new to mrf

Forums General Melanoma Community new to mrf

  • Post
    tomw65
    Participant

      I was diagnosed with stage 3 melanoma in Jan of 2015. I am a 70 year old married man with 3 children and just received my 1st of 4 immuno therapy infusions with 3 weeks in between treatments.looking to find support any where that I can through this journey. New to this site so just trying to find my way around.

    Viewing 23 reply threads
    • Replies
        Julie in SoCal
        Participant

          Welcome Tom,

          It's not a place anyone of us would choose to be, but,you've come to a good place for info and support for those with melanoma.  

          I take it you're on Yervoy (IPI)? yes?  There are a lot of folks here who have been down that road.  If you've got questions, just ask.

          Shalom,

          Julie

          Stage 3: WLE, SNB, LND, HD-INF, GM-CSF, IPI, Key?

          Julie in SoCal
          Participant

            Welcome Tom,

            It's not a place anyone of us would choose to be, but,you've come to a good place for info and support for those with melanoma.  

            I take it you're on Yervoy (IPI)? yes?  There are a lot of folks here who have been down that road.  If you've got questions, just ask.

            Shalom,

            Julie

            Stage 3: WLE, SNB, LND, HD-INF, GM-CSF, IPI, Key?

            Julie in SoCal
            Participant

              Welcome Tom,

              It's not a place anyone of us would choose to be, but,you've come to a good place for info and support for those with melanoma.  

              I take it you're on Yervoy (IPI)? yes?  There are a lot of folks here who have been down that road.  If you've got questions, just ask.

              Shalom,

              Julie

              Stage 3: WLE, SNB, LND, HD-INF, GM-CSF, IPI, Key?

              BrianP
              Participant

                Welcome to the club nobody wants to belong to.  Lots of folks here on Ipi so this is a good place to ask advice.  There is a search feature that you can do a search for things like "Ipi side effects" or other key words and probably find some good infromation.  Just curious if you are getting your ipi in the adjuvant setting or if you were stage III unresectable.  Hopefully you will cruise through Ipi with little to no side effects.  Some do.  I suggest you really familiarize yourself with the side effects so you can recognize them if they present themselves.  Many of the side effects are very manageable if caught early but if you let them get a running start they can become quite problematic.  Two in particular to keep an eye out for is colitis (diarhea, stomach pain) and hypophysitis (swelling of the pituitary gland that causes headaches). 

                Good luck to you.

                Brian

                BrianP
                Participant

                  Welcome to the club nobody wants to belong to.  Lots of folks here on Ipi so this is a good place to ask advice.  There is a search feature that you can do a search for things like "Ipi side effects" or other key words and probably find some good infromation.  Just curious if you are getting your ipi in the adjuvant setting or if you were stage III unresectable.  Hopefully you will cruise through Ipi with little to no side effects.  Some do.  I suggest you really familiarize yourself with the side effects so you can recognize them if they present themselves.  Many of the side effects are very manageable if caught early but if you let them get a running start they can become quite problematic.  Two in particular to keep an eye out for is colitis (diarhea, stomach pain) and hypophysitis (swelling of the pituitary gland that causes headaches). 

                  Good luck to you.

                  Brian

                  BrianP
                  Participant

                    Welcome to the club nobody wants to belong to.  Lots of folks here on Ipi so this is a good place to ask advice.  There is a search feature that you can do a search for things like "Ipi side effects" or other key words and probably find some good infromation.  Just curious if you are getting your ipi in the adjuvant setting or if you were stage III unresectable.  Hopefully you will cruise through Ipi with little to no side effects.  Some do.  I suggest you really familiarize yourself with the side effects so you can recognize them if they present themselves.  Many of the side effects are very manageable if caught early but if you let them get a running start they can become quite problematic.  Two in particular to keep an eye out for is colitis (diarhea, stomach pain) and hypophysitis (swelling of the pituitary gland that causes headaches). 

                    Good luck to you.

                    Brian

                    Marianne quinn
                    Participant

                      If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                      Marianne quinn
                      Participant

                        If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                        Marianne quinn
                        Participant

                          If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                          Marianne quinn
                          Participant

                            If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                            Marianne quinn
                            Participant

                              If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                              Marianne quinn
                              Participant

                                If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                                Marianne quinn
                                Participant

                                  If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                                  Marianne quinn
                                  Participant

                                    If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                                    Marianne quinn
                                    Participant

                                      If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                                      Marianne quinn
                                      Participant

                                        If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                                        Marianne quinn
                                        Participant

                                          If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                                          Marianne quinn
                                          Participant

                                            If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                                            Marianne quinn
                                            Participant

                                              If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                                              Marianne quinn
                                              Participant

                                                If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                                                Marianne quinn
                                                Participant

                                                  If you read my posts, I have written quite a bit about hoe my husband managed the side effects of ipi. He is your age and is NED. Good luck

                                                  arthurjedi007
                                                  Participant

                                                    Good luck with yervoy. A friend of my aunt went through it when he was about 70 when it was a trial med. he's getting close to 80 now and doing fine with just 2 scans a year to keep an eye on things.

                                                    Good luck to you.

                                                    Artie

                                                    arthurjedi007
                                                    Participant

                                                      Good luck with yervoy. A friend of my aunt went through it when he was about 70 when it was a trial med. he's getting close to 80 now and doing fine with just 2 scans a year to keep an eye on things.

                                                      Good luck to you.

                                                      Artie

                                                      arthurjedi007
                                                      Participant

                                                        Good luck with yervoy. A friend of my aunt went through it when he was about 70 when it was a trial med. he's getting close to 80 now and doing fine with just 2 scans a year to keep an eye on things.

                                                        Good luck to you.

                                                        Artie

                                                    Viewing 23 reply threads
                                                    • You must be logged in to reply to this topic.
                                                    About the MRF Patient Forum

                                                    The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                    The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.