Scan Update

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  • Post
    • November 4, 2015 at 2:29 am
    JoshF
    Participant

      The scan came back negative other than uptake in right shoulder. I'm an avid weightlifter and have had some issues with right shoulder and images showed it was in musculature structures so oncologist isn't concerned. It's been an ongoing issue…some times are better than others. Anyway that was a relief.

      So plan is to move forward with surgery which I hope to set up ASAP. In the interim, my onc is looking at options. Again, the concerns are what all of us are aware when it comes to adjuvant setting…no measurable disease, efficacy and side effects. She wants to get best plan in place and will have something by month end….anyone know of any good trials?

      Thank you everyone for your support and encouragement…it's nice to have a place like this where people support you, offer sound advice and simply just understand what you're going through. I'm very grateful to each and everyone of you who read, respond or just sympathize. I don't get very emotional but I about collapsed in exam room this afternoon. I just pray for the day where they can find a way to beat this back for advanced staged patients and not have it become the ball & chain it is. Yes, we go live life and enjoy everyday but it'd be so much nicer being a wee bit lighter!!!

      Be well…check in soon.

      Josh

    Viewing 29 reply threads
    • Replies
        • November 4, 2015 at 3:29 am
        SABKLYN
        Participant

          Great news Josh!  

          • November 4, 2015 at 3:29 am
          SABKLYN
          Participant

            Great news Josh!  

            • November 4, 2015 at 3:29 am
            SABKLYN
            Participant

              Great news Josh!  

                • November 4, 2015 at 3:35 am
                gregor913
                Participant
                  Glad to hear that josh. I have my SLNB next week.
                  • November 4, 2015 at 3:35 am
                  gregor913
                  Participant
                    Glad to hear that josh. I have my SLNB next week.
                    • November 4, 2015 at 3:35 am
                    gregor913
                    Participant
                      Glad to hear that josh. I have my SLNB next week.
                    • November 4, 2015 at 3:49 am
                    Bubbles
                    Participant

                      Awesome, Josh!  Hang in there.  You got this!! love, c

                      • November 4, 2015 at 3:49 am
                      Bubbles
                      Participant

                        Awesome, Josh!  Hang in there.  You got this!! love, c

                        • November 4, 2015 at 3:49 am
                        Bubbles
                        Participant

                          Awesome, Josh!  Hang in there.  You got this!! love, c

                          • November 4, 2015 at 4:17 am
                          casagrayson
                          Participant

                            Whew!!

                             

                            • November 4, 2015 at 4:17 am
                            casagrayson
                            Participant

                              Whew!!

                               

                              • November 4, 2015 at 4:17 am
                              casagrayson
                              Participant

                                Whew!!

                                 

                                • November 4, 2015 at 7:12 am
                                stars
                                Participant

                                  Glad to hear you got the all-clear, Josh.

                                  • November 4, 2015 at 7:12 am
                                  stars
                                  Participant

                                    Glad to hear you got the all-clear, Josh.

                                    • November 4, 2015 at 7:12 am
                                    stars
                                    Participant

                                      Glad to hear you got the all-clear, Josh.

                                        • November 4, 2015 at 11:52 am
                                        jbronicki
                                        Participant

                                          Those results are definitely things you want to hear!  There are good days and bad days with Melanoma…..and then there are REALLY GOOD days, and glad you had one of those!  So happy to hear this.

                                          jackie

                                          • November 4, 2015 at 11:52 am
                                          jbronicki
                                          Participant

                                            Those results are definitely things you want to hear!  There are good days and bad days with Melanoma…..and then there are REALLY GOOD days, and glad you had one of those!  So happy to hear this.

                                            jackie

                                            • November 4, 2015 at 11:52 am
                                            jbronicki
                                            Participant

                                              Those results are definitely things you want to hear!  There are good days and bad days with Melanoma…..and then there are REALLY GOOD days, and glad you had one of those!  So happy to hear this.

