Yervoy Rash/Itch

Forums General Melanoma Community Yervoy Rash/Itch

  • Post
    Jewel
    Participant

      Hello there,

      My husband managed to complete all 4 doses of Yervoy 1/19/2015 with very little side effects. Scans on 3/3/2015 showed NED. My question is slowly in the past month or so the itching/rash has become worse and worse, to the point that his sleep has gotten very disrupted, I plan on calling our Oncologist Monday but I was just wondering if anybody might have some advise. He has taken Benadral,  used all the creams, Sarna, Gold Bond Medicated Etc, nothing really touches it. I know they might put him on a tropical/oral cortiosteroids. Poor guy has had enought, thankfully during the day doesn't bother him nearly as much. Any thoughts?

      Thanks,

      Jewel

    Viewing 17 reply threads
    • Replies
        ed williams
        Participant

          Hi Jewel, the topic has come up several times over the last year. If you go back and look up the topic you will find lots of examples of what people had found to work. Wishing you the best! Ed

            Jewel
            Participant

              Thank you Ed for your reply. I have looked backed and didn't really see any information on people who were put on a steroid to help control the rash/itch, I will try to look further.

              Jewel

              Jewel
              Participant

                Thank you Ed for your reply. I have looked backed and didn't really see any information on people who were put on a steroid to help control the rash/itch, I will try to look further.

                Jewel

                Jewel
                Participant

                  Thank you Ed for your reply. I have looked backed and didn't really see any information on people who were put on a steroid to help control the rash/itch, I will try to look further.

                  Jewel

                ed williams
                Participant

                  Hi Jewel, the topic has come up several times over the last year. If you go back and look up the topic you will find lots of examples of what people had found to work. Wishing you the best! Ed

                  ed williams
                  Participant

                    Hi Jewel, the topic has come up several times over the last year. If you go back and look up the topic you will find lots of examples of what people had found to work. Wishing you the best! Ed

                    ed williams
                    Participant

                      Try March third for a starting place. The topic has come up a lot just follow back to the names of the people who have posted comments on this topic. Hope this helped. Ed

                        Jewel
                        Participant

                          Thank you Ed, I will try that.

                          Jewel
                          Participant

                            Thank you Ed, I will try that.

                            Jewel
                            Participant

                              Thank you Ed, I will try that.

                            ed williams
                            Participant

                              Try March third for a starting place. The topic has come up a lot just follow back to the names of the people who have posted comments on this topic. Hope this helped. Ed

                              ed williams
                              Participant

                                Try March third for a starting place. The topic has come up a lot just follow back to the names of the people who have posted comments on this topic. Hope this helped. Ed

                                AshleyS
                                Participant

                                  I'm currently on a Yervoy/Opdivo combo trial. A really bad rash started after my first infusion. My dermatologist recommended I go on Claritin. I've used a generic version and it's helped a lot. I also take short, luke warm showers only using Dove soap, and lather up with lotion (Cera Ve) right after I get out. 

                                   

                                  Congrats on NED!!!!

                                  AshleyS
                                  Participant

                                    I'm currently on a Yervoy/Opdivo combo trial. A really bad rash started after my first infusion. My dermatologist recommended I go on Claritin. I've used a generic version and it's helped a lot. I also take short, luke warm showers only using Dove soap, and lather up with lotion (Cera Ve) right after I get out. 

                                     

                                    Congrats on NED!!!!

                                    AshleyS
                                    Participant

                                      I'm currently on a Yervoy/Opdivo combo trial. A really bad rash started after my first infusion. My dermatologist recommended I go on Claritin. I've used a generic version and it's helped a lot. I also take short, luke warm showers only using Dove soap, and lather up with lotion (Cera Ve) right after I get out. 

                                       

                                      Congrats on NED!!!!

                                      Jubes
                                      Participant

                                        Congratulations!! I tried the clarytine but I may not have taken it consistently enough. The itching isn't too bad but the rash has really spread. Someone recently posted that the natures gate colloidal oatmeal lotion mixed with a few drops of tea tree oil made their rash clear up so I will try that next. 

                                        Jubes
                                        Participant

                                          Congratulations!! I tried the clarytine but I may not have taken it consistently enough. The itching isn't too bad but the rash has really spread. Someone recently posted that the natures gate colloidal oatmeal lotion mixed with a few drops of tea tree oil made their rash clear up so I will try that next. 

                                            arthurjedi007
                                            Participant

                                              Yes that oatmeal lotion should be great. I haven't tried it but I no longer have rashes. Some things that helped me are lathering on olive oil especially after a shower. Liquid vitamin e. There's also a plant that has a liquid but the name escapes me.

                                              if it was me I would avoid the cortizone steroid stuff. Steroids is what they give us to tone down yervoy and pd1 when they sometimes get our immune system too boosted causing colitis. So they are needed then but for a rash I would do these more natural things. On zelboraf I had a rash from my neck to my ankles so thick you couldn't take the end of your pinky finger and find a clear spot anywhere. So yeah Ive been through that he'll on earth. Not fun.

                                              Artie

                                              arthurjedi007
                                              Participant

                                                Yes that oatmeal lotion should be great. I haven't tried it but I no longer have rashes. Some things that helped me are lathering on olive oil especially after a shower. Liquid vitamin e. There's also a plant that has a liquid but the name escapes me.

