Anybody tried Pawpaw/acetogenins?

› Forums › General Melanoma Community › Anybody tried Pawpaw/acetogenins?

  • Post
    • October 24, 2015 at 9:14 pm
    mrsaxde
    Participant

      I walked into the bedroom this morning to find my wife watching one of those web ads about acetogenins. Since being diagnosed with melanoma in 2013 I have looked at alternative treatments to supplement the treatments the doctor has prescribed. I've tried Tagamet and mushroom extract in addition to Yervoy, and now Keytruda, with the blessings of my doctor. Both of those substances have been found to be of benefit for at least some melanoma patients.

      Now I have a healthy dose of skepticism about these things on the internet, but I grabbed my laptop and googled "acetogenin." I was amazed to find that there are at least several scholarly papers that have found that acetogenins have anti-tumor properties. They apparently work on a cellular pathway that starves tumor cells of nutrients, or something to that effect.

      In the months I've been hanging around this message board, I have never heard anyone else mention them. Apparently the primary source for acetogenins is Pawpaw extract. Has anybody tried them, have any experience with them, know anything about them? Like I said, I'll try anything that could possibly work as long as my doctor ok's it. And I intend to ask her about acetogenins when I see her a week from Monday.

      -Bill

    Viewing 8 reply threads
    • Replies
        • October 24, 2015 at 11:13 pm
        Gene_S
        Participant

          Paw Paw is actually a fruit.

          • October 24, 2015 at 11:13 pm
          Gene_S
          Participant

            Paw Paw is actually a fruit.

              • October 24, 2015 at 11:34 pm
              mrsaxde
              Participant

                Yes, I am aware of that.

                • October 24, 2015 at 11:34 pm
                mrsaxde
                Participant

                  Yes, I am aware of that.

                  • October 24, 2015 at 11:34 pm
                  mrsaxde
                  Participant

                    Yes, I am aware of that.

                  • October 24, 2015 at 11:13 pm
                  Gene_S
                  Participant

                    Paw Paw is actually a fruit.

                    • October 25, 2015 at 1:16 am
                    Squash
                    Participant

                      You can buy green papaya caps which are good for the digestive function. They are anti inflammatory so i guess they will be beneficial. You could also look at curcumin, green tea extract and reservatol as other supplements that might be beneficial.

                      My doctor told  me I can take any supplement i want with the keytruda. I also take tagament along with a list as long as your arm of supplements. The tagamet is good for me as it keeps in check stomach issues from the keytruda.It also gets rid of the pre cancerous sun spots believe it or not. Unfortunately it has no effect on the melanoma.

                      I have had three rounds of keytruda and frankly no side effects apart from a little bit of digestive disruption the day or two after the infusion. But i dont think it is doing anything either unfortuately. I can see some of my tumours and they arent getting smaller. Apparently the median time for response is about three months so i am about half way at the moment an hoping it will do something soon.

                       

                       

                       

                       

                      • October 25, 2015 at 1:16 am
                      Squash
                      Participant

                        You can buy green papaya caps which are good for the digestive function. They are anti inflammatory so i guess they will be beneficial. You could also look at curcumin, green tea extract and reservatol as other supplements that might be beneficial.

                        My doctor told  me I can take any supplement i want with the keytruda. I also take tagament along with a list as long as your arm of supplements. The tagamet is good for me as it keeps in check stomach issues from the keytruda.It also gets rid of the pre cancerous sun spots believe it or not. Unfortunately it has no effect on the melanoma.

                        I have had three rounds of keytruda and frankly no side effects apart from a little bit of digestive disruption the day or two after the infusion. But i dont think it is doing anything either unfortuately. I can see some of my tumours and they arent getting smaller. Apparently the median time for response is about three months so i am about half way at the moment an hoping it will do something soon.