                                              jackie

                                            • November 4, 2015 at 12:17 pm
                                            rosa1
                                            Participant

                                              Glad to hear the good news Josh! I understand when you said you almost collapsed in the the waiting room, sitting there and waiting for the scan results is just one of the worst thing a person could go through. But we do it all the times, we don't get used to it, we just do it. Again congrats for the good news, and keep the faith!

                                              Rosa

                                              • November 4, 2015 at 12:17 pm
                                              rosa1
                                              Participant

                                                Glad to hear the good news Josh! I understand when you said you almost collapsed in the the waiting room, sitting there and waiting for the scan results is just one of the worst thing a person could go through. But we do it all the times, we don't get used to it, we just do it. Again congrats for the good news, and keep the faith!

                                                Rosa

                                                • November 4, 2015 at 12:17 pm
                                                rosa1
                                                Participant

                                                  Glad to hear the good news Josh! I understand when you said you almost collapsed in the the waiting room, sitting there and waiting for the scan results is just one of the worst thing a person could go through. But we do it all the times, we don't get used to it, we just do it. Again congrats for the good news, and keep the faith!

                                                  Rosa

                                                  • November 4, 2015 at 2:06 pm
                                                  dentholla
                                                  Participant

                                                    Really glad to hear this – thanks for sharing and very VERY happy for you.  It sounds like you have excellent care and what find so uplifting are the many options that Melanoma patients have now compared to years ago.  My husband is in a clinical trial for stage 3 so we know he's either getting Ipi or Nivo.  His side effects have been minimal to say the least.  Best wishes to you!

                                                    ~Kristi

                                                    • November 4, 2015 at 2:06 pm
                                                    dentholla
                                                    Participant

                                                      Really glad to hear this – thanks for sharing and very VERY happy for you.  It sounds like you have excellent care and what find so uplifting are the many options that Melanoma patients have now compared to years ago.  My husband is in a clinical trial for stage 3 so we know he's either getting Ipi or Nivo.  His side effects have been minimal to say the least.  Best wishes to you!

                                                      ~Kristi

                                                      • November 4, 2015 at 2:06 pm
                                                      dentholla
                                                      Participant

                                                        Really glad to hear this – thanks for sharing and very VERY happy for you.  It sounds like you have excellent care and what find so uplifting are the many options that Melanoma patients have now compared to years ago.  My husband is in a clinical trial for stage 3 so we know he's either getting Ipi or Nivo.  His side effects have been minimal to say the least.  Best wishes to you!

                                                        ~Kristi

                                                        • November 4, 2015 at 7:16 pm
                                                        jenny22
                                                        Participant

                                                          Hi Josh-

                                                          SO happy to hear you got the best news……hopefully the surgery will get it all, and maybe nothing more…..

                                                          As I write this I am sitting in the waiting room at MSKCC wiating for pre-surgical testing….just saw Dr. Coit and my surgery will be sometime next week.

                                                          ONe of the things you metioned, about which we all worry is some type of adjuvant treatment when NED….

                                                          In my case, Stage 3B…..interesting that neither Pavick (med onc) nor Coit (Surgeon) seem to big fan of IPI based on the side effects, (some permanent)…..

                                                          They both agree on radiation, but that is obviously only for local control…..so what do we do to prevent spread (And worry) that there are cells out there wiating to pop up in distant places??????

                                                          Let us know when your surgery is, and also will be interested to hear your ONCs plan for next steps.

                                                          FOR NOW though, a sincere CONGRATS on this news.

                                                          best,

                                                          jenny

                                                           

                                                          • November 4, 2015 at 7:16 pm
                                                          jenny22
                                                          Participant

                                                            Hi Josh-

                                                            SO happy to hear you got the best news……hopefully the surgery will get it all, and maybe nothing more…..

                                                            As I write this I am sitting in the waiting room at MSKCC wiating for pre-surgical testing….just saw Dr. Coit and my surgery will be sometime next week.

