Hi all. I have been on keytruda since September 2014 I recently posted about a problem I have had with cramps all over my torso. It is like frozen shoulder but from top of neck down to hips. It was agony and I couldn't move. I am in Europe and was worried I couldn't get home to Australia. My dr gave me the ok to take 25 mg prednisone and it is like a magic wand. Up to now I had been taking 900 mg ibuprofen every 6 hours and it didn't really help much. I know the prednisone counteracts the Pembro but at least I can get home now and I'm sure my doctor will have a plan 🙂 he is amazing. I just wanted to share this with you as this problem has been increasing over the last 10 weeks until it became unbearable. I could only find one other person on this site that has had the same side effect
Thanks for sharing anne-Louise, I think that many of us that are on long term clinical trials need to share these types of events. I love it when the clinical trial coordinator comes in with a new update(new risk) to sign off on. I feel bad for the person that must have become very ill on the trial that required them to add a new side effect. Wishing you the best with the corticosteroid treatment!!! Ed
Thanks for sharing anne-Louise, I think that many of us that are on long term clinical trials need to share these types of events. I love it when the clinical trial coordinator comes in with a new update(new risk) to sign off on. I feel bad for the person that must have become very ill on the trial that required them to add a new side effect. Wishing you the best with the corticosteroid treatment!!! Ed
Thanks for sharing anne-Louise, I think that many of us that are on long term clinical trials need to share these types of events. I love it when the clinical trial coordinator comes in with a new update(new risk) to sign off on. I feel bad for the person that must have become very ill on the trial that required them to add a new side effect. Wishing you the best with the corticosteroid treatment!!! Ed
Ed is right, Anne-Louise!! The more the ratties share, the more the docs know and less ratties (or wee mousies!!!) have to suffer later. So many times the things I shared were met with…"Wow! This stuff is WEIRD!" So be it. Thanks for sharing. Yours, C
Ed is right, Anne-Louise!! The more the ratties share, the more the docs know and less ratties (or wee mousies!!!) have to suffer later. So many times the things I shared were met with…"Wow! This stuff is WEIRD!" So be it. Thanks for sharing. Yours, C
Ed is right, Anne-Louise!! The more the ratties share, the more the docs know and less ratties (or wee mousies!!!) have to suffer later. So many times the things I shared were met with…"Wow! This stuff is WEIRD!" So be it. Thanks for sharing. Yours, C
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