                         

                         

                         

                         

                          • October 26, 2015 at 3:25 am
                          Sarahrenahan
                          Participant

                            Hi

                             

                            I just started paw paw cel-reg tablets. I read lots about them before trying. Its not the fruit that is good but the twigs and bark…

                            • October 26, 2015 at 3:25 am
                            Sarahrenahan
                            Participant

                              Hi

                               

                              I just started paw paw cel-reg tablets. I read lots about them before trying. Its not the fruit that is good but the twigs and bark…

                              • October 26, 2015 at 3:25 am
                              Sarahrenahan
                              Participant

                                Hi

                                 

                                I just started paw paw cel-reg tablets. I read lots about them before trying. Its not the fruit that is good but the twigs and bark…

                              • October 25, 2015 at 1:16 am
                              Squash
                              Participant

                                You can buy green papaya caps which are good for the digestive function. They are anti inflammatory so i guess they will be beneficial. You could also look at curcumin, green tea extract and reservatol as other supplements that might be beneficial.

                                My doctor told  me I can take any supplement i want with the keytruda. I also take tagament along with a list as long as your arm of supplements. The tagamet is good for me as it keeps in check stomach issues from the keytruda.It also gets rid of the pre cancerous sun spots believe it or not. Unfortunately it has no effect on the melanoma.

                                I have had three rounds of keytruda and frankly no side effects apart from a little bit of digestive disruption the day or two after the infusion. But i dont think it is doing anything either unfortuately. I can see some of my tumours and they arent getting smaller. Apparently the median time for response is about three months so i am about half way at the moment an hoping it will do something soon.

                                 

                                 

                                 

                                 

                                • October 26, 2015 at 3:40 pm
                                Gene_S
                                Participant

                                  I just came across this and thought it might help but it is not about Paw Paw.

                                  http://natural.news/2015-10-26-frankincense-a-natural-cancer-killer.html

                                  My husband also makes sure he keeps his Vitamin D3 up into the 80's and did the whole time he was on Ipi (Yervoy) Clinical Trial and even the research nurse agreed it may have helped him since so many people are deficient in Vitamin D3 or there numbers are not in the high range.

                                  Judy (loving wife of Gene Stage IV and now NED)

                                    • October 26, 2015 at 4:44 pm
                                    arthurjedi007
                                    Participant

                                      Yep. One of my docs said to rub frankincense oil on. Won't work for everyone but none of this stuff does. Basically he had it tested and if I remember right if you have the sage3 mutation at least I think that's the one it can make your tumors even internal shrink a lot. I posted back in I think September about it. Didn't work for me of course 🙁

                                      Artie

                                      • October 26, 2015 at 4:44 pm
                                      arthurjedi007
                                      Participant

                                        Yep. One of my docs said to rub frankincense oil on. Won't work for everyone but none of this stuff does. Basically he had it tested and if I remember right if you have the sage3 mutation at least I think that's the one it can make your tumors even internal shrink a lot. I posted back in I think September about it. Didn't work for me of course 🙁

                                        Artie

                                        • October 26, 2015 at 4:44 pm
                                        arthurjedi007
                                        Participant

                                          Yep. One of my docs said to rub frankincense oil on. Won't work for everyone but none of this stuff does. Basically he had it tested and if I remember right if you have the sage3 mutation at least I think that's the one it can make your tumors even internal shrink a lot. I posted back in I think September about it. Didn't work for me of course 🙁

                                          Artie

                                        • October 26, 2015 at 3:40 pm
                                        Gene_S
                                        Participant

                                          I just came across this and thought it might help but it is not about Paw Paw.

                                          http://natural.news/2015-10-26-frankincense-a-natural-cancer-killer.html

                                          My husband also makes sure he keeps his Vitamin D3 up into the 80's and did the whole time he was on Ipi (Yervoy) Clinical Trial and even the research nurse agreed it may have helped him since so many people are deficient in Vitamin D3 or there numbers are not in the high range.

                                          Judy (loving wife of Gene Stage IV and now NED)

                                          • October 26, 2015 at 3:40 pm
                                          Gene_S
                                          Participant

                                            I just came across this and thought it might help but it is not about Paw Paw.

                                            http://natural.news/2015-10-26-frankincense-a-natural-cancer-killer.html

                                            My husband also makes sure he keeps his Vitamin D3 up into the 80's and did the whole time he was on Ipi (Yervoy) Clinical Trial and even the research nurse agreed it may have helped him since so many people are deficient in Vitamin D3 or there numbers are not in the high range.

                                            Judy (loving wife of Gene Stage IV and now NED)

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