                                                            ONe of the things you metioned, about which we all worry is some type of adjuvant treatment when NED….

                                                            In my case, Stage 3B…..interesting that neither Pavick (med onc) nor Coit (Surgeon) seem to big fan of IPI based on the side effects, (some permanent)…..

                                                            They both agree on radiation, but that is obviously only for local control…..so what do we do to prevent spread (And worry) that there are cells out there wiating to pop up in distant places??????

                                                            Let us know when your surgery is, and also will be interested to hear your ONCs plan for next steps.

                                                            FOR NOW though, a sincere CONGRATS on this news.

                                                            best,

                                                            jenny

                                                             

                                                            • November 4, 2015 at 7:16 pm
                                                            jenny22
                                                            Participant

                                                              Hi Josh-

                                                              SO happy to hear you got the best news……hopefully the surgery will get it all, and maybe nothing more…..

                                                              As I write this I am sitting in the waiting room at MSKCC wiating for pre-surgical testing….just saw Dr. Coit and my surgery will be sometime next week.

                                                              ONe of the things you metioned, about which we all worry is some type of adjuvant treatment when NED….

                                                              In my case, Stage 3B…..interesting that neither Pavick (med onc) nor Coit (Surgeon) seem to big fan of IPI based on the side effects, (some permanent)…..

                                                              They both agree on radiation, but that is obviously only for local control…..so what do we do to prevent spread (And worry) that there are cells out there wiating to pop up in distant places??????

                                                              Let us know when your surgery is, and also will be interested to hear your ONCs plan for next steps.

                                                              FOR NOW though, a sincere CONGRATS on this news.

                                                              best,

                                                              jenny

                                                               

                                                              • November 4, 2015 at 8:35 pm
                                                              Eileensulliv
                                                              Participant

                                                                Awesome news, Josh! You've been through a lot! I hope all goes well for you!

                                                                • November 4, 2015 at 8:35 pm
                                                                Eileensulliv
                                                                Participant

                                                                  Awesome news, Josh! You've been through a lot! I hope all goes well for you!

                                                                  • November 4, 2015 at 8:35 pm
                                                                  Eileensulliv
                                                                  Participant

                                                                    Awesome news, Josh! You've been through a lot! I hope all goes well for you!

                                                                    • November 5, 2015 at 2:48 am
                                                                    Swanee
                                                                    Participant

                                                                      Glad you got  good news Josh, not perfect, but it's definitely on the better side of things!  I agree with everything you just said and feel every word and emotion!  Sending positive thoughts to you and your family as you tackle this next obstacle!

                                                                      Swanee

                                                                      • November 5, 2015 at 2:48 am
                                                                      Swanee
                                                                      Participant

                                                                        Glad you got  good news Josh, not perfect, but it's definitely on the better side of things!  I agree with everything you just said and feel every word and emotion!  Sending positive thoughts to you and your family as you tackle this next obstacle!

                                                                        Swanee

                                                                        • November 5, 2015 at 2:48 am
                                                                        Swanee
                                                                        Participant

                                                                          Glad you got  good news Josh, not perfect, but it's definitely on the better side of things!  I agree with everything you just said and feel every word and emotion!  Sending positive thoughts to you and your family as you tackle this next obstacle!

                                                                          Swanee

                                                                          • November 5, 2015 at 10:58 pm
                                                                          JoshF
                                                                          Participant

                                                                            Thank you everyone for well wishes and support!!!!

                                                                            Josh

                                                                            • November 5, 2015 at 10:58 pm
                                                                            JoshF
                                                                            Participant

                                                                              Thank you everyone for well wishes and support!!!!

                                                                              Josh

                                                                              • November 5, 2015 at 10:58 pm
                                                                              JoshF
                                                                              Participant

                                                                                Thank you everyone for well wishes and support!!!!

                                                                                Josh

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