Update on ippi scans

› Forums › General Melanoma Community › Update on ippi scans

  • Post
    • September 10, 2015 at 4:24 pm
    Scooby123
    Participant

      Hi  all,

      just been for my scan results a month after last ippi scans my consultant wanted to see if due to response from ippi on all my mel that it was not a short response bit confusing to me . Anyway due to not got full report he said nothing looked different from last scan if anything could be a bit better. He will contact me if any more reduction otherwise 2 months rest from hospital unless I feel I'll scans in 6 months he said . I thought you get scanned every 3 months after scooby

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    • Replies
        • September 10, 2015 at 8:14 pm
        mrsaxde
        Participant

          6 months? That's not what my oncologist said. He told me every three months, for at least 2 years, if I remember right. Then if things still looked good, it would be every six months for the next 2 years. My old oncologist moved, but the new one I'm seeing is doing the same thing. I had a CT scan in May, and I go back for my next one next Tuesday.

          • September 10, 2015 at 8:14 pm
          mrsaxde
          Participant

            6 months? That's not what my oncologist said. He told me every three months, for at least 2 years, if I remember right. Then if things still looked good, it would be every six months for the next 2 years. My old oncologist moved, but the new one I'm seeing is doing the same thing. I had a CT scan in May, and I go back for my next one next Tuesday.

            • September 10, 2015 at 8:14 pm
            mrsaxde
            Participant

              6 months? That's not what my oncologist said. He told me every three months, for at least 2 years, if I remember right. Then if things still looked good, it would be every six months for the next 2 years. My old oncologist moved, but the new one I'm seeing is doing the same thing. I had a CT scan in May, and I go back for my next one next Tuesday.

              • September 10, 2015 at 8:34 pm
              Patina
              Participant

                My Mom saw her oncologist every 2 months until he knew that all tumors reacted (shrank and continued shrinking) then every 3 months after that. Because all tumors responded to ipi after 3 (2 month consults) her oncologist moved it to every 3 months.

                She had a reoccurrence of a brain met, but because of the brain mets treated she was still seeing her radiation oncologist every 2 months. 

                Are you working with Melanoma specialist?  They seem to be more watchful than general oncologists…

                 

                  • September 11, 2015 at 11:10 am
                  Scooby123
                  Participant

                    Hi Pitina,

                    my consultant deals with head lung melanoma, he not just a melanoma speciallist . We do not have a speciallist were I live I think manchester is the nearest for me or London which would be a 3 hour trip by car.  I thought it was 3 months . It's a long story but I was getting checked every 3 months from stage 2 b over 4 years . I did mention regarding my back problem and other little things but they just put it down to my arthuritus . When eventually got scanned I had tumours liver lung and else were. They do not know if it was from when I had it removed first it was not clear but I did ask them if they could check as I was left from my GP a year saying the mole was nothing. They said I will be checked every 3 months and if it comes back it would show in lymph nodes well they was wrong . It must have already broke away and developed through my body straight to organs. So at this stage I have been treated with ippi with 50% reduction so he scanned me a month after finishing ippi cus he applied for keytruda if this did not work. So am guessing he wanted to scan early to see if I still had full response but now wait again for 6 months for scans. I see him in 2 months so will ask again . 

                     

                    Keep well 

                    scooby

                    • September 11, 2015 at 11:10 am
                    Scooby123
                    Participant

                      Hi Pitina,

                      my consultant deals with head lung melanoma, he not just a melanoma speciallist . We do not have a speciallist were I live I think manchester is the nearest for me or London which would be a 3 hour trip by car.  I thought it was 3 months . It's a long story but I was getting checked every 3 months from stage 2 b over 4 years . I did mention regarding my back problem and other little things but they just put it down to my arthuritus . When eventually got scanned I had tumours liver lung and else were. They do not know if it was from when I had it removed first it was not clear but I did ask them if they could check as I was left from my GP a year saying the mole was nothing. They said I will be checked every 3 months and if it comes back it would show in lymph nodes well they was wrong . It must have already broke away and developed through my body straight to organs. So at this stage I have been treated with ippi with 50% reduction so he scanned me a month after finishing ippi cus he applied for keytruda if this did not work. So am guessing he wanted to scan early to see if I still had full response but now wait again for 6 months for scans. I see him in 2 months so will ask again . 

                       

                      Keep well 

                      scooby

                      • September 11, 2015 at 11:10 am
                      Scooby123
                      Participant

                        Hi Pitina,

                        my consultant deals with head lung melanoma, he not just a melanoma speciallist . We do not have a speciallist were I live I think manchester is the nearest for me or London which would be a 3 hour trip by car.  I thought it was 3 months . It's a long story but I was getting checked every 3 months from stage 2 b over 4 years . I did mention regarding my back problem and other little things but they just put it down to my arthuritus . When eventually got scanned I had tumours liver lung and else were. They do not know if it was from when I had it removed first it was not clear but I did ask them if they could check as I was left from my GP a year saying the mole was nothing. They said I will be checked every 3 months and if it comes back it would show in lymph nodes well they was wrong . It must have already broke away and developed through my body straight to organs. So at this stage I have been treated with ippi with 50% reduction so he scanned me a month after finishing ippi cus he applied for keytruda if this did not work. So am guessing he wanted to scan early to see if I still had full response but now wait again for 6 months for scans. I see him in 2 months so will ask again . 

                         

                        Keep well 

                        scooby

                      • September 10, 2015 at 8:34 pm
                      Patina
                      Participant

                        My Mom saw her oncologist every 2 months until he knew that all tumors reacted (shrank and continued shrinking) then every 3 months after that. Because all tumors responded to ipi after 3 (2 month consults) her oncologist moved it to every 3 months.

                        She had a reoccurrence of a brain met, but because of the brain mets treated she was still seeing her radiation oncologist every 2 months. 

                        Are you working with Melanoma specialist?  They seem to be more watchful than general oncologists…

                         

                        • September 10, 2015 at 8:34 pm
                        Patina
                        Participant

                          My Mom saw her oncologist every 2 months until he knew that all tumors reacted (shrank and continued shrinking) then every 3 months after that. Because all tumors responded to ipi after 3 (2 month consults) her oncologist moved it to every 3 months.

                          She had a reoccurrence of a brain met, but because of the brain mets treated she was still seeing her radiation oncologist every 2 months. 

                          Are you working with Melanoma specialist?  They seem to be more watchful than general oncologists…

                           

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