                                                if it was me I would avoid the cortizone steroid stuff. Steroids is what they give us to tone down yervoy and pd1 when they sometimes get our immune system too boosted causing colitis. So they are needed then but for a rash I would do these more natural things. On zelboraf I had a rash from my neck to my ankles so thick you couldn't take the end of your pinky finger and find a clear spot anywhere. So yeah Ive been through that he'll on earth. Not fun.

                                                Artie

                                                arthurjedi007
                                                Participant

                                                  Yes that oatmeal lotion should be great. I haven't tried it but I no longer have rashes. Some things that helped me are lathering on olive oil especially after a shower. Liquid vitamin e. There's also a plant that has a liquid but the name escapes me.

                                                  if it was me I would avoid the cortizone steroid stuff. Steroids is what they give us to tone down yervoy and pd1 when they sometimes get our immune system too boosted causing colitis. So they are needed then but for a rash I would do these more natural things. On zelboraf I had a rash from my neck to my ankles so thick you couldn't take the end of your pinky finger and find a clear spot anywhere. So yeah Ive been through that he'll on earth. Not fun.

                                                  Artie

                                                Jubes
                                                Participant

                                                  Congratulations!! I tried the clarytine but I may not have taken it consistently enough. The itching isn't too bad but the rash has really spread. Someone recently posted that the natures gate colloidal oatmeal lotion mixed with a few drops of tea tree oil made their rash clear up so I will try that next. 

                                                  sweetaugust
                                                  Participant

                                                    Yes, this was a recent topic where I was the one who swears by the Nature's Gate Colloidal Oatmeal lotion (found at Whole Foods or online anywhere).  Here is a link to that thread…I hope it works.  I would also sometimes add some Tea Tree Essential Oil to the lotion as well, as Tea Tree is good for healing the skin.  But it stinks like medicine.  Ick!!!

                                                    http://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/yervoy-ipilimumab-side

                                                    And the plant that works to sooth the skin is Aloe.  You can also go to most Whole Foods stores and actually purchase the Aloe leaf to apple directly to your skin.  You may also remember using it on sunburns as a kid. 

                                                    Best of luck, Laurie

                                                    sweetaugust
                                                    Participant

                                                      Yes, this was a recent topic where I was the one who swears by the Nature's Gate Colloidal Oatmeal lotion (found at Whole Foods or online anywhere).  Here is a link to that thread…I hope it works.  I would also sometimes add some Tea Tree Essential Oil to the lotion as well, as Tea Tree is good for healing the skin.  But it stinks like medicine.  Ick!!!

                                                      http://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/yervoy-ipilimumab-side

                                                      And the plant that works to sooth the skin is Aloe.  You can also go to most Whole Foods stores and actually purchase the Aloe leaf to apple directly to your skin.  You may also remember using it on sunburns as a kid. 

                                                      Best of luck, Laurie

                                                      sweetaugust
                                                      Participant

                                                        Yes, this was a recent topic where I was the one who swears by the Nature's Gate Colloidal Oatmeal lotion (found at Whole Foods or online anywhere).  Here is a link to that thread…I hope it works.  I would also sometimes add some Tea Tree Essential Oil to the lotion as well, as Tea Tree is good for healing the skin.  But it stinks like medicine.  Ick!!!

                                                        http://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/yervoy-ipilimumab-side

                                                        And the plant that works to sooth the skin is Aloe.  You can also go to most Whole Foods stores and actually purchase the Aloe leaf to apple directly to your skin.  You may also remember using it on sunburns as a kid. 

                                                        Best of luck, Laurie

                                                        momof4boys
                                                        Participant
                                                          I actually finished all doses, including maintenance doses. I had a lot of issues with this and was given a prescription. I’m not home now but will look and see what it is later and let you know.
                                                          momof4boys
                                                          Participant
                                                            I actually finished all doses, including maintenance doses. I had a lot of issues with this and was given a prescription. I’m not home now but will look and see what it is later and let you know.
                                                              Jewel
                                                              Participant

                                                                I thank each and everyone of you for your help. Believe it or not my husband stopped taking HOT showers at night and I got him Aveeno lotion and he seems much better….who knows

                                                                Jewel

                                                                Jewel
                                                                Participant

                                                                  I thank each and everyone of you for your help. Believe it or not my husband stopped taking HOT showers at night and I got him Aveeno lotion and he seems much better….who knows

                                                                  Jewel

                                                                  momof4boys
                                                                  Participant
                                                                    I was prescribed this, hydroxyzpam, probably generic of something. I took it as needed and it works let me tell ya.Good luck!
                                                                    momof4boys
                                                                    Participant
                                                                      I was prescribed this, hydroxyzpam, probably generic of something. I took it as needed and it works let me tell ya.Good luck!
                                                                      momof4boys
                                                                      Participant
                                                                        I was prescribed this, hydroxyzpam, probably generic of something. I took it as needed and it works let me tell ya.Good luck!
                                                                        Jewel
                                                                        Participant

                                                                          I thank each and everyone of you for your help. Believe it or not my husband stopped taking HOT showers at night and I got him Aveeno lotion and he seems much better….who knows

                                                                          Jewel

                                                                        momof4boys
                                                                        Participant
                                                                          I actually finished all doses, including maintenance doses. I had a lot of issues with this and was given a prescription. I’m not home now but will look and see what it is later and let you know.
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