      I do not feel bad now in seeing some one else after today, but you have to do what's best for you.

      Scooby123❤️

    Viewing 5 reply threads
    • Replies
        • November 7, 2015 at 8:38 pm
        BrianP
        Participant

          Scooby,

          I would be pretty disappointed and embarrased for the Doctor.  I'm sure it can be difficult for doctors to keep track of everything going on with all their patients but that's a pretty big oversight not remembering there's cancer in your liver.

          When I first started this journey I also would have a feeling of guilt whenever I sought a second opinion.  I don't have one iotta of guilt nowadays.  I haven't had a doctor yet that didn't encourage it.  If I ever did run across a doctor then reacted negatively to me seeking another opinion it would probably be the last time I saw that doctor. 

          Brian

          • November 7, 2015 at 8:38 pm
          BrianP
          Participant

            Scooby,

            I would be pretty disappointed and embarrased for the Doctor.  I'm sure it can be difficult for doctors to keep track of everything going on with all their patients but that's a pretty big oversight not remembering there's cancer in your liver.

            When I first started this journey I also would have a feeling of guilt whenever I sought a second opinion.  I don't have one iotta of guilt nowadays.  I haven't had a doctor yet that didn't encourage it.  If I ever did run across a doctor then reacted negatively to me seeking another opinion it would probably be the last time I saw that doctor. 

            Brian

            • November 7, 2015 at 8:38 pm
            BrianP
            Participant

              Scooby,

              I would be pretty disappointed and embarrased for the Doctor.  I'm sure it can be difficult for doctors to keep track of everything going on with all their patients but that's a pretty big oversight not remembering there's cancer in your liver.

              When I first started this journey I also would have a feeling of guilt whenever I sought a second opinion.  I don't have one iotta of guilt nowadays.  I haven't had a doctor yet that didn't encourage it.  If I ever did run across a doctor then reacted negatively to me seeking another opinion it would probably be the last time I saw that doctor. 

              Brian

              • November 7, 2015 at 9:46 pm
              arthurjedi007
              Participant

                It's the nature of the disease and today's medical situation in my opinion that makes it fine to see and be treated by other doctors. I think most melanoma doctors expect it. I've only been treated by 2 plus a radiation doc. But I've been seen by 5 others. If it makes you feel better to see another doc I would say go for it.

                The doc not knowing the situation with your liver does not surprise me. He probably was going by your blood work that showed your liver was ok. But that's just my guess. My local doc has over 1000 patients so I'm surprised he remembers as much as he does.

                Artie

                • November 7, 2015 at 9:46 pm
                arthurjedi007
                Participant

                  It's the nature of the disease and today's medical situation in my opinion that makes it fine to see and be treated by other doctors. I think most melanoma doctors expect it. I've only been treated by 2 plus a radiation doc. But I've been seen by 5 others. If it makes you feel better to see another doc I would say go for it.

                  The doc not knowing the situation with your liver does not surprise me. He probably was going by your blood work that showed your liver was ok. But that's just my guess. My local doc has over 1000 patients so I'm surprised he remembers as much as he does.

                  Artie

                  • November 7, 2015 at 9:46 pm
                  arthurjedi007
                  Participant

                    It's the nature of the disease and today's medical situation in my opinion that makes it fine to see and be treated by other doctors. I think most melanoma doctors expect it. I've only been treated by 2 plus a radiation doc. But I've been seen by 5 others. If it makes you feel better to see another doc I would say go for it.

                    The doc not knowing the situation with your liver does not surprise me. He probably was going by your blood work that showed your liver was ok. But that's just my guess. My local doc has over 1000 patients so I'm surprised he remembers as much as he does.

                    Artie

                      • November 7, 2015 at 10:43 pm
                      Scooby123
                      Participant

                        Thanks for comments guys. I guess we do what we can to keep us going. 

                        How are you Artie ❤️

                        scooby

                        • November 7, 2015 at 10:43 pm
                        Scooby123
                        Participant

                          Thanks for comments guys. I guess we do what we can to keep us going. 

                          How are you Artie ❤️

                          scooby

                          • November 7, 2015 at 10:43 pm
                          Scooby123
                          Participant

                            Thanks for comments guys. I guess we do what we can to keep us going. 

                            How are you Artie ❤️

                            scooby

                            • November 8, 2015 at 12:55 pm
                            arthurjedi007
                            Participant

                              I'm ok I guess. Can't seem to get the pain meds right. So sometimes quite a bit of pain. With my left leg and hip issue I can walk about 2 minutes then I have to sit. The abraxane hasn't been that bad. Supposed get 2nd dose tomorrow. It has already started causing my hair to fall out. I just hope it is working.

                              Artie

                              • November 8, 2015 at 12:55 pm
                              arthurjedi007
                              Participant

                                I'm ok I guess. Can't seem to get the pain meds right. So sometimes quite a bit of pain. With my left leg and hip issue I can walk about 2 minutes then I have to sit. The abraxane hasn't been that bad. Supposed get 2nd dose tomorrow. It has already started causing my hair to fall out. I just hope it is working.

                                Artie

                                • November 8, 2015 at 12:55 pm
                                arthurjedi007
                                Participant

                                  I'm ok I guess. Can't seem to get the pain meds right. So sometimes quite a bit of pain. With my left leg and hip issue I can walk about 2 minutes then I have to sit. The abraxane hasn't been that bad. Supposed get 2nd dose tomorrow. It has already started causing my hair to fall out. I just hope it is working.

                                  Artie

                                  • November 8, 2015 at 1:32 pm
                                  Scooby123
                                  Participant

                                    Got my fingers crossed for you Artie , just keep positive and hope they try and sort out pain meds for you.

                                    i have a nasty chest infection at min so on meds for that, having scans next week Resuilts 3 December so will have my fingers crossed that all this infection is nothing else brewing xx

                                    speak soon you take care hun❤️

                                    Scooby

                                    • November 8, 2015 at 1:32 pm
                                    Scooby123
                                    Participant

                                      Got my fingers crossed for you Artie , just keep positive and hope they try and sort out pain meds for you.

                                      i have a nasty chest infection at min so on meds for that, having scans next week Resuilts 3 December so will have my fingers crossed that all this infection is nothing else brewing xx

                                      speak soon you take care hun❤️

                                      Scooby

                                      • November 8, 2015 at 1:32 pm
                                      Scooby123
                                      Participant

                                        Got my fingers crossed for you Artie , just keep positive and hope they try and sort out pain meds for you.

                                        i have a nasty chest infection at min so on meds for that, having scans next week Resuilts 3 December so will have my fingers crossed that all this infection is nothing else brewing xx

                                        speak soon you take care hun❤️

                                        Scooby

                                  Viewing 5 reply threads
                                  • You must be logged in to reply to this topic.
                                  About the MRF Patient Forum

                                  The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                  The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                  Popular Topics